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Latest Celiac Disease News & Research:
Everything posted by pricklypear1971
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Oh no. Ice packs, Vanicream (I know it's gluten-free, check for corn) and Vaseline. Try to wear a bra as little as possible. Use a mild deoderant - nothing with scents or strong ingredients. It burned mine. Try to wipe it down with wet clothes a few times a day. You will notice more bo, but that's normal because of the skin and scab accumulation...
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If you can do nuts I highly reco an Elana's Pantry recipe. There's a triple chocolate chip recipe that's un-freaking-believable and is milk free. And isn't there a way to move to a different cube??? Ack!
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ARCHIVED Upset, Confused, Venting, Scared & Frustrated
pricklypear1971 replied to squirmingitch's topic in Dermatitis Herpetiformis
I can't make sense of DH at all, honestly. There are iodine and sals in everything. Well, at least almost everything. Some people are more sensitive than others - I don't know why. I'm not sure exactly HOW the iodine interacts with iga - I've heard it described as an activator and necessary, but perhaps it's better descrIbed as an exacerbate? https... -
ARCHIVED How Often Do You Eat Out?
pricklypear1971 replied to smsm's topic in Gluten-Free Restaurants
I eat out about once per week. Sometimes more, but I try not to. I go to high end restaurants that others have told me do gluten-free or publish a gluten-free menu/statement. I also have tried BJ's, Pei Wei, etc. and been fine. I did have one horrid glutening experience, I think - a local place that had a gluten-free menu but I'd read reviews they... -
ARCHIVED Dh And Sores On Gums
pricklypear1971 replied to dani nero's topic in Dermatitis Herpetiformis
What would we do if we could watch our intestines? Hate to find out! -
ARCHIVED Dh And Sores On Gums
pricklypear1971 replied to dani nero's topic in Dermatitis Herpetiformis
I got so obsessed with tracking my underarm rash I drew dots around the perimeter with a sharpie to track its growth. -
ARCHIVED Dh And Sores On Gums
pricklypear1971 replied to dani nero's topic in Dermatitis Herpetiformis
Well, at least you have somewhere to start. You can develop allergies to meds at any time, same with foods. When you go gluten-free your body starts resetting, healing - for lack of better terms. The first 6 months are really a free-for-all. Anything can and will (apparently) happen. The good new is sals are cumulative. Bad news is sals are... -
ARCHIVED The Great Gnocchi Debacle Of 2012
pricklypear1971 replied to lpellegr's topic in Gluten-Free Recipes & Cooking Tips
And another: Open Original Shared Link -
ARCHIVED The Great Gnocchi Debacle Of 2012
pricklypear1971 replied to lpellegr's topic in Gluten-Free Recipes & Cooking Tips
Here it is. Open Original Shared Link -
ARCHIVED Lots Of Labwork No Clue Where To Start.
pricklypear1971 replied to MaggieB's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It means you have the most common genes associated with Celiac disease, and your blood work indicates egg and milk allergies. It does not mean you HAVE Celiac. It means you have about a 30% chance. But if you have a full copy of both 2 and 8 your risk goes up. Im not great with the genes, hopefully Skylark will chime in with more details. -
ARCHIVED Sensitive To Gluten And Milk, With Mostly Psychiatric Symptoms
pricklypear1971 replied to gliadin-raider's topic in Coping with Celiac Disease
Regarding your stomach issues: You could be going through withdrawal. You could not be eating a balanced diet with enough fiber - its hard to change your eating habits quickly, but you'll get there. You could be uncovering other food issues now that you've eliminated two biggies - it happens all the time. It can just be a part of healing - most of us... -
ARCHIVED Sugar And Weight Gain
pricklypear1971 replied to Victoria6102's topic in Coping with Celiac Disease
Can you sub in lower glycemic sweeteners like honey, date sugar, stevia, fruits etc. and still fulfill your craving? You may try weaning yourself off. Have you monitored your blood glucose? -
ARCHIVED Dh And Sores On Gums
pricklypear1971 replied to dani nero's topic in Dermatitis Herpetiformis
You might want to read about salicylates. I was looking at this for someone else and saw gum rash and nasal polyps. Open Original Shared Link -
ARCHIVED The Great Gnocchi Debacle Of 2012
pricklypear1971 replied to lpellegr's topic in Gluten-Free Recipes & Cooking Tips
Here's a recipe I found for gnocchi - been meaning to try it. Don't know if it will help or not. Open Original Shared Link I have a bookmark somewhere for a blogger who went round and round with it and finally came up with something. I specifically remember the "dissolving" part. If I find it I'll post it. -
ARCHIVED Upset, Confused, Venting, Scared & Frustrated
pricklypear1971 replied to squirmingitch's topic in Dermatitis Herpetiformis
This is a product website, and while not scientific, does sum it up pretty well. Open Original Shared Link Here's info about symptoms: Open Original Shared Link Here's a list of how to cope: Open Original Shared Link I read about Sals in relation to aggravating conditions or being "a mysterious cause". It's one of the things I considered was causing... -
ARCHIVED Upset, Confused, Venting, Scared & Frustrated
pricklypear1971 replied to squirmingitch's topic in Dermatitis Herpetiformis
Read this about coconut oil: Open Original Shared Link I know it is stressful and upsetting to see new sores form. I think iodine accumulates, btw. It took me a week to break out from the multivitamin. You know, something to consider is salicylates: coconut is VERY high in sals, and I had a slight problem with it in the beginning. I seem to be ok now... -
ARCHIVED Epic Story - Any Advice Appreciated
pricklypear1971 replied to kmccormick61583's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Nuts, meats, legumes, vegetables. Stay away from anything high in sugar without cutting it with a protein/fat. -
ARCHIVED Had A Chef Ask Me
pricklypear1971 replied to JoyfulGF's topic in Gluten-Free Recipes & Cooking Tips
He may be talking about the vaccination trials in Australia. The approach is to desensitize people the way you get desensitized to allergies - shots. It is supposed to be DNA dependent. So of you aren't dq2, it won't work - at least the first vaccine won't. I'm half dq2, half dq8. I have no idea if it would work on a freak like me . -
ARCHIVED Twitches While Trying To Sleep
pricklypear1971 replied to gem75's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Gluten does different things to different people. If you see a correlation, then it's probably there. It's potent stuff. -
ARCHIVED Had A Chef Ask Me
pricklypear1971 replied to JoyfulGF's topic in Gluten-Free Recipes & Cooking Tips
I would guess "cook" would be a better description. -
ARCHIVED What Are Some Kid-Friendly Substitutes For
pricklypear1971 replied to Blessedby3's topic in Parents, Friends and Loved Ones of Celiacs
This isn't a grated cheese, but a sauce. I haven't tried it but I may. Open Original Shared Link -
ARCHIVED Celiacs, Infections, Crazy Blood Sugar
pricklypear1971 replied to Jortyle's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Have you considered that maybe you're hypoglycemic?? 62 is getting down there.... I've found my body doesn't like to swing more than 15 points. I've read that diabetics with wide sugar ranges have more difficulties - perhaps this applies to non diabetics too? At least you recognize a pattern and your doctors aren't screaming at you about diabetes.... -
ARCHIVED A Question For The Neuro Folk - Women
pricklypear1971 replied to Kamma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'd look into adrenal issues, and also keep a food diary to try to find out if something triggers the vertigo in general. I was getting vertigo episodes before gluten-free - they have stopped now...it's possible there's something else triggering it. Even environmental allergies (I get headaches and ear fluid when allergens are high, but nothing like they... -
ARCHIVED Diagnosing Food Intolerances
pricklypear1971 replied to cavernio's topic in Food Intolerance & Leaky Gut
Yep. It's hard to figure out. I never would have guessed gluten caused my rash because it was never obvious - I never ate a piece of bread and noticed my rash flare. Someone had to tell me to drop gluten based on my ai history. I think the most common way to figure out an intolerance is to do an elimination diet - a month or so without a food, and see... -
ARCHIVED A Question For The Neuro Folk - Women
pricklypear1971 replied to Kamma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Would make sense since some believe that all ai stems from the same root. I don't know ai is the cause or effect but when I help my hormonal and endocrine system (progesterone, DHA) I see rapid and obvious improvements. Exercise helps me tremendously. That may be the sugar factor for me, or it may be because exercise helps stabilize hormones, or...