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Latest Celiac Disease News & Research:
Everything posted by pricklypear1971
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ARCHIVED The "I'm Not So Happy Today"- Topic
pricklypear1971 replied to Ellie84's topic in Introduce Yourself / Share Stuff
I don't know the laws in Canada but is public embarrassment an option? YouTube? And if you get them on video (with audio) I think it will be hard for even a friendly police force to ignore it. Especially if you go for their throat, too. Have you consulted an attorney? Do you have Homeowner's Associations there? I think they are the devil, but... -
ARCHIVED Heavy Duty Standing Mixer
pricklypear1971 replied to Blessedby3's topic in Gluten-Free Recipes & Cooking Tips
I have one, a gift from a friend (she caters, hated it because its loud). I love the power but hate the weight. I do need to buy two additional bowls now that I do gluten-free, because there's lots of whipping of eggs and mixing of batter and that makes lots of shuffling and bowl washing. I don't have any attachments...I'm not a gadget girl. Have... -
ARCHIVED Last Time I Will Ask, Any Reasons For High Ttg
pricklypear1971 replied to StephanieL's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I know you are. You're doing a great job. Give it a break for a few days, see what else comes up, Do you have an appt. to go over the results with the doc, to see what s/he is thinking? I'd still get the thyroid antibody test. I have a feeling you need it. -
ARCHIVED The "I'm Not So Happy Today"- Topic
pricklypear1971 replied to Ellie84's topic in Introduce Yourself / Share Stuff
I probably CAN imagine. Our neighborhood has very close houses. I can hear my neighbors open their garage door. One neighbor did have a party around new years - and quite frankly it was out of character for her - I wondered if she was even home since she had lots of visitors around that time. A house sitter? Anyway, it was LOUD in our house. Have another... -
ARCHIVED The "I'm Not So Happy Today"- Topic
pricklypear1971 replied to Ellie84's topic in Introduce Yourself / Share Stuff
So, to turn the topic off nasty neighbors and onto myself... Hubs came down with a bug (got to love airplane travel)...and didn't realize it til we'd gotten quite cozy. So, my cold symptoms are mild but my stupid stomach feels like there's a rock in it. He's eating everything in sight and I want to hurl. I'm so unimpressed. -
ARCHIVED The "I'm Not So Happy Today"- Topic
pricklypear1971 replied to Ellie84's topic in Introduce Yourself / Share Stuff
Oh my goodness. I'd definitely get a camera system. -
ARCHIVED Not Sure If I Have Celiac Or Gluten Sensitivity
pricklypear1971 replied to Meggielynn13's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Well, Celiac (or Celiac eating gluten) can stress your liver and I believe there is "autoimmune liver diease". Open Original Shared Link I bring up the autoimmune liver disease because if you have one autoimmune disease you are likely to develop another, unfortunately. I'm sure going gluten-free won't hurt your liver, and it may help. Open Original... -
ARCHIVED Well.. Thyroid Test Is Fine.
pricklypear1971 replied to BrittLoves2Run's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Well, I'm very happy you have an idea what is going on! Are you going to get an endoscopy? Remember, you must stay in gluten til its over. Btw, ask for thyroid antibody and vitamin panels: full iron/ferritin, b's, d, k, calcium, magnesium. You are likely low one one or more and want to get ahead of it. -
ARCHIVED Well.. Thyroid Test Is Fine.
pricklypear1971 replied to BrittLoves2Run's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I don't know. I know my genetic Celiac test took a long time. My son's panel took a little over a week. I'd talk to your doctor about your tests and ask for thyroid antibody tests. If he refuses, find a new dic if you think its the issue or want to pursue it. Some docs would be suspicious at your levels especially with symptoms. -
ARCHIVED Would You Get Rid Of...
pricklypear1971 replied to Irishgirl76's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Wow, never thought of the knife block. I didn't replace mine and so far no problems. I am curious now. I may turn it upside down and see what comes out. Kinda scary. I'd try washing the stainless steel colander with barkeeper's friend. I specifically bought stainless steel ones with big holes to replace my old ones so that I could clean them if necessary... -
ARCHIVED Last Time I Will Ask, Any Reasons For High Ttg
pricklypear1971 replied to StephanieL's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I don't know what's up with retesting tsh. Seriously. This is the second time I've seen it retested here, both times in young people. I really have no idea. I did find this paper: Open Original Shared Link Did they run a TPO? -
ARCHIVED Dermatologist - Dh Biopsy Strategy?
pricklypear1971 replied to Metoo's topic in Dermatitis Herpetiformis
Ask around for a derm if there's a local Celiac group. And don't gluten yourself on purpose. My derm is willing to do a biopsy now, but even he told me not to do it on purpose. He saw how hard it was to control and has other Celiac patients. Unfortunately he didnt recognize my rash as DH in the beginning. I do admit it looked VERY different earlier... -
ARCHIVED Curious About An Odd Symptom
pricklypear1971 replied to Kamma's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
No, mine was a shaky, bottom-out feeling immediately when my blood sugar was too high or low. Like I was crashing fast and had to get food in there. I was hungry every 2 hours, had to eat protein and slow carbs (turkey and an apple for example). Fiber helped a lot. Cuban black beans cooked with a zillion veggies over rice was the perfect food. For some... -
ARCHIVED Well.. Thyroid Test Is Fine.
pricklypear1971 replied to BrittLoves2Run's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Nora, are you in the UK? Are the ranges different there? Do they treat to achieve different optimal levels? Some labs in the US still report tsh .5-5.5 normal. Others up to 3 is normal. Progressive doctors will want a hypo patient close to 1, but everyone is different. What is very common is that a doc goes by the lab range and won't treat you unless... -
ARCHIVED Curious About An Odd Symptom
pricklypear1971 replied to Kamma's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Well, adrenal healing takes a while. Don't be shocked if you take 2 steps forward, one back. Keep it clean (food, liquids), try not to eat too much sugar. I went through a hypoglycemic phase of healing. After that, I haven't had the adrenal issues I had previously when glutened. Maybe my body was adjusting. -
ARCHIVED Well.. Thyroid Test Is Fine.
pricklypear1971 replied to BrittLoves2Run's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Get copies of the results. Tsh levels are controversial. Better docs want them around 3, but some labs will report them as "normal" at 5. You have to get a copy to see if your lab reports at 3 or 5 normal. Same with Celiac panel. Get a copy to see what was run and results. -
ARCHIVED gluten-free Daughter With Anxiety
pricklypear1971 replied to GFmomanddaughter's topic in Coping with Celiac Disease
Well, it could be from the glutening. Could be she wants to sleep with you...my son is 9 and if we give him half a chance he's in our bed. What about laying down in her bed, waiting til she falls asleep and sneaking out? Or, if she wanders in later walk her back and do it again. Its tough. My son is very persistent when he wants something, and he wanted... -
ARCHIVED Curious About An Odd Symptom
pricklypear1971 replied to Kamma's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I don't know if this is the same thing or not, but around dx time when I was getting shots of steroids to reduce the rash (DH) my adrenals went into overdrive... As an example, a shower would overstimulate my senses - sound of water and sensation of water hitting my skin was too much. After going gluten-free, the overstimulation would occur if I got... -
The What's For Dinner Tonight Chat
pricklypear1971 replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
Thai influenced chicken soup over rice. Hubs has a cold or is in the middle of a hideous allergy attack. He needed his feel-good meal. -
ARCHIVED How Many Family Members Do You Think Are Affected By Gluten?
pricklypear1971 replied to Jestgar's topic in Related Issues & Disorders
My Dad's side: Dad tested positive for multiple food allergies but refused to eliminate anything. Has always had sinus issues. Grandfather died of colon/digestive system cancer Grandmother died from complications of intestinal blockage. She was 4' 11" and had multiple miscarriages and kidney issues. Low potassium. Knew that food had an effect on... -
ARCHIVED How To Ask If Food Is Gluten Free In Restaurants
pricklypear1971 replied to cavernio's topic in Gluten-Free Restaurants
Another thing I've noticed (because I live in a tourist town) is that resorts are GREAT for gluten-free. Think about it, they are used to accommodating people from all over the world. JBar at La Paloma Resort actually had a dessert tasting menu that was gluten-free. Totally by accident, but hey I took it! -
ARCHIVED New At This And I Have A Couple Questions
pricklypear1971 replied to AlwaysByHisGrace's topic in Coping with Celiac Disease
You're having a "bad reaction" because your body is becoming used to not having something (gluten, dairy) and then getting a dose of it. This is very normal for someone who has a food intolerance. In your case, it looks like its gluten, dairy or both. Think of it as your "antibody army" resting for 6 days. On day 7, they fight. Used to, they fought... -
ARCHIVED How To Ask If Food Is Gluten Free In Restaurants
pricklypear1971 replied to cavernio's topic in Gluten-Free Restaurants
The first place to start is googling "x town gluten free". There may be a list of friendly restaurants with hints. Second, if you stick with nicer restaurants that make food from fresh ingredients you are more likely to have success. I open with "I am gluten free, can you point me to items on the menu that are easy to make gluten-free?" and go from there... -
ARCHIVED Texture In gluten-free Baked Goods? New At This.
pricklypear1971 replied to kb27's topic in Gluten-Free Recipes & Cooking Tips
You and me both! I'm at 7 months gluten-free and just now starting to play with different flour mixes and converting recopes. I swear, it's never the same twice. Drives me nuts. As an example I made perfect pancakes a few weeks ago, converting my old recipe. I was on cloud 9. Made them yesterday and they were a flop. You know what I think the difference... -
ARCHIVED Update On My Plans
pricklypear1971 replied to Booghead's topic in Coping with Celiac Disease
Then tell her what worked and didn't. She can adjust the next massage. The worst thing you can do is stay quiet. If you aren't getting the results you want after a few sessions try someone else.