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pricklypear1971

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Everything posted by pricklypear1971

  1. pricklypear1971
    Non Celiac Gluten Intolerance.
  2. pricklypear1971
    Ok. So I called my local store and told them I wanted a gluten-free pizza. He said ok. I asked about gluten-free toppings and he didn't know and asked me to hold for the cook. I asked the cook about the gluten-free toppings. He said he thought they were all gluten-free. I said I needed to know for sure. So he grabbed his list of gluten-free toppings...
  3. pricklypear1971
    Hmmm...I edited it and it seems to work. It isn't my blog post - its one I found while reading NFCA Twitter feed. I haven't looked at Domino's FB today but they were deleting huge chunks of posts overnight (Monday to Tuesday). When I last looked Monday there were 700+ posts and there were 100+ Tuesday. The posts left were a mix of positive/negative and...
  4. pricklypear1971
    If you are seeing a Celiac specialist he should know the nuances of dh. Testing may be problematic if you are gluten-free because even dh testing depends on finding IgA antibodies-which fall even while dh remains active when you are on a gluten-free diet. You may get lucky and be dxed based on visual inspection and symptoms and history. It's worth a...
  5. pricklypear1971
    I found this Open Original Shared Link This is better - Open Original Shared Link I really don't have any other advice, other than try to talk about this with your supervisor, and bring succinct medically relevant documentation and studies.
  6. pricklypear1971
    Get the band - find out what you need to do to get it. You won't really know if the food is safe til you see what they do and talk to them.
  7. pricklypear1971
    I'm absolutely thrilled Domino's is being honest. I don't see the point in doing what they are doing, the way they are doing it -except to cash in on the gluten-free "diet" trend. But I'm very glad they are being honest (they'd have to be, eventually, when people publicly slammed them for glutening them, so yes it was better to be honest). I do hope...
  8. pricklypear1971
    The Amber designation by NFCA does have a use after seeing what /who they give it to (Domino's bs attempt at gluten-free). It helps me identify where I WON'T eat. So yes, please, restaurants go out and get certified so I know NOT to eat there. Do they have an Amber list? I want it! I can enter them into my map bookmarks under "do not eat there...
  9. pricklypear1971
    my conversation 10 minutes ago with my Dad, overctge phone. ****** Dad: "Welll, your mom got an X-ray and she has pneumonia. They gave her an antibiotic shot". Me: "I'm glad you have a bathroom in the RV". Dad "Oh, that already hit with the first pill they have her". Me: "oh". Dad: "You get that too? You didn't get THAT from me. I don...
  10. pricklypear1971
    Oh no, poor guy. You may contact those centers and see if there's more research available. Yeah, it's amazing what you start learning about people who aren't "sick", right? Just wait....it will getter interesting.
  11. pricklypear1971
  12. pricklypear1971
    Well, Celiac and Lupus are both autoimmune diseases. Some Lupus patients have Celiac, vice versa. Some AI patients respond to a gluten-free diet without being Celiac. Perhaps they are NCGI - who knows? Perhaps it helps because it reduces inflammation. At any rate, if you have the prototypical Lupus rash I would suggest testing. If gluten-free helps...
  13. pricklypear1971
    Did they ever test you for Lupus?
  14. pricklypear1971
    Excellent. I thought that was in his checked list but I don't see it.
  15. pricklypear1971
    Hey Dani - I'm sorry to hear about the DX for your husband. Check out these fact sheets, they may answer your questions. Open Original Shared Link Open Original Shared Link If you lived in the southern U.S. any child of yall's would be called a budding writer , terribly interesting....and a must-have for any dinner party.
  16. pricklypear1971
    Autoimmune. I'm very AI. effin' crap.
  17. pricklypear1971
    Soooo.... I'm almost at the 1 year mark. I haven't really notified family.... I kind of went through an angry phase??? I sort of hated everyone around Christmas...happened again at Easter (and Easter is my favorite holiday). Anyway... I'm working on it. Soooooooo..... I finally feel like I'm at a place where I can write my story, contact people...
  18. pricklypear1971
    Sorry. Water, digestive enzymes and probiotics. Maybe a Neti pot for the sinuses??
  19. pricklypear1971
    " 'effed up" works for me.
  20. pricklypear1971
    Lol, yeah. Familial denial. Been there. Am there. We've all been there. And yes, there's a thyroid and diabetes and gallbladder link. I suggest not worrying about them - just worry about the kids, you, and hubs. Quite frankly you can't make them do anything, all you can do is give them info and let them make choices. If one of them gets sick enough...
  21. pricklypear1971
    I haven't eaten it but I would. The gluten-free oats in the starter are probably no different than the gluten-free oats you are fine with. Both are tested. I'm sure those gluten-free oats you eat are around the same ppm. I understand you're anxious. But I think they are safe.
  22. pricklypear1971
    You could do serology now, scope after the baby comes. You may choose to stop at serology - who knows. Ask your ped what s/he would give as a dx if tests come up inconclusive, there was a positive gluten-free trial/challenge but you or hubs were sero positive (no scope). You might be surprised. You are correct you'll end up gluten light. It just...
  23. pricklypear1971
    You have the option of requesting a Celiac biopsy to confirm. You also have the option of a gluten-free trial to see if there is improvement. I would also get copies of all tests and read them. Check to ensure all Celiac blood work was performed. Many times just one test is run, when in fact testing consists of a number of tests.
  24. pricklypear1971
    Tell him gluten can affect neurological functioning - making you kinda stupid and stubborn. The longer you're on it the dumber you get, and sometimes you just can't reverse it...and all that's left us a pile of dumb-ass that didn't listen to his sister, whimpering on the floor. Okay, I said it and if he isn't too far gone he'll see it when he googles...
  25. pricklypear1971
    What country do you live in? Celiac disease is a lifelong condition. You don't "get over it". Your doctor was woefully uninformed and has done you a great disservice. It used to be thought Celiac was a temporary childhood disease, but they've known for years that it isn't. You need to be gluten free for the rest of your life. It is probable that...
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