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pricklypear1971

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Everything posted by pricklypear1971

  1. pricklypear1971
    I am so right there with you. I have been gluten-free for about 2 months. At first I gelt great (after the first week of raging ups and downs), except my rash (probably DH) isn't gone. I think I got glutened last week and it's been up and down every day. I slept for 12 hours (of course, I was sleeping 5 during gluteningand antibiotic reaction) last night...
  2. pricklypear1971
    Ice packs stop my itching temporarily. I walk around with them tucked under my arms. Yes, my DH is under my pits. I also use a cromolyn cream I make using a recipe on the chronic urticaria site. Google it, easily made without an RX. Burns a bit but then it goes numb, thank goodness. I take lengthy lukewarm showers to soften the "scab" then gently rub...
  3. pricklypear1971
    Depends on your tolerance, I guess. I walked through a bakery the other day without anything happening, but that's me. Just try to stay out of that area and do other things. Or show up late??? You're going to have to go, you know that...if not now then eventually. I also understand the weird vibe - it was kind of like that with my inlaws, but...
  4. pricklypear1971
    Yes, I have memory issues, dizziness, inability to comcentrate, sore joints AND SHAKY HANDS from gluten. I have virtually zero stomach issues. Apparently I also have DH.... My liver and adrenal system are a bit confused, especially after 2 shots of corticosteroids, prednisone, etc. For the "hives" (DH). I'd never try steroids, they'd probably send...
  5. pricklypear1971
    Get the mixed grill, specify gluten free. You can eat the salad, no croutons. I've had it and it was fine. And good.
  6. pricklypear1971
    I don't think there's one "look" to it. Have you had bloodwork done to suggest Hashimotos, other thyroid problems, celiac, etc? If any of those are positive I'd definitely suggest a biopsy. Or, if your dermatologist will biopsy now, DO IT. Then stop eating gluten and see what happens.
  7. pricklypear1971
    I guess I'm lucky because mine lasted a week. I was pretty much a raging lunatic, though. Dangerous because my brain was working again for the first time in forever.... I was obsessed for about 6 weeks with trying every gluten-free processed food. Got over that when I glutened myself.
  8. pricklypear1971
    Go to the about.com boards, thyroid section. Lots of info there. Also, get one of Mary Shomon's books.
  9. pricklypear1971
    I am on combo t3/t4. I have used synthetic and natural and respond to both. Its really something you have to try, I think. Some people don't feel well without both, others don't notice, and some react negatively. I always insisted ont t3/t4. I will be going off thyroid usp to synthetic combo soon. My dr. Did increase one hormone but not the other to achieve...
  10. pricklypear1971
    Dermagraphism I don't know about...but do know about Hashi's, chronic hives, and Dermatitis Herpetiformis. Specifically, being diagnosed with chronic autoimmune hives and it really being DH. My DH (biopsy pending) was masked by corticosteroid injections, pills, and cream. Once those were removed my DH starting liking and acting "normal". Before they looked...
  11. pricklypear1971
    Frogrun, I would gracefully inform the bride that YOU will handle this and tell her you will arrange a special meal for yourself. Make it easy and graceful and I'm sure she'll appreciate your honesty and willingness to take it off her shoulders.
  12. pricklypear1971
    Well, this is rather interesting since I'm one of those baking and cooking madwomen. However, my ex sister-in-law was dairy intolerant and I (and my mother) tried to accommodate her and she was quite grateful. We just tried to be honest about the ingredients and she would suggest alterations or she just wouldn't eat that particular thing. All in all, it...
  13. pricklypear1971
    I am diagnosed with Hashimotos, working on Celiac diagnosis and DH. I also recently developed TMJ. TMJ is "inflammation", which is caused by celiac. Try TMJ massage/adjustment. Don't try surgery! I understand exactly what you mean. I had a melt down last night over "falling apart". I just remind myself it could be worse and then try to pick myself...
  14. pricklypear1971
    I've read one of the symptoms is vertigo (which I started getting). Some people have more neurological and systemic issues than others. A nasty virus can trigger ear problems...you'll probably never know.
  15. pricklypear1971
    Sorry to hear you have it down there Schelbo. My suspected DH (supposed to have it biopsied but doubting my strength to purposely gluten myself) is under my arms - so my lymph glands swell, i get pit b/o when the scans form, I can't wear a bra without aggravating it and causing pain...and since I'm a D cup that limits my life quite a bit during flares. ...
  16. pricklypear1971
    I am Hashis and probably Celiac (undergoing testing). My doctors (the GOOD ones) look for a tsh in the 1's -or- whatever makes you feel good. That said, it's hard to judge "good" when you've been miserable! Get the Hashi antibody test, and test frequently to see if your tsh levels change, and if you hit a recovery wall insist on trying supplementation...
  17. pricklypear1971
    I use Vanicream and a layer of Vaseline over it. My healing sores dry out terribly and it's all I have found that does the trick, and I still have to put 3+ layers every day. It grosses me out because I am an all-natural girl but can't find anything else that doesn't make me sting or burn. FYI - I was put on antibiotics because my rash was so inflamed...
  18. pricklypear1971
    I began treatment for a rash (probably DH, biopsy soon) with a dermatologist. First thing he gave me was a rx for a mild topical corticosteroid. Then the rash spread, and he have me a shot of Kenalog. Made me high as a kite, no remission. Then he gave me prednisone, and rash remitted (and I lost my mind). Got off prednisone, rash came back. Second shot of...
  19. pricklypear1971
    I found these recipes the other day, and the siopao uses non-gluten rice flour. If you read the comments, some people go round and round with it but many have success. Open Original Shared Link And this one: Open Original Shared Link Most dishes are made as usual, if you can find the gluten-free ingredients mentioned above.
  20. pricklypear1971
    I just bought some of the Sweet Chili Riceworks chips at Costco. I ate a bowl-full and within 30 minutes my suspected DH started boiling up. I know have a giant, itching, burning rash under both arms. Again. I'm thrilled. I don't know if its gluten but whatever it is will keep me away.
  21. pricklypear1971
    Interesting question. I started gluten-free about two months ago. Since I'm the cook in the household our gluten containing food is almost nil. I keep a few things for my son (age 9) and husband. My son is semi-tolerant of the gluten-free idea. Most foods he likes the taste of... but he does ask me constantly why I am so worried about gluten - usually...
  22. pricklypear1971
    From my perspective you have the best and clearest diagnosis available from an MD without undergoing an additional biopsy. Your disease may be early; therefore the damage to your intestines are patchy or just not there, or they didn't take enough samples. You have the positive bloodwork, you feel better without eating gluten. Be happy they DIDN'T find...
  23. pricklypear1971
    I am Hashis, and probably Celiac. Hashis treatment (synthetic and natural thyroid) fixed a lot of my problems. Temporarily. Five years later I hit rock bottom and got this nasty little rash.... My NP suggested a gluten fasting trial...SHE is Celiac and doubted I was Celiac! Well, the trial worked - got rid of the rest of my "Hashis symptoms", except...
  24. pricklypear1971
    I use a homemade cream I found on the Chronic Urticaria website:Open Original Shared Link I have not been diagnosed with DH - appt. is Sep. 8; however, I have had my rash for apx. 2 years now. I use the cream and while it isn't perfect, its better than anything else most days. I did discover that plain old Vaseline is the best thing for my rash after...
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