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pricklypear1971

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Everything posted by pricklypear1971

  1. pricklypear1971
    Treat wheat straw the same way you'd treat a decorative piece of wheat from a craft store. I've hauled too much hay, handled too much straw, fed too much alfalfa in my life...and I can tell you the process of harvesting and baling is less than exact. There will be wheat grain and dust in wheat straw, some more than others. Wheat straw is the "leftovers...
  2. pricklypear1971
    The other thing to consider (and I'm not saying inhalation didn't get you) is that the airborne product "settles" on surfaces and you get it on your body, food prep areas, etc. which eventually works into your mouth. That happened to me with buildings materials during a home reconstruction. I took my food to the house, ate it in the house....I guess I...
  3. pricklypear1971
    Your diet wouldn't have had to change for it to be a salicylate, amine/histamine, etc. reaction. It would be a new intolerance, so to speak. And no, I don't have experience with Crohn's /UC. They do advise a low residue diet for Crohns-perhaps try those foods?
  4. pricklypear1971
    Go get her medical record, pronto. Read them. It may just be a simple case of misunderstanding (perhaps the nurse read the part that says she was screened for Celiac and assumed it was positive). Who knows. Get her records.
  5. pricklypear1971
    Hoooo yeah. I chalked it up to my adrenals going nuts (which I thought was from the steroids)...
  6. pricklypear1971
    Yay! And isn't that recipe wonderful?
  7. pricklypear1971
    I understand your hesitation. All I can say is that the best defense is a good offense - and the more you know about the parents' Celiac status the easier it is to build a case for kids. If one of you come up positive on serological testing, and your son doesn't, a doctor will be more likely to take Celiac seriously. Ditto for the baby you're expecting...
  8. pricklypear1971
    I highly suggest testing the entire family before going gluten-free. You may find unexpected reactions going gluten-free that prompts you to want testing - and if you've gone gluten-free you can't be accurately tested. Do it now, then go gluten-free. A gluten-free lifestyle won't hurt anyone. You may need to supplament b's if you don't eat gluten products...
  9. pricklypear1971
    I don't know how to do the huggy things but here's a big hug. Go ahead and mourn it. We all do. Also, your ped has a point... in young children they are less likely to be positive on blood work. So, a scope may be the best way to get a definitive answer. Ultimately, a gluten-free trial is the best way to know. And I hate to bring this up now......
  10. pricklypear1971
    Before you let them write you off on Celiac, and before you go gluten-free get ALL of these tests you haven't already had: Open Original Shared Link Plus the vitamin levels, plus the tpo. And get the rash biopsied.
  11. pricklypear1971
    You may be having an issue with the fat part of the equation if skim products work for you. If you have a problem with the oils - olive, coconut, etc. that's what I'd consider. That may be a temporary healing phase or something else. Only time will tell.
  12. pricklypear1971
    Well, in my opinion the only reason to scope is to get a dx. Will the doctor put it in writing without the scope???? You'll need that "proof" somewhere down the line, more than likely - for both kids (if indeed they both have an issue). The other reason for a scope, actually, would be if one or both of them doesn't improve on the gluten-free diet....
  13. pricklypear1971
    If you go through the salmonella, sibo testing and are clear I'd look at the more difficult things like food groups - sals, histamines, amines, lectins. They are tricky to figure out but can be super problematic. From what I've read by posters here they can be as bad or worse to deal with than gluten. I have a few other food issues - preservatives, colors...
  14. pricklypear1971
    You need that Hashis test if your tsh was high. You need more b's run. You need a full iron panel. Remind me what they tested for Celiac? Was it just one or two tests or the full panels?
  15. pricklypear1971
    More than likely you've developed a new food intolerance. It is quite common with Celiacs. I'd start keeping a food diary - what, when, where - key in on dairy, soy, corn - those seem to be the most common. Could also be a group of foods like salicylates, amines, lectins... Or, you're inadvertently getting gluten or got glutened and are recovering...
  16. pricklypear1971
    Did they run an iron panel on you? Not just ferritin but iron stores, full panel? If not, request it. Along with ALL b's and calcium and k.
  17. pricklypear1971
    Did they test you for Hashimotos Thyroid? It's called a TPO Ab blood test. And by low - they mean low performance as in your tsh was high or did they mean over performance as in your tsh was low? high tsh=hypothyroid low tsh = hyperthyroid
  18. pricklypear1971
    If damage is really bad it can be seen without a microscope; however, just because he didn't see it doesn't mean it isn't there and won't be found with the microscope. Technically, they are looking for microscopic damage. Of you are a DH celiac your best bet is a skin biopsy. Typically intestinal damage is less in DH patients - the damage is on your skin...
  19. pricklypear1971
    I'm sorry. I know the deflated feeling. I had it when a few of my son's tests came back "off". Not the Celiac tests but the vitamin levels and his DNA was +. We are in the "retest" mode - holding our breath til next testing. It is a punch in the gut - thinking of the gluten-free challenges ahead for a child. There is some new criteria for dx'ing celiac...
  20. pricklypear1971
    You have a skin rash, right? Have you been able to get it biopsied?
  21. pricklypear1971
    I hope you were able to punch him in the stomach and blame it on the anesthesia.
  22. pricklypear1971
    This is a long thread but if you aren't allergic to nuts try Elana's Pantry www.elanaspantry.com. Grain free, milk free recipes galore. And they're good. And low sugar. And yes, if they are biopsying you for Celiac you need to still be eating gluten.
  23. pricklypear1971
    You might try ghee. It depends on your problem with milk - but there's ghee out there that's certified casein and lactose free. You can make your own, too.
  24. pricklypear1971
    FYI it took me closer to 9 months to have neuro stuff really settle. And that was after supplementing, retesting, then upping supplaments again. And when I got glutened last week - I got stomach cramps, acid, and weird muscle cramps and the twitch in my eye came back - but this time in my cheek. So, give it time and if you get glutened it won't set...
  25. pricklypear1971
    I can't imagine anyone who seriously has an issue with gluten or wheat (allergy) trying it. Perhaps if you are gluten light OR if you happen to have a chain that lets you go in and supervise the assembly/baking and tell them how to do it? I love reading the news reports about this - particularly the phrase "mild gluten allergy". WTF is THAT???
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