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1desperateladysaved

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by 1desperateladysaved

  1. 1desperateladysaved
    " I'm actually finding myself a bit scared that this isn't the answer. I know hoping for celiac seems a bit weird, but a change of diet in exchange for being a functional human being sounds like a really good deal. How could it possibly be that simple? I'm so afraid I'm wrong, and I'll have to go back to just trying to be not depressed (anti-depressants make...
  2. 1desperateladysaved
    GottaSki: "Insufficient IgA - this is the reason for the Total Serum IgA blood test. If a person doesn't have sufficient IgA, they can't make the antibodies that are tested for in the tTG IgA and other IgA tests of the celiac blood panel." Would this be an autoimmune problem? Would it be damage to the small intestine? I think I heard that antibodies...
  3. 1desperateladysaved
    I remember reading that Celiacs often false negative on the IGA tests. My tests were all about 0 antibodies. Please just assume that we know that I have allergies/intolerances to atleast some of the foods/airborne allergies on the test. Why do Celiacs have false negative tests?
  4. 1desperateladysaved
    I agree that gluten free isn't everything and that one should use caution about dyes when they eat. It might seem like gluten is everything on the forum, but the focus is celiac, so that would be natural. You might want to reask your question on the forum in diet section. I am on a natural-mostly organic scratch cooking diet and have been for years...
  5. 1desperateladysaved
    Fruit juice is very high in natural sugar. It has as much sugar as soda. It might make you spike and then crash needing nourishment. I agree also that high protein and good fats would be helpful. Without coconut, olive oil, or butter, I am hungry again shortly thereafter. Diana
  6. 1desperateladysaved
    Yeah, for sure. So I wanna make sure now that I am on the right road and in the right car. Well, I fairly reasonably sure of that.
  7. 1desperateladysaved
    "If it helps, make a chart of ALL your symptoms for yourself, stick it on the fridge and check them off one by one as they resolve." Irish Heart This is the sort of thing I wanted. That is a plan. I am not really a figure minded person though it may have come off like that. But I am afraid to get 2 years down the road and still not be able to objectively...
  8. 1desperateladysaved
    Heartfelt sympathy for your infertility and other suffering. I hope you will keep experiencing better health. Children are blessings. I had one known misscarriage, 5 successful births followed by 12 years of infertility and 2 adopted children *****
  9. 1desperateladysaved
    I have had small bruises that don't seem to have a cause. As I understand these now, they may be a result of a deficiency in vitamin K. I hope you will be absorbing better as you go.
  10. 1desperateladysaved
    Yeah, it is good to know there will be imrovement. It would be nice to have something objective though. Maybe if I heard what someone else keeps track of I might find something.
  11. 1desperateladysaved
    I am having trouble measuring change as my body recovers. I tried measuring my belly around the belly button. However, it never seemed to change at the belly button, but all around it. I couldn't figure a way to measure in a consistent place but the belly button. Pain: I have been numb, so that is one reason I didn't get diagnosed, I guess. I bloated...
  12. 1desperateladysaved
    I have always concentrated on healthy eating and not weight. But I know that weight is one way of gaging progress on the battle. I have used it for that. Yeah, concentrating on what else is progressing could be a good thing. Prayers for you BeachBirdie!
  13. 1desperateladysaved
    My dad is a gem. My siblings are all involved. I just found out that the weakness was probably a side effect of a drug she went on two months back. I will be sure to leave a note for the doctor if I have further questions. Thanks, Diana
  14. 1desperateladysaved
    I live an hour and a half away and we are now short of cars in the family. I have given the doctor my name and phone number when I told his that I have celiac. Did your Mom ever pull out of it? Mine has been so well and she is only 71. Dad is 81. II don't think the doctor is allowed to discuss her healthcare with me. Mom and I have vastly different...
  15. 1desperateladysaved
    It would be hard to describe the whole situation. I was diagnosed celiac last May by a genetic test. The same test was so positive that it was known both of my parents have the genes for it. I told them and all my extended family of my diagnosis. I also wrote to Mom's doctor to ask him to consider this diagnosis in my mother's care. Dad said that Mom...
  16. 1desperateladysaved
    Wow! What a story. Yes, a whole lot of us have been told it is all in your head, or everything tests out great...A whole lot of diagnosis are missed. Now it is revealed to you. Now, you can start getting well. *** Diana
  17. 1desperateladysaved
    I hope you will find substitues and follow it and that it will help. I have had many good foods eliminated from my diet. But for every one I seem to find one or two subs and have actually increased the variety of my food. Some of these subs are: almond flour garbanzo/fava flour coconut milk almond milk kelp noodles buckwheat flour I can make...
  18. 1desperateladysaved
    I hope you will get your tests soons and will get off to a non gluten trial diet. I hope this will change your life. Diana *** -here are some flowers for you ***
  19. 1desperateladysaved
    I noticed bloating as a result of eating sprouts with mold in them. I think I am allergic to mold. I didn't consume mold on purpose, but did not notice it at the time. Nobody else in the family reacted to it.
  20. 1desperateladysaved
    I did sight mono at 19 years old as being a time when my symptoms became noticeable and were new. I mention it in my blog on this forum. "Back From Nowhere." is the entry.
  21. 1desperateladysaved
    Great we learned some lessons since then! Diana
  22. 1desperateladysaved
    I didn't know about gluten. I knew that wheat was probably a problem for me. I took heed when a mother said her children couldn't handle wheat, but they could eat older forms of wheat. They were a tasty and nice texture replacement for wheat. I sure wish I could remember who that mother is. Maybe I could put her on guard for those children. At any rate...
  23. 1desperateladysaved
    I just remembered that when I used to bake delicious homemade wheat bread that I would bloat. My belly looked really big, but it caused no pain. It is just cosmetic, though.
  24. 1desperateladysaved
    That sounds sort of where I have been the last 20 or so years. Finding out by unstructured means. I have occassionaly forgot that I had problems with certain things only to figure it out the next time. Diana
  25. 1desperateladysaved
    Yes, that is an answer to the question! That is how gotta ski decides what to eat. Are there any other ways?
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