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squirmingitch

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Everything posted by squirmingitch

  1. squirmingitch
    You're welcome! I wish I could find references to derms like that all the time -- just got lucky that the Houston chapter had that on their website. Do you know what labs the GI did? You've probably done enough research by now to know that half the time (or more) GI's don't even know what the full celiac blood panel consists of. I'm betting he didn't...
  2. squirmingitch
    Oh boy! You have them on your elbows & knees & now he's not satisfied but wants them to also be on your buttocks & hairline. What an ass! If I had a nickel for every time someone said their derm said it couldn't be dh b/c it was NOT on their elbows & knees I would be a very wealthy woman. Find a new derm. Check out this link -- there is a...
  3. squirmingitch
    I was thinking that you should start keeping a food log & write down anything & everything that passes through your daughters lips, that would include medications both prescription & OTC. This is so you can track what might be giving her additional problems. Also write down any reactions she seems to have -- just take notes of anything that seems...
  4. squirmingitch
    There have not been many people on here who tried Dapsone who were able to stay on it. I wish there were a way to predict how fast the rash will clear when one begins a gluten-free lifestyle but there just isn't. Every person is an individual & we react individually. I will say that most people who have been on here with dh have had pretty quick results...
  5. squirmingitch
    Oh yes, do you know that antibiotics are used to treat dh when dapsone can't be used? Dapsone is itself an antibiotic but if the derm suggests it then PLEASE do your homework before putting her on it. Dapsone is not child's play & many, many people can't tolerate it. It is in the sulfa class & I could not take it if I wanted to as I'm allergic to...
  6. squirmingitch
    When mine were like her weepy legs are I used pure petroleum jelly & slathered it on thick. I KNOW how those feel. HOT! Itchy! BURNING! And PAINFUL! That was the only time I found tight clothing to be a good thing. They were all over my breasts, underarms & belly & I would slather on the vaseline (petroleum jelly) & when I had to go out in...
  7. squirmingitch
    HOORAY for a derm appointment!!!!!!! I know that Saturday can't come soon enough! Poor thing. Give her some great big, huge, gentle hugs! The weeping ones look so much like when I had the horrid outbreak all over my torso & scalp. Sort of gave me flashbacks. You know, it's possible to have allergies AND dh at the same time. It's possible to have a wheat...
  8. squirmingitch
    You are most welcome. For that matter it got to a point where I quit wearing makeup completely. It would irritate my face. My eyes would get puffy & itchy & my whole face itched. I tried different brands of everything it seemed -- at least enough different that I wasn't willing to keep throwing money down the drain. You know how expensive makeup...
  9. squirmingitch
    I agree 100% with what Bartful said.
  10. squirmingitch
    Boy chocominties you sure described the herb roasted chicken one perfectly! That was exactly what my dh & I thought about it. Fake chicken UGH! That's the only one of those we have been able to try since that's the only one our store carries. I do have to say that big breakfast or no it just isn't enough to feed a man. We also tried the Healthy Choice...
  11. squirmingitch
    My lips used to peel a lot. It got to where I couldn't find a single lipstick that didn't irritate them so I quit wearing it & only used Blistex. Still, they would peel but not as bad as when I used lipstick. I just realized about 6 months ago that I never have those lip peeling problems anymore. I hadn't even thought about that so don't know when they...
  12. squirmingitch
    I saw all the photos. It does look like dh. There are other things that look like that BUT it DOES look like dh. Something I thought of while looking at her photos.... ask her this.... When she gets a place or grouping of places does she find that it starts out maybe very small but when she looks over time the skin in a circle around it has puffed & separated...
  13. squirmingitch
    To do photos create an account on Photobucket: Open Original Shared Link then they can be loaded here or you can link to the photobucket album with those photos in it. You asked about blood tests & I see some are being done so that's good but I went back & did a search of this site for the bloods that should be run to check for things that are...
  14. squirmingitch
    Did he elaborate as to what he considers "classical dh" to look like? I'm trying very hard to understand WHY he doesn't think that scratching would destroy blisters? And he obviously DOESN'T know that dh doesn't always present in blisters that can been seen with the naked eye. Reference: https://www.celiac.com/forums/topic/84513-descriptions-of-dh-types...
  15. squirmingitch
    Fantastic suggestion!
  16. squirmingitch
    Oh screw the statistics! Personally I think they are outdated. But even if they are correct that doesn't mean ALL females don't have dh right? So don't get hung up on that. I can tell you there have been WAY more women on here with dh than men. That could mean men just don't tend to come on a site like this & talk about it or it could mean the quote unquote...
  17. squirmingitch
    Thank you. It looks good! I wish they had a lot more gluten-free items. Some of those salads had me drooling all over the keyboard but sigh, they contain wheat.
  18. squirmingitch
    tippyyyy, please tell us more about how the rash feels & reacts. Does it itch? When? Is it worse at certain times of the day or year? Does it sting? Does it burn?
  19. squirmingitch
    I would eat it and like Karen I'm curious to know the product.
  20. squirmingitch
    I have to say I totally agree 1000%!!!!!!!!!!!!!!!!!!!!!! If you make their cake recipes you will NOT know the difference from a gluten cake. There is ZERO grittiness, ZERO odd flavors, FABULOUS textures & crumb.
  21. squirmingitch
    I did want to ask you how she's doing mentally. How is she holding up? And I realize she's 14 & quite capable of understanding all this but how is she dealing with the whole plan? Is she on board with pursuing it until she can get tested and does she truly realize why it's so important that she gets an official dx? Have her wear loose clothing. The...
  22. squirmingitch
    She can do with the equivalent of 1 to 2 slices of bread per day -- she doesn't need more than that. That's what you eat if you are doing a gluten challenge. However, I'm not sure that will make 1 bit of difference in her rash but then on the other hand no need putting more antibodies under the skin than 1 has to. Have you tried the low iodine for her? I...
  23. squirmingitch
    Yes, she really needs that dx for the record AND so one day when she's 25 or 30 she doesn't start doubting that she had a problem with gluten. With a dyed in the wool dx she will have no doubts & therefore not be tempted to cheat on the diet. I can't see that the antibiotic cream will hurt anything but don't use the steroid until after a dh biopsy. I...
  24. squirmingitch
    Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Big SIGH. Banging head against a brick wall. I hope you have a hard head. Oooooooooooooooooooooooooooo I could chew nails! You're in the UK right? As I understand it anyone who gets dx'd with celiac can get gluten free food by prescription...
  25. squirmingitch
    {{{{{{{{{{{{{{{{{{HUGS}}}}}}}}}}}}}}}}}}}}}}} Maybe it won't be for too long. And maybe you can do hard cheeses?
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