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beachbirdie

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Everything posted by beachbirdie

  1. beachbirdie
    Oh my gosh. I'm really glad, I guess, that I can't find them where I live. Because if I knew they were available, your post would have had me jumping up from my computer to go get some!!! More seriously, it is so great that there are products available that are truly good and make us WANT to eat them, rather than being substitutes that...
  2. beachbirdie
    Sooo...if I read correctly, you've had testing at two different times, and the second test gave you higher anti-gliadin antigodies than the first test. I haven't gone to find any of your other posts, but it sounds to me like you ARE reacting to gluten because you are making antibodies against it. You do not have the antibodies that indicate your body...
  3. beachbirdie
    From the Open Original Shared Link: "This isoform occurs when a person has the DQ7.5/DQ2.2 phenotype." It's a good article on the genetic stuff. I'd guess your DQ2.5trans came from a DQ7, Prometheus doesn't report the DQ7. Too bad they didn't report the beta on your DQ2.5. The DQ7.5 raises the risk factor of your DQ2.2. According to the Wikipedia...
  4. beachbirdie
    Insist on celiac testing, full panel. If this doctor won't do it, find one who will. You should also have your thyroid function checked out, and rule out the common stuff like diabetes.
  5. beachbirdie
    The same thing could happen regardeless of your IgA status. The reason they check for total serum IgA is to make sure the IgA tests that they do are valid. If you are IgA deficient, you would most likely test negative on the IgA version of gliading antibodies, but not necessarily. There are two subclasses and you could theoretically have higher than normal...
  6. beachbirdie
    I'm in the netherworld between self-diagnosed and doctor diagnosed. My doctor was content to call it celiac based on one positive blood test but I know other docs would not diagnose me without a biopsy and would probably dismiss my doc's call, blaming my positive test on my Hashimoto's disease. I have symptoms(though not the "classic" ones), one low...
  7. beachbirdie
    My husband eats potato sandwiches and he eats mayonnaise on his rice. Blecchh.
  8. beachbirdie
    Get the results of your blood tests and your biopsy report. Just because you have RA, doesn't mean THAT is what elevated your antibodies. He may not have done enough tests, and they may not have done enough biopsy samples, or they may not have interpreted well. Have you ever tried to go gluten free? If so, did you notice a difference in how you...
  9. beachbirdie
    I also thought everyone put ketchup on their eggs. I can't conceive of any other way to eat them! (Well, maybe with cheese, but that's more accepted.) My family thinks I'm crazy because i like mayonnaise on my avocados.
  10. beachbirdie
    My first suggestion is to get a copy of your test results, and read them for yourself. Find out what tests your doctor did, and what the numbers say. Doctors very often do not do a complete panel, and a lot of people "fall through the cracks". If you post your results here, folks can help with interpretation. You should have these tests: Total...
  11. beachbirdie
    I don't know anything about major store brands, but I get some from Applegate Farms that are gluten-free/casein-free. You can look at them here. They are not cheap. i don't know how widely they are distributed...a Whole Foods type market might have them.
  12. beachbirdie
    Does your test result say whether your test is something like "DGP" or "deamidated gliading peptides"? If so, your test is very specific and you could in good conscience call yourself celiac and be done with it. Even if it DOESN'T say that, you could get away with calling yourself celiac though the older versions of the tests are not quite as good as the...
  13. beachbirdie
    Oops. I can't say it is Hashimoto's because I'm not medical! One of the sets of antibodies that can point to Hashimoto's is the thyroid peroxidase that is listed in your tests. The other one would be anty-thyroglobulin, which they did not run. Interesting your doc did not say anything about it though. Your TPO level is not terribly high, but it...
  14. beachbirdie
    Ahhh...I see now. When your doc says your thyroid is "crazy high" she is saying your TSH is high. That actually means you are probably suffering from low thyroid. The body makes more TSH in the attempt to whip the thyroid gland into producing more hormone. And if your doc is dosing based on TSH, she is trying to hit a moving target. And rocking the boat...
  15. beachbirdie
    It's a bit expensive, but I like a French vodka that is distilled from grapes. It's called "C
  16. beachbirdie
    Sorry your post got pushed down kind of far without an answer! Digestive enzymes are compounds that help your body bread down foods (well, they smash giant molecules into smaller ones that our bodies can absorb). Your body makes enzymes, but some of our bodies need a little help. For example, lactase is the enzyme that works to break down lactose...
  17. beachbirdie
    Well, I don't really know what to say, I never know whether to say "congratulations...now you know and can go on to be very healthy" or whether to say "aww, I feel awful for you, this is such terrible news". It is perfectly normal to have emotions all over the place when you get information like this. It's okay to whine some, cry some, be a little...
  18. beachbirdie
    Want the short answer? Yes. Long answer? I'm not a medical professional but after reading this forum a LOT I have run across a number of people who are indeed extremely sensitive. Give it some more time and see how you feel. I really, really hope that you are on the way to healing. You have suffered so much, and it is even more grievous because...
  19. beachbirdie
    Would you have a little more detail on your thyroid? What does your doctor mean when she says your thyroid is "HIGH". Is she measuring your Free thyroid hormone? Or is she just measuring your TSH? A person on supplementary thyroid hormone should be dosed based on free thyroid levels, NOT TSH alone. The TSH feedback mechanism gets changed with the introduction...
  20. beachbirdie
    You are correct, you discovered that the celiac testing they did is completely invalid. Your total IgA is LOW, and the doctor only ran IgA versions of the celiac tests. They are useless. Dumb doctors. You have many signs that do point to celiac (not diagnosing here, not a doctor) and you should get IgG versions of celiac tests as well as biopsy...
  21. beachbirdie
    I think it would be a good idea to go ahead and be "pushy" on this point. There is a difference between "assertiveness" and "pushiness". You simply need to be assertive. Your health is at stake. Tell the doc (or the nurse) or write a letter asking for copies of your reports, simply tell them that you are building a personal medical file so that if...
  22. beachbirdie
    Ummm...who did the interpretation of your endoscopy? It looks to me, from different things I've found in GI journal articles (Open Original Shared Link, and from the Open Original Shared Link (Scott Lewey who has written for this site) that your "villous to crypt ratio" is less then good (Not necessarily dangerously bad yet, either). Normal should be...
  23. beachbirdie
    nora is " da man"! She really "gets it" and explains it well.
  24. beachbirdie
    I was looking back through some of your posts, and couldn't find where you might have posted any of your test results. Have you gotten copies of those from your doctor? You should get that, and also get the report on your endoscopy. Many is the person who had what is early damage, yet got an "all-clear" from their doctor. Your doc might be one who...
  25. beachbirdie
    Don't feel dumb! Actually, there could be a connection. My doc believes there is, and a doc I've communicated with (who has both celiac and diverticulitis attacks) also believes there to be. I've had two diverticulitis attacks, very painful. And the treatment is miserable. Even when not infected, I've always had some degree of abdominal discomfort...
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