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Latest Celiac Disease News & Research:
Everything posted by bartfull
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ARCHIVED 2 Year Old With Gluten Issues
bartfull replied to verdemomma's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Well, celiac DOES run in families, and since you feel better gluten-free, my opinion if that BOTH of you likely have celiac. I think if it were me, I would have him tested. If the blood tests come back positive, I don't think there is any need for a biopsy. It depends on what your doctor thinks. These are the blood tests you should ask for: tTG IgA... -
I bet the OP meant to say digestive ENZYMES.
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ARCHIVED Bread Machine For A Shared Home?
bartfull replied to Nikki2777's topic in Gluten-Free Recipes & Cooking Tips
Or, if you are sure he wouldn't make gluten bread while you're not around, give him some gluten-free breadmaker recipes and insist that is the ONLY kind of bread he can make in it. And who knows, if the bread comes out tasting good, maybe he will start going gluten-free in the house and only eat gluten when he is away from home. -
ARCHIVED Bread Machine For A Shared Home?
bartfull replied to Nikki2777's topic in Gluten-Free Recipes & Cooking Tips
Not only would I NEVER use a bread machine that ever held gluten, but I would make sure to put ALL of my gluten-free dishes/pans/utensils in sealed plastic bags and in a room at the other end of the house, plus remove MYSELF from the house while this bread-making was going on. You know that flour dust gets into the air and stays there for hours and hours... -
What they said. All I have to add is... (((((HUGS)))))
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ARCHIVED New Guy- Needs Help To Start Diet For The New Year!
bartfull replied to jay81's topic in Gluten-Free Foods, Products, Shopping & Medications
Well, I usually buy Canyon Bakehouse bread, but I DO buy Udi's Double Chocolate Muffins. First of all, I'm glad to help you out on the stock, but second of all, if you haven't tried the muffins yet, DO! They are unbelievably good. You'll probably spend every penny you make on the stock buying these muffins, which will increase your stock's value which will... -
ARCHIVED Stomach Pains
bartfull replied to Frosty-35768's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It's going around. It's probably just the stomach bug. -
ARCHIVED Borborygmus: Not Just For Scrabble Anymore
bartfull replied to Lirren's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Balloon animals! (I used to be a real clown. I mean a registered clown at fairs and such. Now I'm just an average clown on the street.) Anyway, don't EVER apologize for posting here and asking questions. That's what we're here for! I think your gas and rumbling are probably the result of the change in your diet. You're eating different foods now and... -
ARCHIVED Was Better But Now Sicker Than Ever - Help!
bartfull replied to DonnaD55's topic in Coping with Celiac Disease
Yes, it is the same stuff. (I know because I helped a friend texture his walls a while back). Even though the texture is wet when it is sprayed I am sure the dust got into the air when they were mixing it, and some even when they sprayed. I'm not saying that is the whole problem, but I'm sure if she was in the house when it was being done she would have been... -
ARCHIVED Gone Gluten Free
bartfull replied to dblreedr's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Here are the blood tests to ask for: tTG IgA and tTG IgG DGP IgA and DGP IgG (this one tends to fall first after being gluten-free a for time) EMA IgA (detects more advanced disease) total serum IgA (control test) AGA IgA and AGA IgG (older and less reliable tests) -
ARCHIVED Gone Gluten Free
bartfull replied to dblreedr's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Wow. It is absolutely insane that so many doctors refuse to test for celiac, especially when there is a family history. And it is true that blood tests sometimes result in false negatives. Even the biopsies sometimes do because they often either don't take enough samples, or they miss the spot with damage. If you go off gluten and then reintroduce later... -
ARCHIVED For Celiacs With Joint Pain
bartfull replied to spirit-walk's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Nope. No swelling, just pain and stiffness. -
ARCHIVED For Celiacs With Joint Pain
bartfull replied to spirit-walk's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
While I DO have arthritis in my spine, the joint pain in my fingers and shoulders and knees and hips was caused by nightshades. I was intolerant to potatoes for a long time (psoriasis flares), so when I finally got them back I went on a potato binge. After a couple of weeks the joint pain came on strong, and remembering that folks here have said that nightshades... -
ARCHIVED Was Better But Now Sicker Than Ever - Help!
bartfull replied to DonnaD55's topic in Coping with Celiac Disease
AHA! Sheet rock dust! And the compound they use! They all have gluten. If she breathed that in it would get in the back of her thoat and she would swallow it. If that is the case it would explain the elevated antbodies. -
ARCHIVED Mast Cell Activation Syndrome (Mcas)
bartfull replied to IrishHeart's topic in Related Issues & Disorders
Nearest decent grocery store is over 60 miles so it's about 125 mile round trip. Not impossible, but certainly not something I want to do every week on my only day off. During the winter I take Sundays off so I could go there, but during the summer I work seven days a week. Of course people have gardens in the summer and keep me supplied with yellow squash... -
ARCHIVED Was Better But Now Sicker Than Ever - Help!
bartfull replied to DonnaD55's topic in Coping with Celiac Disease
Hmm...is there anything new in her life? A new brand of hairspray or perfume? Different cosmetics of any sort? A new pet? (Pet food and cat litter can contain wheat and the dust from them is like flour dust. It gets into the air, then to the back of your throat where you swallow it.) At fourteen perhaps she is dating? If she kisses a gluten eater who has... -
ARCHIVED Mast Cell Activation Syndrome (Mcas)
bartfull replied to IrishHeart's topic in Related Issues & Disorders
I haven't taken antihistamines. I have so many reactions to drugs that I avoid them like the plague. The only drug I take is tylenol made at a compounding pharmacy. I have no insurance so I haven't seen a doctor in years, except the one at the free clinic. And my diet is very limited because I seem to be intolerant to so many things, plus I live in the... -
ARCHIVED Mast Cell Activation Syndrome (Mcas)
bartfull replied to IrishHeart's topic in Related Issues & Disorders
I have been avoiding this thread because I don't WANT this! It took years to shed my denial about celiac, even though deep down I knew I had it. But I do have a lot of the symptoms of this. I am German. I still have some gastro symptoms. I still have fatigue. I have had wheezing all my life, especially during exercise. I have bone pain. I still... -
ARCHIVED Anyone Else ?
bartfull replied to Aquadan005's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Some folks here have benefitted from seeing a nutritionist, but a lot of us have gone that route and found that we know more about celiac than they do. For instance, the one I saw help me in that she suggested I go completely organic for a while because my system was in such an uproar it was even reacting to pesticide and artificial fertilizer residue. That... -
ARCHIVED Public Schools Shrugs Celiac
bartfull replied to GFX3's topic in Parents, Friends and Loved Ones of Celiacs
Yes, peanut allergies CAN kill, but often they don't kill, but cause severe asthma-like symptoms. And other allergies can trigger asthma too. My step-son had asthma and missed a lot of school. A child with celiac will miss a lot of school if she is constantly glutened. The OP said she had "done everything she could" to insure her child would not be given... -
ARCHIVED Public Schools Shrugs Celiac
bartfull replied to GFX3's topic in Parents, Friends and Loved Ones of Celiacs
I would talk to the principal and the superintendant. I would ask them if they are as lax about peanuts as they are about gluten and point out to them that THEY made your daughter sick because of that laxness. I would get the letter from the doctor, and then ask to review everything you have already given them. Then, I would mention the word "lawyer". ... -
ARCHIVED I'm New But I'm Not New
bartfull replied to MsMarginalized's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It might help to read the Newbie 101 thread. It might be something as simple as someone dipping their knife in your butter after it has touched regular bread. Also, some foods may not have gluten ingredients but if they are processed on the same line as gluten foods, there is a chance for cross-contamination. Kraft foods and Con-gra foods (among others) are... -
ARCHIVED I Guess I Post Here, Now!
bartfull replied to Lirren's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
2 1/2 weeks isn't very long. Most folks see SOME improvement by then, but I don't know of many who see complete resolution of symptoms that early. As a matter of fact, for most of us the withdrawal symptoms last a couple of weeks. Give it more time. -
ARCHIVED Celiac Without Many Digestvie Issues?
bartfull replied to mom2allison's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
When I was a kid I accused my Mom of being a hypochondriac because she was ALWAYS complaining about different things. One day it would be a headache, the next day it was a backache, the day after that her ankles hurt. Mom was also a "nervous type". She complained about exhaustion. Every day it was SOMETHING. I thought she was just looking for attention. ...- 28 replies
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ARCHIVED gluten-free Hamburger Bun Idea- Think Outside The Bun!
bartfull replied to LauraTX's topic in Gluten-Free Recipes & Cooking Tips
I don't have a mandoline, but I have a mandolin. And I have never cut my finger on it.