squirmingitch
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Latest Celiac Disease News & Research:
Everything posted by squirmingitch
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ARCHIVED Almost At The End!
squirmingitch replied to Cyanste's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Good for you getting closure! Welcome to the club. You know what you have to do now. Be sure to read the Newbie thread in the Coping section. -
ARCHIVED Burger King French Fries No Longer gluten-free
squirmingitch replied to Raining Skittles's topic in Gluten-Free Restaurants
Ditto that! My hubs & I used to make bets on what part of our order they would screw up this time. it was always something. -
ARCHIVED Taste Of The Wild Cat Food
squirmingitch replied to bartfull's topic in Gluten-Free Foods, Products, Shopping & Medications
Barty, have you looked at chewy.com? It might behoove you to just order online. -
ARCHIVED Low Immunoglobulin A
squirmingitch replied to lea01's topic in Parents, Friends and Loved Ones of Celiacs
"There are also several conditions which may yield false negative antibody results. A false negative means that the patient actually has the disease, but the test result is negative. One of the conditions that may give a false negative result is Immunoglobulin A or IgA deficiency. If a patient has a low total IgA level, the antibodies may be falsely low.... -
ARCHIVED Possible Ncgs?
squirmingitch replied to Maddi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes, you can have normal blood tests -- CBC etc... & have celiac disease. -
ARCHIVED Question Regarding Dh Symptoms.
squirmingitch replied to designatedhitter's topic in Dermatitis Herpetiformis
It can be just itchy or it can be itching & stinging or it can be itching, stinging & burning or it can be itchy & burning. HOWEVER I am now over 3years gluten-free and the few rashes I have no longer itch (or sting or burn) like a mutha all the time. They never burn anymore at all. I am not skin biopsy dx'd but am dx'd with celiac based upon... -
ARCHIVED Talenti Gelato
squirmingitch replied to Annaem's topic in Gluten-Free Foods, Products, Shopping & Medications
I agree! -
ARCHIVED Possible Ncgs?
squirmingitch replied to Maddi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Possibly. Celiacs tend to be prone to skin issues of all sorts. How many celiacs on here past & present were told "it's all in your head"? I can't count the number. Or if they're skinny were told to eat some cake or if they're fat were told to quit stuffing twinkies down their throat? How many who were fat were told they couldn't possibly have celiac... -
ARCHIVED Possible Ncgs?
squirmingitch replied to Maddi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
BTW, my primary care doc wanted to put me on antidepressants --- jumped up & down with joy at the notion of dispensing antidepressants. GI doc blamed everything including my severe bloat on menopause. Anxiety? Like you I never had anxiety in my whole life but I did for several years before diagnosis. Depression? I had never had the slightest depression... -
ARCHIVED Possible Ncgs?
squirmingitch replied to Maddi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The Chicago Celiac Disease Center recommends 1/2 slice of bread per day for 12 weeks for the challenge. Sorry. Some find it easier to eat that before going to bed so hopefully by morning you won't feel quite as bad as if you ate it during your waking hours. -
ARCHIVED Possible Ncgs?
squirmingitch replied to Maddi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I say find a new doctor, start eating gluten again & keep it up for at least 2 months, preferably 3 & then go to the new doc. There is too much pointing to you being celiac. -
ARCHIVED Question Regarding Dh Symptoms.
squirmingitch replied to designatedhitter's topic in Dermatitis Herpetiformis
My dh rash vesicular or not always itches - sometimes itches/burns/stings or any combination of the three or two. -
ARCHIVED In The Middle Of A Possible Diagnosis?
squirmingitch replied to kadege's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That's fine. It's your choice completely. I just wanted to make sure you really knew there can be little to no symptoms AND that if you want a second opinion then "a few weeks" of eating gluten will not be the end all test you hope to achieve. That you will need to eat gluten much longer than a few weeks. I didn't want you thinking you could re-test in that... -
ARCHIVED Pathology Report - Help Me?
squirmingitch replied to KBart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree too! I have no idea why this posted twice.?????? -
ARCHIVED Pathology Report - Help Me?
squirmingitch replied to KBart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree too! -
ARCHIVED Gluten Challenge Confusion
squirmingitch replied to blackbetty's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hang in there blackbetty. Only 5 weeks & 2 days to go. Are you in the US? Do you know the Chicago Celiac Disease Center's recommendations for a gluten challenge? For the endoscopy they recommend 2 weeks of gluten eating not 6. Personally, if it were me, I would probably eat gluten for 4 weeks just to hedge my bets but I wonder if you want to go for 6... -
ARCHIVED In The Middle Of A Possible Diagnosis?
squirmingitch replied to kadege's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You DO understand that there is such a thing as silent celiac disease where the person has ZERO symptoms don't you? Furthermore, there are people who have milder &/or fewer symptoms AND then there are people who just began having symptoms which usually get worse the longer they go on eating gluten. But you can think it was all just a big mistake if you... -
ARCHIVED In The Middle Of A Possible Diagnosis?
squirmingitch replied to kadege's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you insist on doing a challenge then you need to do it right. That would be 12 weeks of eating at least 1/2 slice of bread per day for TWELVE weeks. See: Open Original Shared Link -
And until you get one carry the antihistamines around with you at all times. I am not a doctor but personally, if it were me, I would have liquid benadryl rather than the pills. The liquid would be faster acting. In fact, liquid benadryl saved my life when I was 3 years old. I am anaphylactic to penicillin but the doc or pharmacy goofed & gave it to me...
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ARCHIVED Foods For My Friend To Eat To Gain Weight
squirmingitch replied to Mattjw's topic in Gluten-Free Foods, Products, Shopping & Medications
How sweet you are to try to help your friend. You say she was recently diagnosed. It can take time before one begins to gain weight back. The gut has to begin healing. I am the same height as your friend and I was down to 91 lbs. then I went up to 93 & then just seemed to level off there for about 2 years. I ate all the items mentioned above & more... -
ARCHIVED Lentils
squirmingitch replied to Annaem's topic in Gluten-Free Foods, Products, Shopping & Medications
I agree with Barty on the Ronzoni gluten-free pasta! It's GREAT! The "chew" on it is perfect. I can finally make homemade baked mac & cheese without having the pasta end up as mush. YAY! -
ARCHIVED Breyer's Ice Cream
squirmingitch replied to Em314's topic in Gluten-Free Foods, Products, Shopping & Medications
Oh BUMMER Barty that you have no Breyers there. But then again, we have no Canyon Bakehouse here. -
ARCHIVED Elimination Diet Question
squirmingitch replied to ThisIsMyUserName's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Also note if it's cooked things giving you trouble or only the raw versions. For instance I am fine with cooked onions but raw onions give me a tummy ache & flip flopping tummy as well as bloat/gas/belching. HOWEVER, raw scallions are fine but that's the only raw onions I am okay with. -
ARCHIVED Feeling Paranoid
squirmingitch replied to nonnarae's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Well, you just learned a lesson you will not soon forget. Nothing like horrid stomach pain, migraine, & urping all the way home to give you a stiff backbone. I don't think you will have much problem saying no from now on. ((((((((((((HUGS))))))))))))))) I hope you are feeling much better now.