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squirmingitch

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Everything posted by squirmingitch

  1. squirmingitch
    I recently found out I am one of the 8% who can't eat even certified gluten free oats. My hubs is celiac too so we have a gluten free household but he loved these Lucy's gluten-free chocolate chip cookies. They contain certified gluten free oats. When I discovered I have reactions to oats he gave up the Lucy's cookies so there would be no chance of me getting...
  2. squirmingitch
    Just to let you know this thread is over 6 years old. I haven't seen any of these posters on here in years & years.
  3. squirmingitch
    And here are 2 more: Open Original Shared Link Open Original Shared Link
  4. squirmingitch
    Here it is: Open Original Shared Link
  5. squirmingitch
    It sounds like dh to me. The way you describe it presenting & how it acts. You could go to a derm & have it biopsied IF they do the biopsy correctly --- NEXT to not on an FRESH lesion. IMHO you're getting glutened somewhere. I'm not sure how it will work with you on the bloods now since you didn't have dh when you were dx'd but those of us who present...
  6. squirmingitch
    My 2 cents. if you're that worried about cross contamination then don't eat out unless you grill the chef & manager. Even then I won't eat out unless it's a totally gluten free place.
  7. squirmingitch
    Yaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaayyyyyyyyyyyyyyyy!
  8. squirmingitch
    I second these thoughts. You should probably go to your doctor & see if your blood panel is signifying dietary compliance. Go through everything you put in your mouth & re-check to make sure it is truly gluten free. Do you eat out?
  9. squirmingitch
    If the biopsy is negative I think you would be very smart to switch doctors for one who would be willing to give a diagnosis with the blood test and alleviation of symptoms once on the diet.
  10. squirmingitch
    Karma. It was meant to be that Patches & you found each other exactly when you both needed to find someone. I'm so happy for you! Not having to worry about Patches means the world to Harold. You done good girl!
  11. squirmingitch
    Christina, Bartful is right. I'm not sure you want to go gluten free just yet. 60% of celiacs with dermatitis herpetiformis test negative on the blood work. Besides, you say there is none of the IgA stuff on it like you've seen us talk about on here or other sites on the internet. That means they didn't do the full celiac blood panel. You say your NP ordered...
  12. squirmingitch
    Well it sounds like the mystery is solved & you won't be eating there again.
  13. squirmingitch
    I agree with this.
  14. squirmingitch
    I'm sure the other tests are done in the UK. I could swear I've read it on here numerous times. When is the gastro appt.?
  15. squirmingitch
    The IgA is the test to see if she's IgA deficient. If she were IgA deficient then it would mean she returns false negatives in the celiac bloods OR that if there are any borderline or near borderline numbers they should be given much greater weight. Some celiacs are IgA deficient but your daughter is not. I can't really figure out if the tissue transglutaminase...
  16. squirmingitch
    I agree with Colleen. Also I wonder about the bakery thing. Are the 2 sides totally separated? If not, there is all that flour flying around in the air. Where you sit to eat ~~ is it in the gluten bakery part?
  17. squirmingitch
    I concur.
  18. squirmingitch
    Kevin, I am not diabetic but I can tell you that it took me 2.5 years before I began to gain some weight back. 5'2" & I was down to 93 & at times the scale would read 91. I kept weighing & weighing & weighing & always the same low result so I got disgusted & quit weighing myself for about 4 months. Then my jeans began to feel a bit...
  19. squirmingitch
    I really do not regret paying that monthly fee for the gluten free watchdog. I have learned a lot from her. I find her to be fair and she is not biased one way or the other. She explains everything well & goes in depth as far as explaining what test they did with this or that & why it had to be done that way. When chocolate is an ingredient in anything...
  20. squirmingitch
    So I'm looking at the bloods the gastro ordered and it looks like the tests that are not back yet are the gene typing & that's all. So the gastro did not order a current complete celiac blood panel. Can we all scream now?!!!??? And the lady doc ordered the thyroid & B12 which have not come back yet. And the folate as well. As far as I could gather...
  21. squirmingitch
    jddh, I think there may be more to it than just using a test strip where "one size fits all". I am a member of The Gluten Free Watchdog and have learned much about the testing of different foods for gluten. It isn't as easy as it seems. Early on when i went gluten free I began to suspect certain foods of containing gluten & got some of the test strips...
  22. squirmingitch
    Did you see this? Open Original Shared Link
  23. squirmingitch
    The hubby can still make beer for a living. He can still drink beer but he has to brush his teeth well before you guys kiss. Same goes for when he eats gluten -- brush well before any kissy face goes on. Please read the Newbie 101 in the coping forum so you can make sure you get all the rules down & don't get cross contaminated.
  24. squirmingitch
    nvsmom & others are much better @ interpreting bloods than I am so I will let them weigh in on that. Although her "regular" bloods look normal with the exception of monocytes which are white blood cells are a tiny bit low. What that means - I don't know. I can say that a full celiac panel is not in those reports. Does she have any dry places on her...
  25. squirmingitch
    I'm keeping my fingers crossed that today is a GOOD day with the derm actually knowing their business and you getting some answers & not coming home frustrated.
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