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squirmingitch

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Everything posted by squirmingitch

  1. squirmingitch
    My opinion is the same as rosetapper.
  2. squirmingitch
    Vodka & lime juice. If I want a sweet drink I just make it vodka, lime juice & sugar. OR & this is yum, yum, yum! Vodka & apricot nectar. To die for!
  3. squirmingitch
    Oh! And I will add a few things here. We seem to do better with safflower oil rather than canola oil. And my hubs is so paranoid about iodine that he doesn't even want a baked potato baked with the skin on so we peel them deeply & I then rub safflower oil on them & proceed to bake as a normal baked potato. It works! Instead of butter on rice or potatoes...
  4. squirmingitch
    Ah, slow typist that I am; I see you answered the question about nuts before I finished. Okay, rice then: Hubs & I make a stir fry. Get saffron threads (pricey but a little goes a long way) & make saffron rice. I cut up: celery snow peas leeks cabbage chicken breast sometimes I throw in cauliflower or green beans or green peas whatever...
  5. squirmingitch
    Awwww, sweetie, I'm sooo sorry you got got. Now that you have the rash it's going to be imperative to try to never get glutened. I know. It happens.
  6. squirmingitch
    No coconut oil ---- iodine. Sorry. That includes olive oil also. But if you can do cashews then you can also do cashew butter! I have cashew butter spread on either rice cakes or on bread in a bowl every morning. Here's a recipe for bun in a bowl --- I am copying & pasting with my own notes added on the ingredients. I also make a "white bread" version...
  7. squirmingitch
    Yes. It is entirely possible to have dh outbreaks after going gluten-free. It is talked about in medical literature. Until all the IgA gets out of our skin you can have dh outbreaks EVEN if you haven't gotten glutened or cc'd. Stress can be a trigger. But the dh can break out for no discernible reason at all. You might try limiting your iodine intake...
  8. squirmingitch
    L.J., I have read here that a lot of people went on the failsafe diet in the beginning b/c of food issues they were having similar to yours. You may want to consider it. Here's a link: Open Original Shared Link
  9. squirmingitch
    Well, with the milk not an issue then you just need to give it time. I'm wondering though --- you say he gets yogurt --- that is dairy & dairy can be the cause of constipation. You might want to remove the yogurt & see what happens. Have you tried giving him 1/4 tsp. of prune juice?
  10. squirmingitch
    Also 2 weeks is probably not enough time for everything to resolve. Shroomie is right about the milkl. But I imagine the same thing we say to adults would apply to kids. There will be ups & downs with his symptoms & you have to give it time --- at least a good 6 months. No one can say exactly how long it will take because everyone is an individual...
  11. squirmingitch
    It relates to the OP's question: "Does anyone know if 4 weeks of eating gluten light would lead to a false negative on biopsy?" Read that last word ------ BIOPSY.
  12. squirmingitch
    Oh but Tom, it clears it up very nicely for me. It states in essence that we are all individuals & we all have varying degrees of damage or not at any given time & that depending on our individual circumstances we may or may not show villi damage over a wide range of time. I fail to see what your statement "Did the best current celiac blood tests...
  13. squirmingitch
    THANK YOU IH for that MOST informative information & the link to the article!!!!!!!! This should clear up a lot of confusion on the subject. This strengthens my opinion that one wants the VERY BEST chance at getting a positive biopsy. And since individuals vary so widely it would be, in my opinion, IMPERATIVE that they stay on gluten just as long as they...
  14. squirmingitch
    Now, remember, that question was based on the celiac blood panel & I did not specifically ask them about the challenge time for the endoscopy sooooo.......
  15. squirmingitch
    Not long ago I wrote The University of Maryland Center for Celiac Research Open Original Shared Link asking them these questions: What is the recommended number of weeks or months a person should be eating gluten in order to have the celiac blood panel after having been eating gluten free? Does it matter as to the length of time the...
  16. squirmingitch
    Lola, I'm 5' 1.5" & 99 lbs. I was 97 lbs. I'm still trying to get some weight back on. I'm now 10 months gluten-free. It takes time. Be patient.
  17. squirmingitch
    Fortunately I have not.
  18. squirmingitch
    Sorry for being AWOL but something arose which required all of our wits to deal with. It's still ongoing so I may go AWOL again at times. Well, L.J.! Looks like you are on the path to healing. I love your attitude!!!!!!!!!!!!!! I've been enjoying all the posts on this thread. Witty repartee. So, okay, no desire to relentlessly pursue an official dx...
  19. squirmingitch
    Good info. Thanks Hopeful! Yes, why does a psych know that when regular docs don't?
  20. squirmingitch
    Very interesting! I am so glad you have found a supportive doc. Yay for persistence!
  21. squirmingitch
    When was the last time you came home from the grocery store with ONLY whole foods? It's actually cheaper than "the old" way of shopping. Cheaper by a LOT! Go to the store & rediscover food! Go through the produce section & really look at all those fruits & veggies you have been whizzing past for years & years. Apples, pears, oranges, tangerines...
  22. squirmingitch
    Eat Lola, eat! Bartful is right --- gluten withdrawal. Starving, unending hunger!!!!! I literally would vacuum with one hand while eating an apple with the other. I could not stay away from food for 10 minutes. I was ravenous constantly! Your body is trying to heal. Don't worry about weight right now; just eat! Your body needs it. Eating more protein will...
  23. squirmingitch
    You should give yourself another pat on the back! You done GOOD, real good! In time your hubby will adjust too. I think some extra special treats have been earned by both you & hubby.
  24. squirmingitch
    You are very fortunate with that PCP ---- certainly not the norm as the numbers bear out. It's always good to hear there are a few good docs out there.
  25. squirmingitch
    If derms want to say scabies then make them PROVE it by doing a skin scrape. They always want proof of everything --- let's make THEM prove something. They work for US not the other way around.
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