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pricklypear1971

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Everything posted by pricklypear1971

  1. pricklypear1971
    Can you contact the lab directly for clarification?
  2. pricklypear1971
    Actually, in the US (I assume other countries, too) you can order labs directly from a lab, online. Google it for a lab company near you. LabCorp is available from online labs. No doctor required.
  3. pricklypear1971
    Interesting. But why don't gluten antibodies point to Celiac without gi symptoms???
  4. pricklypear1971
    I understand the ease, definitely. My point is that if you like red velvet, and like it the southern way ( not the red-velvet-craze-anything-red-is-red-velvet) way...it's one if the easiest cake recipes to convert to gluten-free because of the buttermilk. And, you don't have to acquire a taste for a new recipe. Mine LITERALLY tastes the same. I use a blend...
  5. pricklypear1971
    That's great news. I'm headed to the gulf coast next week...and just realized raw oysters are gluten-free. I predict an oyster rich dining experience (yeah, I know...June doesn't have an "r" in it so its not the best time, but hey..).
  6. pricklypear1971
    FYI guys, red velvet cake is one of the easiest recipes to convert to gluten-free IF you can tolerate milk. I used my old recipe, since it uses buttermilk and vinegar...subbing gluten-free flour and xanthan and there's literally no difference. I've found most gluten-free recipes don't use buttermilk or vinegar or cocoa...which to me is NOT a red velvet...
  7. pricklypear1971
    What are you on for your thyroid? Do you have Hashimitos? If your thyroid is poorly managed: your body doesn't like your med, or you are high in rt3 (and don't tolerate t4 well or at all) - thyroid could be responsible for a huge chunk if what you're describing, including your prediabetic state. Go over EVERYTHING in your life. Beauty products, medications...
  8. pricklypear1971
    The best way to shop is to learn how to read labels - to know what is a safe ingredient, what is not. https://www.celiac.com/articles/181/1/Safe-Gluten-Free-Food-List-Safe-Ingredients/Page1.html /celiac-disease/safe-gluten-free-food-list-safe-ingredients-r181/ Unfortunately, a list will be obsolete the minute you print it. In the Newbie area,...
  9. pricklypear1971
    Do you have Hashimoto's disease? What thyroid meds are you on? Have your hormones been tested? If so, which ones? Have they run any other autoimmune disease tests? Have you had allergy testing? Have you tried antihistamines?
  10. pricklypear1971
    I suggest reading: Open Original Shared Link Open Original Shared Link Since I know I have Hashis, trying to determine which symptoms belong to each problem is difficult. I can say my worst problems started after steroids for dh. Those included racing heart/pulse, anxiety, flight/fight urges, weight gain (water), racing thoughts, glucose instability...
  11. pricklypear1971
    Tabasco.
  12. pricklypear1971
    If you are cooking gluten for your family, and have it in the house..,inevitably you're going to get a hit. The nerve pain may or may not be gluten...but you'll never know since gluten is in your house - especially if you're playing with it. At 6 weeks gluten-free it is impossible to predict how your body reacts to a glutening. Oops, just rerread - you...
  13. pricklypear1971
    Many of us go into an exhaustion phase after going gluten-free. The whole dx of celiac is pretty shocking, the adjustment can be stressful (despite the rewards)... Have you had vitamin/ mineral levels checked: iron, d, b's? Have you been screened for other AI diseases like Hashimoto's thyroiditis? For some reason, going gluten-free seems to resemble...
  14. pricklypear1971
    There are online labs where you can order complete celiac blood panels...and anything else you want. I'm in the US...don't know where you're at.
  15. pricklypear1971
    The refusal to take a vitamin, etc. is normal, I think. Even refusing to talk can be normal. My bet is she feels out of control given the dx and its changes and like a toddler...is choosing to control those few things that are within her control. When we were testing my son for Celiac he did the same things - would withdraw, cling, refuse to eat things...
  16. pricklypear1971
    Be careful with all alcohol. No one knows why, but it seems to be much more effective once you go gluten-free. I will not reiterate my wine tasting story - it's here somewhere...but be assured, alcohol can be a different animal once you are gluten-free. A little bit goes a long, long way.
  17. pricklypear1971
    More like "incomplete information" than depends, IMO. There are numerous studies in various aspects of celiac disease...but the more you read the more you realize most of the studies have skewed participant bases (because they're based on Celiacs who were primarily dxed based presenting with outdated criteria like "must have D", etc.". Then, you look at...
  18. pricklypear1971
    Yes, thanks to AI and massive steroids for dh. Going gluten-free helps, of course.... I take 5 mg dhea (1 am) and was taking ADR formula by Pure Encapsulations (2 in am, 1 pm). Plus, regular supplements like iron, d, selenium (thyroid), and multivitamin. I have found that I have a rt3 problem - my body does not convert the t4 in my thyroid med...and...
  19. pricklypear1971
    When I started working out, I discovered I had to have a carb for breakfast (with protein) - butnot bread. I started making "pancakes" out of leftover mashed potatoes and sliced, cooked sweet potatoes. I just smoosh them between my palms and pan fry. I also wilt spinach and eat it with a fried egg. Any vegetable leftover is fair game at my house. And...
  20. pricklypear1971
    Or someone that doesn't have obvious reactions and can't tell they've gotten into gluten. In the beginning I couldn't....took a while to figure it out. But I did know how to recognize a risky situation if I saw it (like Subway). Kitchens where I can't see what's happening require a leap of faith.
  21. pricklypear1971
    What yours experiencing is quite normal for someone who has a gluten problem, and goes on/off gluten. Unfortunately, once someone goes off...the body gets happy about gluten-free quite quickly, and protests quite loudly when it is added back. I suggest digestive enzymes with meals - like Enzymedica Digest Gold and probiotics. Check all supplements for gluten...
  22. pricklypear1971
    I'm sorry, I didn't meanto imply you said it was a lesser dx...i wrote that in reference to what NCGI has a reputation for. What you did say that was you think you are NCGI because you don't have GI symptoms - and my point is that lack of gi symptoms is not a diagnostic tool. I noticed you mentioned you have other AI conditions - which would actually tip...
  23. pricklypear1971
    It took 9 months for me to reach some level of predictability. 18 to feel stable. You'll get there. Don't assume you're doing anything wrong... It does take time.
  24. pricklypear1971
    Remove all possible offenders for a few weeks. Add each one back one at a time. Watch what happens.
  25. pricklypear1971
    "So, I don't think I have celiac but rather a gluten sensitivity, since I don't have to many GI problems." How you perceive your GI tract as functioning has no diagnostic bearing on if you have Celiac Disease, or not. I'm not saying you aren't sensitive to gluten, quite the opposite actually, since you feel better off it. What I am saying is you can...
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