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squirmingitch

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Everything posted by squirmingitch

  1. squirmingitch
    The notification worked for me 3 times in a row but now? Nada. Won't work.
  2. squirmingitch
    Me three!
  3. squirmingitch
    I got 1 notification today & it worked when I clicked on the notification thumbnail but nothing else is working up there for me. When I click on my profile or my mail I get zilch - just empty clicks. The notification that worked today could have been a real fix for that or a fluke -- only time will tell but I will let you know. At any rate, thank you...
  4. squirmingitch
    So it got all red & raised around the lesions right? I can see marks where he scratched it. DH gets really itchy when it gets that raised red puffy look. He's scratched those tops off so now you see it's open in those places. This is what my dh does now that I'm no longer getting the blisters. Try the low iodine & if it responds then you can...
  5. squirmingitch
    Not the whole potato but the skin. I deeply peeled all our potatoes for a year when we were limiting our iodine intake. And watch out for that carageenan! READ LABELS! you wouldn't believe the products that have it in it. Last year I began having a bad flare & my hubs too. I knew we weren't getting any gluten & was going crazy trying to figure out...
  6. squirmingitch
    Thanks so much dear. Yes, I would love an update on what's going on.
  7. squirmingitch
    You are so welcome! Let us know what happens please. Maybe the allergist can make a few calls around & see which derms have experience with doing biopsies of dh. That would be a great help right off the bat.
  8. squirmingitch
    No, not really painful or invasive. Here is a link & they show you a picture of how it's done. Scroll down to the drawings: Open Original Shared Link And print this out & take it with you to the derm & MAKE them read it. If they do the biopsy wrong & most do then we have zilch. So many want to take it directly ON the lesion so be a helicopter...
  9. squirmingitch
    Oh you are most welcome!!! I've heard of/read about cold urticaria & from what I've read or been told it is a pretty darned painful thing so maybe he is a total trooper & has an amazing threshold for pain. Just some food for thought & I'm not even sure what to make of what's going on with him..... When I began getting blisters (which is how...
  10. squirmingitch
    I don't know about most skin rashes --- don't know if they would react that way or not. I've never heard of things like psoriasis or eczema reacting like that to withdrawal of steroids but I KNOW dh does that. This is odd. Is he super stoic???
  11. squirmingitch
    It is presenting bilaterally but dh itches like mad!!!! If it's been there for over a year now & it doesn't itch enough to drive him insane then I'd say it's something else. There are other skin rashes associated with celiac disease but as far as itching goes dh makes poison ivy feel like a walk in the park.
  12. squirmingitch
    Aw hon, I feel for you. I was/am a dairy hound too. Seems like most of my comfort foods involve dairy. I had to give up dairy for over a year & I know what you're going through but hang in there. You can do it! {{{{{{{{{{{{{HUGS}}}}}}}}}}}}}}}}
  13. squirmingitch
    You have to create an account with Photobucket & then import the photos from there to here.
  14. squirmingitch
    Yes, as to the continual hunger -- stark raving mad hunger 24/7! -- it is part of the gluten withdrawal for many of us. I was one. I was ravenous constantly. I will tell you what the good people on here told me & it really did help. Have some fat with protein at every meal -- in fact; at every snack. And be SURE to start off your morning with some protein...
  15. squirmingitch
    Do NOT stop eating gluten until ALL testing is done & you have the results in your hot little hands okay? That includes the dh biopsy. Find out if the GI will want to do an endoscopy -- if they will want to do that then you have to STAY ON gluten until that's done. Just FYI, 60% of those with dh test negative on the blood panel & have fewer positives...
  16. squirmingitch
    To lessen the anxiety over grocery shopping while you get used to this whole new lifestyle then just eat whole foods. Shop the perimeter of the store. Fresh fruits & veggies are always gluten free, fresh meats, you can eat frozen fruits & veggies too as long as they don't have any sauces that contain gluten. You'll be doing a lot more cooking but...
  17. squirmingitch
    Wow mamaw! Thanks for the info.!
  18. squirmingitch
    I Googled Quest Labs Celiac Disease Panel, Adult - Q15980 and came up with these two links. BTW, when I entered the test # Q15980 on their search bar it came up "not found". Open Original Shared Link Open Original Shared Link I can't imagine what 47 markers your friend is talking about.
  19. squirmingitch
    We use Kraft Honey Hickory Smoke BBQ sauce & love it. Lea & Perrin's Worcestershire sauce is guud!
  20. squirmingitch
    Ha! Look; Dr. John Zone is one of the authors of the article. And it's from From the Department of Dermatology, University of Utah Health Sciences Center Salt Lake City, Utah -- where he is. I was thinking you could write a snail mail to the University each is associated with. Just type it out & then print it. Print out your test results. But all...
  21. squirmingitch
    I would be extremely interested in anything you find out. I've been thinking about your case & it seems to be so highly unusual. I would suggest you contact Dr. John Zone as well as Dr. Alessio Fasano and tell them/ask them about your situation. Dr. Zone is one of the leading derms in the research & treatment field of dh and Dr. Fasano is one...
  22. squirmingitch
    I read on the other thread it's been about 3.5 months that you've been gluten-free. Hang in there. I didn't really see much difference for months & months. I would have a day here, a day there where things would be a tad better & then the next day it was like I had imagined the previous day. This is a mental battle every bit as much as a physical...
  23. squirmingitch
    Welcome to the club! I know you never wanted to be a part of this club but at least now you know what has been itching you to distraction. Ok, let's see. First, if you were on the prednisone or any steroids when they did the dh biopsy then that can make a false negative. Secondly, did they do the biopsy ON a lesion? If so, then you never had a dh biopsy....
  24. squirmingitch
    YVW Melissa! I would say to just forego any more testing & just go gluten free for life. The only reason I can think of for not doing that in your case is the fact that you are 21 and I imagine someday will want to have kids. Celiac is a genetic disease you know & if 1 or more of your kids shows any symptoms it will be much easier to get them properly...
  25. squirmingitch
    I totally understand. That's what dh does. Not to say other things don't do that but I don't know why derms are SO resistant to ruling out dh by doing a biopsy for it. Doctors are so obsessed with doing all kinds of tests to rule things out but when it comes to celiac or dh they suddenly know it couldn't be that & shut down on the notion that it won't...
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