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squirmingitch

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Everything posted by squirmingitch

  1. squirmingitch
    I agree, great news!!!!! Whew! Dodged that bullet.
  2. squirmingitch
    Way to GO!!!! Yippie!!!!
  3. squirmingitch
    Eeek! Sending positive vibes for a summer flu! That sure sounds crappy doesn't it? Wishing someone the flu. But considering the alternative....
  4. squirmingitch
    {{{{{{{{{{{{{{{{{{{{{ Nicole}}}}}}}}}}}}}}}}}}}} Hoping your boys don't get the chicken pox.
  5. squirmingitch
    Gotcha. Thanks for that clarification.
  6. squirmingitch
    Thanks you guys! This lab report says Endomesial IgA, reflex titer Endomysial Screen so I wondered if it meant I am IgA deficient even though I was not consuming gluten. Okay, so it actually means I was dietary compliant right?
  7. squirmingitch
    I'm a little confused as to the exact implications of the Endomysial IgA screening. I know it's pretty specific for celiac disease. If one is deficient then the other tests are skewed because of it. But is the screen only effective PRIOR to going gluten free or is it effective even after having been gluten-free for say 1 yr. & 5 mos.? I got to looking...
  8. squirmingitch
    Well i can't think of anything else it could be. I don't think I've forgotten anything. If anyone else reads this & thinks of something they'll let us know. There's one way to find out. Quit the oats for a while & see what happens. Be sure to check ingredient labels for oats & oat fiber just like you do for wheat, barley & rye. If you...
  9. squirmingitch
    I wouldn't go back to gluten for love nor money! I did get a dx after the fact but that is extremely rare for that to happen & it was based on symptoms & resolution. My hubs has never gotten an official dx & he would NEVER eat gluten again to get that official dx. BUT we don't have children that may need to be tested and getting testing for them...
  10. squirmingitch
  11. squirmingitch
    Yes, it can take years for some for the rash to subside. Yes, the ENT is right -- it does look herpetic. That's WHY they call it dermatitis HERPETIFORMIS Mr. ENT!!! It presents in a herpetic manner. That does not mean it's herpes!!!!! Yes, the rash can present any old where on the body so if it presents on the nose then it presents on the nose. ...
  12. squirmingitch
    Yaaaaaaaaaaaaaaaaaaaaaaaaaaaaayyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyy!!!!!!!!! What's that about closing a door but opening a window? ;-)
  13. squirmingitch
    With an attitude like that You WILL thrive Barty. You go girl!
  14. squirmingitch
    I had severe back pain in all 3 sections of my back. I had back pain since I was early teens which in hindsight I now know I was celiac that far back (58 now). I no longer have any back pain at all. None. I had pain all over my body - screaming, burning, raw, massive pain. It's all gone now.
  15. squirmingitch
    You all might want to read this: Open Original Shared Link
  16. squirmingitch
    Those allergy skin tests are pretty much regarded as bunk by most. As I understand it, they return as many false positives as they do true positives. This results in the person eliminating a lot of foods that they really don't need to.That's why the elimination diet is truly the best way to go to discover what you react to. It's a pita but it works. I think...
  17. squirmingitch
    First off there is NO test for gluten sensitivity. There are tests for celiac disease. Do you know what tests you had? Do you have a copy of the lab reports? Can you post them here? Most doctors don't order the full celiac panel because they really don't understand how to test for celiac disease. Were you eating a full gluten diet when you were tested or...
  18. squirmingitch
    On the Van's website it says gluten free oats and it says they are certified by the GFCO.
  19. squirmingitch
    HAPPY, HAPPY, HAPPY NEWS!!!!!!!!!!!!!!!!!!!!!!! This news from Eloise's sister: "Prayers are being answered! The doctors wanted to try again to wean my sister off ECMO today. They have been decreasing flow from ECMO(heart and lung bypass)every few hours today and my little sister is doing well!!!!!!!!!!yay!!!!!!!!!At last!!!!!! Her new lungs are starting...
  20. squirmingitch
    The lyrics: Many nights we've prayed With no proof anyone could hear In our hearts a hopefull song We barely understood Now we are not afraid Although we know there's much to fear We were moving mountains long Before we knew we could There can be miracles, when you believe Though hope is frail, it's hard to kill Who knows what miracles you can...
  21. squirmingitch
    They tried to gradually take our Earth Angel off the ECMO machine today but they had to turn it back up. Eloise's organs need more rest before she will be ready. Please continue your prayers for Eloise and her entire family.
  22. squirmingitch
    Is é an Tiarna do Dhia i do midst , ceann mighty a shábháil; beidh sé rejoice thar tú le Úthas ; beidh sé ciúin tú ag a ghrá; beidh sé exult thar tú le canadh os ard . English: The Lord your God is in your midst, a mighty one who will save; he will rejoice over you with gladness; he will quiet you by his love.
  23. squirmingitch
  24. squirmingitch
    ABSOLUTELY you should keep eating gluten until ALL testing is done including the endoscopy. The endoscopy would take biopsies - they should take 6 & no fewer than that. And a huge congratulations on being a 5 year survivor!
  25. squirmingitch
    Eloise's granny is now back in Ireland. She thanks us all for our prayers and thoughts. Our little Eloise is on an ECOM machine and they will try to begin the process of taking her off the machine on Friday. I imagine this is a gradual process sort of weaning her off the machine. I don't personally know much about that process though. Eloise is heavily sedated...
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