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tiredofdoctors

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by tiredofdoctors

  1. tiredofdoctors

    ARCHIVED Finding A Doctor

    tiredofdoctors replied to FairySprinkle's topic in Doctors

    We carry the Gluten-Free Bible with us when we go shopping. My husband also printed out the Delphi list -- it's REALLY lengthy, though, and we just got it, but we plan on taking it on "long" shopping trips. With regard to the break-outs you're having, a good dermatologist can biopsy them and let you know if it is Dermatitis Herpatiformis -- another gluten...
  2. tiredofdoctors
    We have a "Best Doctors in Louisville" issue of Louisville Magazine each year. The amazing thing is, all the MD's are nominated and voted on by other MD's!!! Check with some of their patients . .. . . .
  3. tiredofdoctors
    Really good info . . . and things I hadn't thought about. This is a really informative thread . . . . Lynne
  4. tiredofdoctors
    Hez -- that is FANTASTIC! Not that this would be an issue for you, but even years ago, Disney World was the only place I knew of that had TRULY accessible handicapped restrooms. They're the size of a small bedroom, and have everything you can imagine for physically challenged individuals. While you're there, take a gander (not that you're going to want...
  5. tiredofdoctors
    Oddly, because I have neurological damage from gluten, I was referred to a GI doc by my vitreoretinal surgeon! The GI doc was fantastic -- he said, let's do the bloodwork today. Do you want to know for sure if it's celiac? I said "yes" -- he said, then let's do the biopsy on Monday. (This was Thursday). It was all a piece of cake. Good luck to you....
  6. tiredofdoctors
    Rachel -- I don't know where my head was (usually either in the clouds of up my *%$, according to my kids, but that's another story ) -- HMO -- Oh my God. The reason I had to have thyroid surgery is because of an HMO. The endocrinologist I had to see took me off the synthroid I had been on for YEARS. My thyroid grew to the size of 4x normal on the left...
  7. tiredofdoctors
    I am SO SORRY that you had that type of appointment. They are so disappointing. I have had those with numerous other specialties, but I have been very fortunate to have the most FANTASTIC endocrinologist. She has been so supportive throughout this whole thing, and when I went in in a wheelchair, she said -- "Oh, this is not O.K. -- who is your neuro? ...
  8. tiredofdoctors
    Hi Claire -- I tried to respond to your PM, but this darned thing wouldn't let me. Just to let you know, I think you're fantastic. Seriously, I appreciate all your information very much, and you have really helped make this transition much easier for me. I'm curious about your casein-free status, as well. The staple of my diet is a "smoothie" made with...
  9. tiredofdoctors
    celiac3270 -- could you please send me the list as well?? I've just been glutened and don't know how, because I have been REALLY strict with regard to controlling what I eat -- I've been on the gluten-free diet for 32 weeks now. Thank you very much . . . Lynne I'm at bodyworxinc@hotmail.com (almost forgot to put that in )
  10. tiredofdoctors
    Oops! My fault! Thought it was you -- I knew it was a thread where you, claire and I were talking. Thanks for replying, though -- that was nice of you I tried hastypasty and it had information about gluten-free foods. (sounded obscene to me -- was afraid I'd start getting all kinds of weird spam -- but it had some information -- hard to navigate...
  11. tiredofdoctors
    Vincent, you previously gave me a site to go to which lists gluten-free products. I have searched threads until my fingers and wrists are giving up! Do you know which site(s) to go to for gluten-free products -- I think it was hastypasty.com . . . . . .. .(something, something, something). Actually, I think that's where I found out about Tootsie Rolls...
  12. tiredofdoctors
    I would be interested, too -- any additional information about the program???
  13. tiredofdoctors
    Yeah, I know . . . I told my husband (as we were loading bags of manure in our trunk) .. "I cannot believe that we are paying for cow $#*%!!!!" Was wondering if I should do anything to our privacy fences if I put the raised beds on the perimeter of the yard -- is there anyway to protect them from rotting? I don't want to destroy the fences for the sake...
  14. tiredofdoctors
    I think that physician education is the answer. I know from experience that physicians don't want to be told ANYTHING, but if the information is proposed in the form of a question, then they think it's their idea. (very passive-aggressive, but works a lot of the time). I take in the information that I have gathered, I make sure that it is from a reliable...
  15. tiredofdoctors
    Man -- in one day there is so much good information!! Patti -- you're not butting in -- welcome aboard! I would love to see a picture of your raised beds. Okay guys, need input -- I'm thinking of doing raised beds around the perimeter of our yard -- long, but fairly narrow (two to three feet) for my vegetables. Yes, No??? If so, any suggestions with...
  16. tiredofdoctors
    Jackie -- thank you for the compliment -- I tried to convey (rage), anger, disappointment, but in a way which would be accepted rather than just glossed over. Unfortunately, to date I have not received a reply from either the publisher nor the agent. I will give them approximately three additional days, then ask them as to why they have chosen to ignore...
  17. tiredofdoctors
    I think, as patients, we strive to educate our physicians as best we can. I take in valid, appropriate information to my physician -- pulled from the internet -- medline or pubmed -- and often insist that he read it while I'm in the room. I have my list of questions prepared prior to my visit -- to any physician I see. I also think that, simply from our...
  18. tiredofdoctors
    yep . . . it was a great thing to hear for my cravings, but not for my hips! Also, M&M's are gluten-free, too -- but only the plain, peanut or almond
  19. tiredofdoctors
    That is fascinating about the tonsoliths. I have neurologic damage from gluten -- I am celiac negative, but have had (in the past) a "highly" elevated anti-gliadin antibody level. I had a barium swallow, followed by a video swallow with a speech-language pathologist which showed marked slowed transit in the upper cervical segments of my esophagus. I have...
  20. tiredofdoctors
    What a great family heirloom -- in addition to some special pieces thrown in. I love the idea of the antique aprons, too. I was lucky enough to inherit the tablecloths from my grandmother that no one wanted -- because they were "antique-looking" and not new! (Not that the cousins didn't take ALL the expensive antique furniture!!) I can't wait to see your...
  21. tiredofdoctors
    Hey, me, too -- maybe we should start a new thread!
  22. tiredofdoctors
    Claire -- thank you so much for those references. I'm going to send them to my neuro. I'm sure that there are a lot more of us who appreciate all your input, as well. I really appreciate you. .. . Lynne
  23. tiredofdoctors
    As you can tell from my name, I'm a doctor-basher, myself! I guess my frustration lies two-fold: 1) I'm a physical therapist, and I used to own my own practice. I got so TIRED of listening and then diagnosing patients whose doctors didn't give a rat's hiney as to what they were saying, then yelling a ME when I had the nerve to tell the patient something...
  24. tiredofdoctors
    According to Tootsie Roll Industries, all their products are made gluten-free. (If you start reading the manufacturers, they make a lot of good stuff!)
  25. tiredofdoctors
    Elisabet -- don't know yet about paste, but I'll check my recipes! Jen -- the antique reupholstering hammer is WAY COOL But I don't think I'd use it at this point -- it's probably sturdier than anything made these days, but what a GREAT antique! BTW: For the dark grease on the stitching -- Dawn liquid. Its gluten-free, and they used it during the...
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