Jump to content

nvsmom

Advanced Members
 View Profile  See their activity

  • Posts

    4,529

  • Joined

  • Last visited

  • Days Won

    62

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by nvsmom

  1. nvsmom
    I hope you feel better soon. Cooked veggies might be easier on your gut - it can take some time to be able to handle raw veggies in large amounts. Nuts tend to get things moving for me. If you greatly increased your nut intake, that could contribute. darn gluten....
  2. nvsmom
    Happy to help. Don't write off eating out entirely. While it is much easier to stay safe if you avoid restaurants, if you do some research on safe places to eat near you, especially higher end restaurants, you can still eat out with relative safety... eating in will usually be the safest choice though. Glad it is getting better. You'll be a pro...
  3. nvsmom
    I agree. Don't go gluten-free until after testing, and get as many tests done as possible so it doesn't get missed. tTG IgA and IgG DGP IgA and IgG EMA IGA total serum IgA control test AGA IgA and IgG - older tests endoscopic biopsy - 6+ samples taken You may want to check your thyroid too. TSH (near a 1), TPO Ab, and free T3 and FT4 (should...
  4. nvsmom
    Your IgA of 144 was the control test. You want that in range so your other tests will be accurate - looks good. Transglutaminase IgA is the tTG IgA. Yours is negative but it has a sensitivity that can be as low as 75%, which means that it can miss up to 25% of all celiacs. The Gliadin IgA Abs2 was most likely the AGA IgA (anti gliadin antibodies...
  5. nvsmom
    She only had one celiac disease test done, and that test, the tTG IgA, can miss up to 75% of celiacs. Plus she did not have the total serum IgA done, which is a must for determining if the IgA based celiacs tests (tTG IgA, DGP IgA, etc.) are accurate. Approximately 1 in 20 celiacs is deficient is IgA (compared to approx. 1 in 700 of the regular population...
  6. nvsmom
    It varies by restaurant. Some restaurants can handle keeping a celiac safe, usually the higher end the restaurant the better chances are of staying safe. It is always best to bring a bit of food with you if a restaurant is "iffy", or just have drinks with people. Ceiacs often have to make the shift from going for the food, to going out for the company...
  7. nvsmom
    Woo Woo! One year! Congratulations! Dairy was an issue for me too - lactose is not a good thing for me. I started trying to add parts of it back after about a year, and at that point it wasn't frequent. At first, I always took a lactaid (with lactase) when I ate dairy, or tried to buy lactose free products. That helped. I never went back...
  8. nvsmom
    I get a bit nervous around bread too. I feel much better when I am out of the bakery aisle of the supermarket. LOL For me it is just nerves. I KNOW being near it won't hurt me but I don't relax by it... Sort of like I know the spider can't hurt me but if it lands on me, I still react (much) stronger than I should.
  9. nvsmom
    Which test was positive? The deaminated gliadin antibodies (DGP) and endomysial antibodies (EMA) tend to go down faster than the tissue transglutaminase (tTG ) tests do. You MAY see a decrease in the DGP or EMA in the first three months gluten-free, but as the others said, the tTG can take many months to a couple of years to get down to normal. For example...
  10. nvsmom
    That lethargy and brain fog may still be your body adjusting. Three weeks gluten-free is a short amount of time. It usually takes months for symptoms to stop seesawing, so you are doing really well so far! Hang in there.
  11. nvsmom
    Ooooh, good tricks, ladies!
  12. nvsmom

    ARCHIVED Ate Some.

    nvsmom replied to Kaleab's topic in Coping with Celiac Disease

    LOL Onwards and upwards. You sound smarter about this (except for that cookie) than most adults. Good for you. Stay strict or it will catch up to you in a few years, and you don't want something knocking you back when you are in your prime. Best wishes.
  13. nvsmom
    I agree with the others. With those positive results, there is no doubt that you have celiac disease. Most celiacs are only positive in one or two tests, not ALL of the tests they had done. That's about as positive as you can get. The last stats I saw stated that the biopsy has a sensitivity as low as 80%. That means as many as 1 in 5 celiacs end...
  14. nvsmom
    I agree with everyone. It could be FODMAPS, or it could still be (seronegative or early) celiac disease, or it could be non-celiac gluten sensitivity (NCGS) which affects somewhere between 5 and 20% of the world. If it is celiac disease, then retesting on all the tests is called for. If it is FODMAPS, then avoiding those foods will help and it will...
  15. nvsmom

    ARCHIVED Lost

    nvsmom replied to beth01's topic in Coping with Celiac Disease

    To test for postural hypotension, lay down for about 5 minutes and take your blood pressure, then stand up and immediately take your blood pressure while standing. If you have postural hypotension your blood pressure will fall for the second reading while you are standing. For most people, when they stand, their blood pressure will increase; dropping BP...
  16. nvsmom
    Cheating will set you back a few weeks to a month. If you cheat repeatedly, it will set you back further because autoantibody levels will start to rise. The tissue transglutaminase antibodies (tTG IgA and tTG IgG) can be very slow to change. I was gluten-free for about a year (with two known accidents in the early months) before my tTG IgA levels came...
  17. nvsmom
    Yep, withdrawal... It can be nasty. I remember being so tired, cranky and a horrible, multiday migraine. Yuck. Mine lasted close to two weeks as well. Ditto the others. You should consider getting tested before going gluten-free. Accurate blood tests require gluten is eaten in the 2-3 months prior to testing. If you wnat to test in the future, you...
  18. nvsmom
    I don't believe anything above a zero is positive. These antibodies exist in our bodies but the level is usually very low and not doing damage. This will be true of most autoantibodies and hormones... Think of a pregnancy test - a woman always has the hormones but the amounts shift radically while pregnant and will give a positive test. Unfortunately...
  19. nvsmom
    A weak positive is usually celiac disease, and a strong positive is almost always celiac disease. Your tTG was over double the upper normal limit... I'm afraid that is a pretty strong positive. A weak positive would be something like a 13; your result is pretty high. Some celiacs do have super high results in the hundreds but I don't think that is the...
  20. nvsmom
    I have osteoarthritis, and I had arthritis caused by celiac disease. The Osteoarthritis is always there and doesn't come with fatigue and flu-like feelings like the celiac disease related arthritis. That autoimmune arthritis (for me) would start with fatigue, then I felt like I was coming down with a flu that I would never fully get, followed by hairloss...
  21. nvsmom
    Sounds like you're doing well with your diet. You are absolutely right about reactions. Even the experts agree that a celiac reaction can begin within a minutes to 72 hours later, and that's just the beginning. It takes most two or so weeks to get it out of the system even if the obvious symptoms have disappeared.... Diagnosing celiac disease would...
  22. nvsmom
    Many celiacs find that hair thickness improves after a couple of months gluten-free. Mine did too, but I have other autoimmune problems so I still go through bouts of hair loss a few times a year (I'm not anemic at all or have any vitamin deficiencies). I tend to wear my hair in a short bob, and straight, to disguise the loss of hair. I can't wear...
  23. nvsmom
    L-glutamine is thought to help with muscle repair, and may help your intestines heal a bit faster. Some doctors are behind this but not all - my doctor recommended it to me.
  24. nvsmom
    If she is not eating anything while there, or walking through a flour dust cloud, then it is most likely not celiac disease or non-celiac gluten sensitivity (NCGS. for which there is no test. That disease and sensitivity are triggered by consuming gluten, meaning it has to get inside and onto your mucus membranes. Celiacs can handled normal baked goods...
  25. nvsmom
    LOL I had a rabbit a few years ago. He would get frisky and run and jump off the walls but I can't see him doing the hurdles.... itty bitty brains but cute.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.