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squirmingitch

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Everything posted by squirmingitch

  1. squirmingitch
    Those are very beautiful, powerful and moving. Thank you Adrianna. Athair na maitheasa agus an ghrá , éist lenár paidreacha do na baill breoite ar ár bpobal agus do gach duine a bhfuil gá acu . Ndán fulaingt meabhrach agus fisiceach féadfaidh siad teacht ar sólás i do láthair leighis . Taispeáin do thrócaire mar a dhúnann tú wounds , leigheas tinneas , a d...
  2. squirmingitch
    I hope you get it all figured out Barty and that it's not something like Lupus or psoriatic arthritis. I know both of those would really put a cramp (pun NOT intended) in your guitar playing & therefore your living. Thank goodness you got a doc who actually listens!!! Hooray for small wonders.
  3. squirmingitch
    News this morning form Eloise's sister. She thanks us for all the prayers & well wishes. They have made her cry happy tears. she & her grandfather go tomorrow to the UK to be with Eloise & and granny will go back to Ireland to be with her daughter, the girls' mummy. Eloise's father will stay with Eloise. Please continue to pray for the girls...
  4. squirmingitch
    You are welcome!
  5. squirmingitch
    You might be interested in reading this about Cheerios: Open Original Shared Link
  6. squirmingitch
    I'm livid too!!!!!!!!!!!!!!!!!!!!!!!! Oh man! Not again!!!!! This kind of thing has happened before. I just thought this time he knew what the heck he was doing. Okay, so now I'm thinking when you get the "celiac serum panel" back it won't have been the "celiac serum panel" - at least not the complete panel. Ohhhhhhhhhhhhhh I am SOOOOOOOOOOOOOOO sorry. ...
  7. squirmingitch
  8. squirmingitch
    I have every faith that Eloise is going to continue to improve & she is going to go home to Ireland and grow and laugh and do wonderful things! She has already beaten so many odds. She survived to 14, she's survived many infections, she survived the trip to the UK to get the transplant, she survived TWELVE hours of transplant surgery! Eloise believes...
  9. squirmingitch
    You're welcome Dave. Yes, you & the wife will figure out what to do with the kids. Please be sure & read the Newbie 101 in the coping section so you really know how to protect yourself.
  10. squirmingitch
    Thank you Raven. I'm right there with you. Eloise baby, come on honey, climb that mountain! You said miracles happen baby girl so here we go!
  11. squirmingitch
    Psalm 139 The Inescapable God To the leader. Of David. A Psalm. 1 O Lord, you have searched me and known me. 2 You know when I sit down and when I rise up; you discern my thoughts from far away. 3 You search out my path and my lying down, and are acquainted with all my ways. 4 Even before a word is on my tongue, O Lord, you know it completely. ...
  12. squirmingitch
    Raven, is this the double lung or the pancreas or all of them - do you know? And while we're at it folks, let's not forget that some child lost their life and that's why the organs are available so let's remember that child & that child's family in our prayers too.
  13. squirmingitch
    I know you would really like to have a formal dx but the odds against that are pretty astronomical unless you do a gluten challenge. Yes, you have to be consuming gluten for a dh biopsy just like with the celiac blood panel. Sorry. There have been no studies that I have seen where someone with dh who was gluten free for a long time & got cc'd & ran...
  14. squirmingitch
    If the grill was clean then grilled chicken breast is gluten free. That is assuming there are no sauces on the breast. if there are then you must make sure the sauces used are gluten free. Wild rice is gluten free! HOWEVER restaurant foods are always chancy. There is much potential for cross contamination. You need to become very proficient at grilling...
  15. squirmingitch
    Hang in there hon. We'll wait till the 17th then.
  16. squirmingitch
    This does not use a bread machine but it's GREAT gluten-free bread!!!!! The only thing that will break when you bend it around a hot dog is the crust. Otherwise it fits all your criteria. Open Original Shared Link The basic flour blend recipe is there & scroll down for the bread recipe. It's best if you use gluten-free bread pans as they are higher...
  17. squirmingitch
    Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!!!!!!!!!!!!!! Just when it was all going so well. Some dumbass comes along & throws a pipe into the spokes of the wheel. Okay, so when you get the blood work results back that was just done the other day -- the full panel -- then you can go from there. Hey, you might not have to go any farther at all. If the dh biopsy...
  18. squirmingitch
    And because you keep asking the question then I will assure you of the answer. You DO NOT have NCGI. There is no test for NCGI as of this time and NCGI will NOT show any positives on the tests you were given. You do have celiac disease. Now, all your first degree relatives should be tested every 2 years. Celiac can present at any age. AND there is such...
  19. squirmingitch
    Well knock me over with a feather!!!!!!!!!!!!!! Woooooooooooo Hooooooooooooooooo! It's almost over. I am thrilled for you. I don't know if the hugs & prayers are working or if you're just about the luckiest girl in the world right now. Maybe you ought to buy a lottery ticket today.
  20. squirmingitch
    I lived on GasX for years. Take it on a regular basis b/c i found that if the bloat got ahead of the GasX then the GasX just kind of sat on top of the gas bubble.
  21. squirmingitch
    Wow, wow, wow!! GOOD deal! It sounds like you hit pay dirt with this doc. You even got a biopsy there???!!!! Holy cow. Will wonders never cease! So this guy sounds like he actually knows what he's doing when it comes to celiac testing. I'm flabbergasted and very, very happy. You're getting the 1, 2, 3 punch all in a row without having to fight for every single...
  22. squirmingitch
    {{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{HUGS}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}} Let us know how the doc goes. We're here for ranting, venting, screaming, stomping & crying. We're also here for the victories.
  23. squirmingitch
    This is the full celiac blood panel: Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) IgA Deamidated Gliadin Peptide (DGP) IgA and IgG Total Serum IgA Also can be termed this way: Endomysial Antibody IgA Tissue Transglutaminase IgA GLIADIN IgG GLIADIN IgA Total Serum IgA Deamidated...
  24. squirmingitch
    Just to make you aware of the symptoms of celiac disease here is a link to the list -- it is LONG. You see, there is more to celiac disease than stomach pain, skin rash & anemia. In fact half of all diagnosed celiacs did NOT present with any GI issues. Don't feel bad that you did not know that because most doctors don't seem to be aware of it & that...
  25. squirmingitch
    I can surely understand wanting to reduce your chances of a false negative. Hang in there!
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