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Latest Celiac Disease News & Research:
Everything posted by pricklypear1971
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ARCHIVED Five Guys Burgers And Fries For The Win
pricklypear1971 replied to josh052980's topic in Gluten-Free Restaurants
Sounds like me with In N Out. And I so get the ketchup thing...my son slathers it in ketchup. -
ARCHIVED Symptoms, Negative Tests
pricklypear1971 replied to Booghead's topic in Coping with Celiac Disease
You need a massage and don't carry a heavy backpack or carry it alternately in each hand. Try stretching. Gentle stretching. Your bm's are typical of a struggling system especially if you don't (even subconsciously) want to have one because it hurts. Eat fiber, water and DIGESTIVE ENZYMES AND PROBIOTICS. Pre thyroid meds digestive enzymes helped me... -
ARCHIVED Dr. Oz Today Is gluten-free Stuff
pricklypear1971 replied to 1974girl's topic in Coping with Celiac Disease
I came in when they were all in the grocery store. Was it before that? -
ARCHIVED Outdoor Temperature Today?
pricklypear1971 replied to love2travel's topic in Introduce Yourself / Share Stuff
If someone asks this question in June I doubt any of you will be jealous. You know, when its 102+??? -
ARCHIVED Dr. Oz Today Is gluten-free Stuff
pricklypear1971 replied to 1974girl's topic in Coping with Celiac Disease
I watched it (or most of it, I think it started early). Yes, it was incomplete. Yes, Oz called it an "allergy" once. Yes, EH is annoying (but not as much as usual). But overall it was great to see it out there - but why was it under "The #1 Secret for You to Lose Weight" title???? Btw I loved the villi video! -
ARCHIVED Are You "self Diagnosed"?
pricklypear1971 replied to BrittLoves2Run's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes, it's called a TPO antibody test for Hashimotos. If its +, its a strong link to Celiac. -
The What's For Dinner Tonight Chat
pricklypear1971 replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
I'm taking my son to Science Night at school, where they are serving Domino's Pizza. So I will be having leftover spaghetti sauce with gluten-free pasta! And he will be hosed down prior to re-entry! -
ARCHIVED Outdoor Temperature Today?
pricklypear1971 replied to love2travel's topic in Introduce Yourself / Share Stuff
Excellent! -
ARCHIVED Are You "self Diagnosed"?
pricklypear1971 replied to BrittLoves2Run's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'm not self dx'ed (it's complicated), but I haven't had testing. Anyhow, the reason my ND suggested a gluten-free trial was because I have Hashimotos which is a THYROID disease. Have any of those lovely ladies in your family had a TPO test to see of they have Hashimotos Thyroiditis? -
ARCHIVED Outdoor Temperature Today?
pricklypear1971 replied to love2travel's topic in Introduce Yourself / Share Stuff
Well, feel free to visit....and not to take advantage, but could you cook while you're here?? -
ARCHIVED Best Meal Planning Websites
pricklypear1971 replied to ZarinBaby's topic in Gluten-Free Recipes & Cooking Tips
I wish I had an answer for you. I looked and looked for a meal planning site that used "whole foods" but nada. My advice is a good crockpot book. Screen it carefully because lots of them put some nasty crap in the recipes. I think there's a free site that's gluten-free called "365 crockpot" or some such. Another one I like is Mark Bittman's books -... -
ARCHIVED Protien Allergy In Infants And Celiac Disease
pricklypear1971 replied to cgilsing's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Oh he deserves it. I think of a brain on gluten like a drunk... You can try to reason with them but you're better off waiting til theyre sober. It's hard waiting for results. Harder to figure out what to do with them if they are inconclusive. -
ARCHIVED Protien Allergy In Infants And Celiac Disease
pricklypear1971 replied to cgilsing's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My son had a full Celiac panel done and had vitamin deficiencies. Sometimes in kids that's all you get. Its a trial. If there's a difference we'll go from there. Sometimes you just can't sit there and watch, wondering. I can't ignore his behavior and keep grounding him if he's having a neuro reaction. It just isn't right or fair. That said, he's... -
ARCHIVED Question For Non-Celiac Gluten Intolerants
pricklypear1971 replied to Aly1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'm sorry you and your daughter had such a hard time. Parental guilt sucks. Don't beat yourself up. You absolutely did the right thing by having her tested...and she will forgive you. One thing you must do on the gluten-free route is to not give up. If you see health changes going gluten-free you're on to something. You may have other intolerances... -
ARCHIVED Protien Allergy In Infants And Celiac Disease
pricklypear1971 replied to cgilsing's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My son was assumed to be milk protein intolerant. I thought soy, too. He was on breastmilk (I was milk, soy free - I hated life) and Nutrimiagen. So far he tests - for Celiac, but does have some low vitamin levels. We will trial gluten-free/df next month. Hubby was milk protein intolerant, too, as a newborn. Stepson has a milk allergy he has not outgrown... -
ARCHIVED Outdoor Temperature Today?
pricklypear1971 replied to love2travel's topic in Introduce Yourself / Share Stuff
72 F. I'll shut up now. -
ARCHIVED Anyone Get Worse At 5 Mo. Gluten Free?
pricklypear1971 replied to saintmaybe's topic in Coping with Celiac Disease
I was great til 5 1/2 months. I honestly think I was glutened, though - one big one. Then several small ones (eating out). I did discover taking Claritin (half dose) helped get rid of some symptoms I was unsure were gluten or allergies. My allergies had been great gluten-free, though, til that point. I wonder if getting glutened triggered them? I... -
ARCHIVED Hubby Causes Insomnia? Suggestions?
pricklypear1971 replied to pricklypear1971's topic in Related Issues & Disorders
That would be great but I've found it goes something like dx'ing Celiac.... The mouth piece is what my hubs had a long time ago for teeth grinding..of course, he needed major dental work directly after he got it so it no longer fit. I have had mouth pieces suggested by doctors - the first things they suggest are side sleeping, allergies, devices, seperate... -
ARCHIVED Question For Non-Celiac Gluten Intolerants
pricklypear1971 replied to Aly1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
There is a study about serological + but biopsy - people going gluten-free and seeing benefit. I posted a link here a whole ago. I'll try to find it. One thing to remember is that you can have "damage" to your villi/intestines and not be called Celiac. Celiac is a particular type and degree of damage (this is best explained by someone else). So, you can... -
ARCHIVED Hubby Causes Insomnia? Suggestions?
pricklypear1971 replied to pricklypear1971's topic in Related Issues & Disorders
I've done the side thing but he has a hard time (shoulder injury) AND he snores on his side (so do I). We're quite the pair. -
ARCHIVED Question For Non-Celiac Gluten Intolerants
pricklypear1971 replied to Aly1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'd go with 1. What few people address (and this is a flaw in how we dx ailments) is that the testing for Celiac is not perfect, and there isn't a test at all for NCGI. The medical community really doesn't know WHAT NCGI IS, or what it DOES. For some reason, with NCGI, there is the thought that gluten makes you sick by ingestion but causes no harm... -
ARCHIVED Is Your House Completely gluten-free? If Only One Of You Has Celiac?
pricklypear1971 replied to kb27's topic in Parents, Friends and Loved Ones of Celiacs
gluten-free house (except beer and a box of oat cereal). I'm the Celiac. I'm the cook. Hubs travels so he gets plenty of gluten away from home. Kid eats lunch at school and when we're out... Kid isn't a "bready" kid...so he doesn't miss it and doesn't need junk food. Hubs loves bread but gets it elsewhere. I've found enough "junk" or alternative... -
ARCHIVED Hubby Causes Insomnia? Suggestions?
pricklypear1971 posted a topic in Related Issues & Disorders
Okay, I had started developing aches and pains and insomnia. Don't ask which came first, because I don't know... Well, hubby travels frequently (but was home for December)....and left for a week long trip Monday. Every day I have felt better. I have slept longer and deeper each day. I feel like a new person. We both snore, but his snoring wakes me... -
ARCHIVED Cookbook Suggestions For A Newbie
pricklypear1971 replied to Avalon451's topic in Gluten-Free Recipes & Cooking Tips
If you live near a Whole Foods, big natural foods store, or Barnes & Noble go by and browse. I am very picky about my cookbooks...and although Amazon gives me ideas I am usually disappointed if I don't screen it first. -
ARCHIVED Hydrolyzed Wheat Protein-Gluten Free?
pricklypear1971 replied to divamomma's topic in Gluten-Free Foods, Products, Shopping & Medications
Yes, I know that. They are so contaminated I won't consider them gluten-free unless so stated, though. Sorry, should have been clearer.