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happygirl

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Everything posted by happygirl

  1. happygirl
    Can you tell me some specific instances of where an official diagnosis would come in handy? I've just received positive blood test results and don't know what to do next, if anything. Thanks!
  2. happygirl
    Geoff, Although I certainly don't wish a "disease" on anyone, I know that you must be relieved to have a rock solid diagnosis, so that you can work on getting better and getting on with life! Laura
  3. happygirl
    If the purpose of the testing is to screen for Celiac Disease, then you MUST be eating gluten for the tests to be accurate. The antibodies that are tested are in response to gluten.....take gluten out, and eventually, the antibodies disappear. If the purpose of the testing is to confirm that you have healed from Celiac Disease, then you should remain...
  4. happygirl

    ARCHIVED Grrr

    happygirl replied to emcmaster's topic in Food Intolerance & Leaky Gut

    Elizabeth: if you haven't seen this yet-Open Original Shared Link Most processed foods (including lunchmeats) are going to have corn in them. I was corn free at one point last year and in order to be 100% corn free (which, not everyone needs to be), it takes out about 99% of processed foods. If you want to list the ingredients here, I'm sure someone...
  5. happygirl
    If you are continuing on with testing, you may also want the rest of the Celiac panel run. The more sensitive tests include the EMA IgA and tTG IgA, along with the IgA deficiency test (which you aren't if you tested positive for AGA IgA). Here is more info on blood testing: Open Original Shared Link Hope this helps!
  6. happygirl
    Hi Karen! Welcome to the board. A total IgA doesn't diagnose Celiac, but tells if she has an IgA deficiency (which can affect the accuracy of the other Celiac blood tests). Did she have the other blood tests run: Open Original Shared Link Do NOT go gluten free until the testing that you choose to have is completed. The testing measures the damage...
  7. happygirl
    You may also want to run the rest of the bloodwork in the Celiac panel. You can have false negatives on the AGA IgA and EMA IgA test (as well as another Celiac test, tTG IgA) if you are IgA deficient. This site has information on the bloodtests you need done: Open Original Shared Link Anti-gliadin antibodies (AGA) both IgA and IgG Anti-endomysial...
  8. happygirl
    My personal opinion: I would get them all tested, but I would go through traditional bloodwork (genetics and Celiac panel) before other testing. The kids get a mixture of genes from you both. If neither of you have the genes, they won't have them. If either of you have one/both of the currently identified Celiac genes, then your kids could/couldn't have...
  9. happygirl
    EmmaQ, Thanks for sharing your experience about IgA deficiency. Everything I've heard and read about Dr. Fasano is AWESOME and your story backs that up!
  10. happygirl
    The blood tests for Celiac screening are: Anti-gliadin antibodies (AGA) both IgA and IgG Anti-endomysial antibodies (EMA) - IgA Anti-tissue transglutaminase antibodies (tTG) - IgA Total IgA level.
  11. happygirl
    FYI: "Q: Are there some celiacs who do not respond to the gluten-free diet? A few patients have a poor clinical and/or histologic (biopsy) response to the diet. An important step in assessing patients who are non-responders is to confirm the diagnosis of celiac disease by review of the original biopsy, preferably by an expert gastrointestinal pathologist...
  12. happygirl
    Keep in mind that an endoscopy looks for other things beyond Celiac, as well. A biopsy is a good idea to get a definitive idea of what is going on, as well as to determine the level of damage. Currently, it is the "gold standard" for diagnosis. You'll never have to worry about a doctor questioning if your child has Celiac if they have a biopsy positive...
  13. happygirl
    Open Original Shared Link Open Original Shared Link
  14. happygirl
    Open Original Shared Link The above is a list of companies that won't hide gluten. GM is one of them.
  15. happygirl
    Yes, there is a blood test for IgA deficiency. You can ask your doctor to run it along with the full Celiac panel.
  16. happygirl
    Tiffany = member name "tarnalberry" who posted earlier in this thread.
  17. happygirl
    If you are a diagnosed Celiac (via bloodwork or biopsy), have you had your Celiac bloodwork re-run to see how your levels are doing?
  18. happygirl
    Have you been to the doctor to be evaluated for common problems? (i.e., a check up with bloodwork, etc.) Might be a good place to start if you haven't taken that step yet.
  19. happygirl
    Lisa, is the vanilla you want to use made from a gluten containing grain (w, r, b, o?) Also, we DO know what the problematic part of gluten is. The 33-mer peptide. "The offending peptide is a chain of 33 amino acids resistant to metabolism by the human gastrointestinal tract." Open Original Shared Link
  20. happygirl
    Keep in mind that MANY distilled vinegars/alcohols, etc. never even COME from wheat/barley in the first place....so its not a concern for those products. All of the large Celiac organizations and the ADA, as MG posted, say that distilled alcohols from unsafe sources are safe.
  21. happygirl
    I was given multiple diagnoses, but none of them seem to fit. I was sick for about 8-9 months after a severe bout of mono. Had seen a GP, rheumatologist, infectious disease dr., and gastroenterologist, and none of them ever suggested it. My mom read an article about Celiac in Time magazine (July 2004) and asked me to be tested for it. None of...
  22. happygirl
    You might have to ask your doctor about that. I'm not sure what qualifies as "deficient." However, it will only affect the "IgA" based tests. Also, did your doctor run the tTG and EMA tests? They are the most sensitive/specific for Celiac, not the antigliadin antibody tests.
  23. happygirl
    Lots of reasons for a "false negative" 1. Dr. didn't run the full Celiac panel. Some of the tests are more sensitive than others. You may be positive on one, but negative on another. 2. Bloodwork doesn't always pick up on the antibodies. Some of the tests are correlated to damage, so if you only have "some" damage, it doesn't always trigger...
  24. happygirl
    The leading Celiac experts recommend that ALL first degree relatives are screened via bloodwork, regardless of symptoms or no symptoms. Open Original Shared Link Q: Why do my family members need to be screened for celiac disease? When the diagnosis is established in one family member, their first- degree relatives (parents, siblings and children)...
  25. happygirl
    Changes to the villi, seen by biopsy, can occur within one week of starting the gluten free diet. If you chose to have the endo/biopsy, remain gluten free until the procedure, in efforts to have the results as accurate as possible. If you chose not to have the biopsy, you can start the diet. Which blood tests were positive? There are a few, and...
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