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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    The only test you did that tests for celiac (as far as I can tell) is your anti-gliadin IgA whish is positive at 13. As you said, your next step is to try blood testing. The most common tests are: ttg IgA and IgG EMA IgA total serum IgA DGP IgA and IgG I'm not sure how accurate the enterolab tests are (did not do them) but I have heard they tend...
  2. nvsmom
    I felt very unhappy my first few weeks gluten-free. I had headaches and was tired and my mood was very bad. I believe it was some type of withdrawl because it did pass eventually. Celiac can affect your mood and cause depression. You may need to eat gluten-free for a few months to see an improvement in that area. I have been eating gluten-free for 6 months...
  3. nvsmom
    I was diagnosed with just blood work so I'm biased on simply accepting a positive blood test as indicating celiac. Those DGP tests are fairly specific to celiac disease as far as I know. If the doctor is implying that her disease hasn't progressed much yet, then great! Although I have no idea how he can tell that from the blood work.... either way, she...
  4. nvsmom
    Those first couple of weeks were hard on me too. I felt really poorly, tired and cranky, and I had a migraine that lasted over a week. Hang in there and you'll probably feel better soon. Good luck!
  5. nvsmom
    I'm sorry to hear of your daughter's diagnosis. I know there is a link between many autoimmune disorders and celiac (and Hashimotos especially) but I don't have any stats to quote for you. I do have one cousin who is celiac and her brother has RA. Based on what I know of his disease, if your daughter has an active form of the disease, she should probably...
  6. nvsmom

    ARCHIVED Pms Symptoms

    nvsmom replied to radgirl's topic in Related Issues & Disorders

    I have a bit less bloating and cramps. My greatest improvement was in the headaches; I used to get a migraine for a week. Since going gluten-free I have had a two day headache for pms once.
  7. nvsmom
    Evenings were definitely the worst time for symptoms; I would get more pregnant looking as the day wore on. LOL Joint pain and stiffness was a big one for me, and it's finally STARTING to improve after 6 months on the diet. That symptom takes a while to go for many people, so be patient once you go gluten-free. Good luck with your testing!
  8. nvsmom
    I agree with Neroli. Good luck to him; I hope his gluten trial goes smoothly!
  9. nvsmom
    I believe some have had tests done through Enterolab such as stool tests. I have never used them, or looked into them, but some people around here seem to have been happy with their product. It could be that your 8 yo is a non-celiac gluten intolerant. Those with NCGI have pretty much all the same nasty symptoms as a celiac, just minus the damage to the...
  10. nvsmom
    I haven't had a shopping trip to Montana since the 80's! LOL I'm always so jealous of how much cheaper everything is down there; from books to food, to clothes to cars to electronics... I know many people who order stuff delivered to an American friend who then ships it up here to save a bundle. Even when our dollar is on par, we spend a good 25% more.....
  11. nvsmom
    Here's another microwaveable bun recipe: We generally substitute coconut flour for almond flour due to allergies. I make a batch of the mix and keep it in a fridge. Just grease a bowl, crack an egg, add 1/4 c of mix and nuke it for 90 seconds. We like to give it a light toasting afterwards too. For a cupcake, add vanilla, extra sugar and some...
  12. nvsmom
    Poor girl. I get the same stomach pain from dairy as I do from gluten (minus the bloat and headache) so I agree with Karen's suggestion to cut all milk consumption. It can't hurt; drinking a cow's breast milk probably isn't really a natural thing for humans to do anyway. If you are worried about calcium, just add a supplement; calcium isn't easily...
  13. nvsmom
    If your son fears needles, perhaps using a distraction, like "Buzzy" could help. Open Original Shared Link I think its a good idea to get blood tests done. It's not overly invasive (not ideal I know) but it could give you an idea if he has an autoimmune disorder, and if so, then you can be on the look out for other autoimmune disorders since he has a ...
  14. nvsmom
    Yes, I'm in Canada. Up here Smarties are candy coated chocolates with a hard shell of varoius colours, a lot like M&M's (I liked that joke BTW ). They have Wheat Starch on the ingredient list and Wheat is listed as an allergen at the bottom of the ingredients. (we have a law that all major allergens like soy, wheat, milk, eggs, nuts and mustard must...
  15. nvsmom
    I agree with Ravenwood, see your GP and get tested right away. The blood tests are a quick and easy thing. The most common celiac tests are: TTG IgA and IgG EMA Iga total serum IgA DGP IgA and IgG The first two tests are the most common. The third test is not actually a celiac test but it checks whether you have enough IgA to register a positve...
  16. nvsmom
    (hugs) Hang in there. Those first few weeks are tough. I felt very tired and grumpy for a while. It was like pms X10. It definitely is harder to mourn the loss of a previous way of eating and make that extra effort to eat in a new way when your body is making you feel bad. It will slowly get easier and your body will regain health. Best wishes.
  17. nvsmom
    Beachbirdie is completely correct. I am almost positive that I've had thyroid issues for 15 years but the doctors would just check my TSH, which was a high normal or just above the range, and tell me I was normal.... I accepted that and didn't ask to see the specific lab results; that was a HUGE mistake on my part. My doctor finally "found" a thyroid problem...
  18. nvsmom
    It takes the body a long while for some to get feeling better, you could be one of those. With the hot and hot symptoms, it sounds like a flu to me. Are you coming down with something? From my own personal experience, I know those with Hashimoto's can go hot and cold and get anxious if they swing from hypo to hyperthyroidism as the autoimmune attack...
  19. nvsmom
    My kids tested negative but I took them off gluten anyways. 2/3 of them have shown some real health improvements on a gluten-free diet. I guess I figure, what could it hurt? They now eat more whole foods and have all grown quite a bit since going gluten-free. It's an inconvenience for me as I have to pack their food everywhere we go, but they feel better...
  20. nvsmom
    I've had glimpses of energy over the last fe weeks; I think I'm getting my levels close to where they should be. I am pretty sure I've never been hyper, I can fall asleep at the drop of a hat. Those hyper symptoms sound nasty. I eat fish a couple of times a week but I'm on the Canadian prairies so fresh fish is expensive... and not really that fresh...
  21. nvsmom
    My 5 year old will be jealous, ours definitely have gluten, I've checked a few times since the summer. Wierd.
  22. nvsmom
    Whoa, that is low! LOL I see it did go up a bit over time but not much, eh? I'm curious if my thyroid meds will throw me hyper once I start to heal... I've tended towards the "slug" range for thyroid issues so going hyper would be a switch. I've heard it's connected because we don't absorb fats... It is a nice bonus (if it's healthy) since...
  23. nvsmom
    Is there a celiac support group in your area? They sometimes offer get togethers for kids or teens; I know the one in my city has a couple of teen parties and a week long summer camp just outside of town. Contacting your local support group might be a good way to find other kids. I'm afraid I won't volunteer my boys as pen pals. They are a bit younger...
  24. nvsmom
    Your numbers and symptoms are very similar to mine, except I got stomach aches too; otherwise the joint pain, bloating, and menstral issues can often be attributed to celiac... my headaches and thinning hair were linked too. The only symptom you have that I don't is problems with the TMJ but there are others around here with jaw pain too. My celiac tests...
  25. nvsmom
    I'm sorry that she has been so unwell. That's hard on a family. Many of us went through a withdrawl for the first few weeks where we actually felt a bit worse... I know you didn't want to hear that. I personally had a headache that lasted well over a week, and it was a doozey. I was also very tired and incredibly cranky; I was not at my mommy best for...
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