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Bubba's Mom

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Latest Celiac Disease News & Research:

Everything posted by Bubba's Mom

  1. Bubba's Mom
    If you're still eating gluten, I'd say push for the tests. Knowing if you have Celiac disease, or just a gluten intollerance could make a difference in the way you approach a lot of things. The expensive gluten replacement foods aren't good for you IMO. The rice based pasta, not a big deal..and you may want a gluten-free bread, but otherwise it's more healthy...
  2. Bubba's Mom
    There are lists posted in this forum..here's an example scroll down a little try the google search at the top of this page and type in gluten in cosmetics or gluten-free toiletries, etc. I wish hey'd just list the ingredients in a way that's understandable!
  3. Bubba's Mom
    LOL..scary!
  4. Bubba's Mom
    My blood tests were negative, but an endoscope was scheduled anyway. The GI wanted to have a look because I was so sick and losing weight, etc. I was told that the blood tests can have a false negative in 20-30% of cases. When the GI did the scope my damage wasn't microscopic like some people. It was glaringly obvious that I had severe damage. I just...
  5. Bubba's Mom
    I would also add...the small intestine that is biopsied for a DX is long. The scope doesn't reach the whole thing. While it's more common to have the damage from Celiac near the duodenum where they take samples, you could have damage outside of the range of the scope. Some people get an "all clear" from negative biopsy when in fact, they do have Celiac disease...
  6. Bubba's Mom
    Yay! It's only been 2 weeks for me. I seem to get cc on the weekends when my hubby is home? Celebrate the little victories...right?
  7. Bubba's Mom
    If you were DXed as Celiac..you shouldn't eat gluten! A Dr. telling you that it was ok because you don't have severe damage to your intestines is madness. Consuming gluten will cause you harm and open the door to other auto-immune diseases.
  8. Bubba's Mom
    You've been through a lot! If you read the threads here you'll find that most of us have gone undiagnosed for quite a while. Dr.s just don't think to look for Celiac. Not much time is given to it in med school. It's still considered a rare disease by some..and those that do think of Celiac just think of the classic "failure to thrive" in babies, D, wasting...
  9. Bubba's Mom
    Heartburn, or GERD are something you'll deal with as you heal. It takes time. I know a lot of people feel great right away, but it's also normal to have it take a while before you feel better. I recommend keeping a log of what you eat, and make a note if you have any symptoms. Sometimes it helps you narrow down things that just aren't agreeing with you...
  10. Bubba's Mom

    ARCHIVED Chili Beans

    Bubba's Mom replied to GFreeMO's topic in Super Sensitive People

    I tried Bush's mild with great success. I added a bit more chilli powder because they are pretty mild. I'd consider myself pretty sensitive. I also took digestive enzymes when I ate the chili. Beans, spices, and tomatoes are a little hard to handle with a system that's not healed yet.
  11. Bubba's Mom
    I understand a lot of your feelings Suzanna. I've battled some of those demons too. If you are thinking about hurting yourself PLEASE get some help. I think you're going through more than grief about the new diet..and your other illness? It sounds like you are having quite a bout with depression.It can make you not make wise decisions. You really need...
  12. Bubba's Mom
    First..welcome! I've only tried baking bread once, and it turned out pretty good. I used the King Arthur flour recipe posted on this site. I was simmering a pot of soup as I had the dough rising so it was warm in the kitchen, and it turned out very good. Some others are having some trouble with it rising the way it should. I'm told that most of us bake...
  13. Bubba's Mom
    I agree..if it had gluten it would say egg and wheat as allergens. The only tricky gluten one is malt. That comes from barley and they don't consider that one of the main allergens that they list on products. Be very careful around those bread items at work. If you touch your mouth, nose, or eyes after handling bread it could get ya.
  14. Bubba's Mom

    ARCHIVED Panera

    Bubba's Mom replied to quincy's topic in Gluten-Free Restaurants

    I'd be terrified to eat there!
  15. Bubba's Mom
    I saw a dietician and asked this same question. She said to eat dairy if it doesn't cause problems. She said I could even take a lactaid suppliment if I wanted to drink milk or use it with cereal. She said if adding a little butter or cheese made things taste better so I'm more inclined to eat..go ahead. *Some people find they don't tolerate dairy after...
  16. Bubba's Mom
    I didn't take your warning as you being a "know it all" Irish. I took it more as "been there done that," and you wanting to give others a "heads up". Before I was DXed I had been adding various suppliments. I knew I wasn't eating much and certainly not a balanced diet. I knew something was very wrong, but my Dr. just wouldn't listen. He told me to eat Tums...
  17. Bubba's Mom
    thanks AVR. I've learned to ask the Dr. for copies of the reports of all tests. I wondered when my digestive issues turned into malabsorption and asked for copies of the blood work I had done in the past 2.5 years. The Dr. had told me everything was fine after each one, but I found several that weren't fine. Some of my levels were quite low. If he had said...
  18. Bubba's Mom
    Here's an article on Melatonin. If you scroll down you can read all of the things it can treat. Even restless leg syndrome. Open Original Shared Link
  19. Bubba's Mom
    Couldn't hurt to mention it?
  20. Bubba's Mom
    You may be absorbing it better now? A good sign you're healing! Isn't sleep wonderful?
  21. Bubba's Mom
    I've been having the gb-like pain in my upper right quadrant for months. It was one of my strongest symptoms before being DXed. I got a tingling sensation in my right shoulder blade quite often too, after eating. My Dr. said the pain and tingling in my back was most likely caused by my gb irritating a nerve that runs through that area. My issures haven't...
  22. Bubba's Mom
    These look delicious! I've never had a whoopie pie..but they sure look tempting. Once the weather turns cooler I think I'll give these a try? Thanks so much for posting your recipes(both versions) and how your experiments worked out.
  23. Bubba's Mom
    I'm wondering if temperature might anything to do with how the bread rises? The day I made it I had soup simmering on the stove. I placed the loaf of bread dough near to it on the counter. The warm temp may have made mine rise better? Also..I know from past experiences with baking cookies, sometimes I had adjust the amount of flour so they turned out right...
  24. Bubba's Mom
    Celiac disease doesn't go away. You should consume NO gluten! If you are consuming it, you've probably damaged the villi in your intestine. It's the tips of the villi that produce the enzyme needed to digest lactose. You need to stop hurting yourself like this. Eating gluten when you are Celiac opens the door to all kinds of additional illnesses.
  25. Bubba's Mom
    Some of us have negative blood work. I think it's around 20-30% of us? I was DX from the damage to my villi, like your baby. The fact that you've seen some improvement on gluten-free is encouraging. Hang in there.. (((hugs)))
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