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AVR1962

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by AVR1962

  1. AVR1962
    The holidays are hard enough and then you throw fod intolerances on top of it, I sure know what you mean! The Thanksgiving was my first holiday since being gluten-free and everything I wanted was full of stuff I could not eat, it was depressing. I drug my feet and drug my feet on making plans. Don't feel bad for venting your fustrations, it is frustratying...
  2. AVR1962
    Thanks Prickly, I have done way too much research and did everything possible, mostly on my own and with the help of you guys here to figure everything out and there is no way I am taking steps backwards at this point. My husband and I sat last night and the very first question he asked was the very question you mentioned here. In all the tests that I went...
  3. AVR1962
    I am in Gerany and I have thought many times of going to a German doc. I am sent off base for certain things and it was thru the University hospital in Heidelberg that a German doc determined I diod not have hypercalcemia which my old doc thought this was. German doc took one look at me and said I can tell you witghout running any tests that you do not have...
  4. AVR1962
    My old doc is now back from his deployment (military), and met with me today. I have been seeing a new doc for the past several months, the one that diagnosed me with celiac back in Sept. Old doc looks over everything new doc had in my records, he smurks and then he says, "No, no, no this is not an autoimmune disease. I don't know what you have, every test...
  5. AVR1962
    Have docs mentioned anything to you about possible hypercalcemia or parathyroidism? Need to get Marilyn in on this too. She also had high calcium, had the surgery. I belonged to an online support groups for people wih parathyroid disease, the symptoms are so so similiar to that of celiac. Not all were getting better after 1, 2, 3 glands were removed. I opted...
  6. AVR1962
    Doc thinks it is planters fasciitis. Had xrays today and have a referral to pediatry.
  7. AVR1962
    Do you like fruit, veggies, chips?
  8. AVR1962
    I'm also on a thyroid med. At first I thought it was that which was giving such bad headaches but it eventually passed while on the meds. My thyroid also tests fine. I have a growth which docs have been using an iodized med to try and shrink but unfortunatly after more than 6 months on the med it has done nothing so I am going in for a biopsy tomorrow. ...
  9. AVR1962
    Oh Elizabeth, you have been thru an aweful and like so many of here, without the proper medical attention. Have your calcium levels gone back down or are you still battling? The high levels put me on an emotional roller coaster, I woud want to just hide, my emotions were uncontrollable. I thought I had the early signs of menopause but all mt OBGYN stuff was...
  10. AVR1962
    Nice offer on the part of management. Good for you and good for the positive reaction of the staff. By the way, what is a flourless cake? I have not heard of this.
  11. AVR1962
    I was having a time with it before I went off glutens. Still not sure I made the connection. If I ran, my face would be red, so much so that my husband asked me if I was okay. I wasn't feeling bad. I thought maybe I was reacting to fabric softener that was on my towels at the time so would wet my face with cold water and then rather than rubbing my face I...
  12. AVR1962
    Eggs of some sort Bacon or sausage sometimes hash browns, not packaged a piece of fruit
  13. AVR1962
    Oh my word, yes. You would not want to look in my mouth!
  14. AVR1962
    I was in real bad shape there for awhile. My brain just was not functioning at all. I forgot how to run a ATM machine. I teach music and the theory I have known was gone. I could not complete a sentence without either having my words come out like I was stuttering or forget what I was saying all together. I would drive to go somewhere and forget where I was...
  15. AVR1962
    While in the frozen food section yesterday I passed bagels and wished for second that I could have one. I so used to love a sausage patty with an egg on a onion bagel with cream cheese for breakfast!
  16. AVR1962
    I like the thought that was in your head, probably would have shocked them to have the words actually come out of your mouth. They have no clue!! Yesterday morning I was cooking myself some sausage for breakfast and husband says with this pouty whine in his voice, "oh eating what I can't have." BS! He has problems with gout so he had to limit his meats...
  17. AVR1962
    Agree with Marilyn.....Tarnalberry has a great response here!! What mom hasn't used that very analogy with their kids and a wonderful way to bring it home to mom that you are doing what is best for you!!
  18. AVR1962
    Goodness, sorry to hear IrishHeart! Do take care and don't be too hard on yourself.
  19. AVR1962
    Family situaions are hard and as simple as you would think this shoudl be there seems to be a lot of denial involved. We have been told all of our lives that whole grains and wheat are good for us and I think too many times people think the gluten-free diets are just another fad that is going to come and go. If your siste is cheating on her diet, it all the...
  20. AVR1962
    Congratulations on your diagnosis and best to your new life and improved health!
  21. AVR1962
    Elizabeth, yes you can have issues that are not evident GI issues, I was one of them. Just what I have gathered from other people who have dealt with the same, conventional testing would be hard to prove this was celiac. I have been gluten-free for 8 months now and I can tell you that it was the problem. I would never have guessed it at the time. I have family...
  22. AVR1962
    I substituted a god quality cultured yogurt for milk in my baed goods and I used either shortening or a dairy free margarine and both worked fine for me.
  23. AVR1962
    I use Nature Made brand cod liver oil tabs which have no artificial colors, flavors or perservatives, no yeast, starhc or gluten. Each tab has 1250 Ius vit A, and 130 IUs vit D. I was having lots of weird vision issues for awhile, like 3 years actually, and when I finally started taking 3 tabs a day it is a matter of days and my vision issues started clearing...
  24. AVR1962
    Yes, stick with a real basic, whole diet for now to allow for healing of your system. If doc has not yet ran a test for your vit levels I would definately request that. The twitches and the pain you are having from neuropathy can be helped with the correct vits, there are various post here that specify nutrition for neuropathy. It is possible you may find...
  25. AVR1962
    Thanks ladies for the replies, gives me more thoughts when I see the doc on Friday!
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