-
Posts
4,529 -
Joined
-
Last visited
-
Days Won
62
Content Type
Profiles
Forums
Events
Blogs
Latest Celiac Disease News & Research:
Everything posted by nvsmom
-
ARCHIVED Started My 1 Month Trial- Amazing Results So Quickly!
nvsmom replied to Zibby's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Sublingual tablets in vitamin are absorbed well by celiacs because it is absorbed from the mouth rather than the intestines. I too was only low in vitamin D and I figure that goes with being Canadian... The sun sets shortly after 4:00pm now a days. Did they determine what is the cause of your hypothyroidism? I ask because I barely tested positive for... -
ARCHIVED Confused.... A Little Frustrated
nvsmom replied to nineof9's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That's frustrating when the tests aren't absolutely clear. Something is going on with your slight positive result, and chances are it is celiac, but I understand your frustration with wanting to know "for sure". If you do go gluten free before your test, be aware that some of us go through a withdrawl of sorts. Mine included a migraine that lasted for... -
ARCHIVED Feeling Great But Can't Eat!
nvsmom replied to AshBil's topic in Coping with Celiac Disease
I find that I get full much much faster than before I was gluten-free. I usually only eat off salad plates because I get enough from that... I'm going with it since I ate too much before. -
ARCHIVED Started My 1 Month Trial- Amazing Results So Quickly!
nvsmom replied to Zibby's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Ahhh, the withdrawl headache... that was a doozey for me. I remember is lasting the better part of a week and it hurt to turn my eyes or change direction. Ouch. On the bright side, that was the last major migraine I've had in 6 months, and I used to get a migraine at least a couple of days each week. I was also extremely grumpy. EXTREMELY. I knew it... -
ARCHIVED Blood Test - Help With Results
nvsmom replied to C.H.'s topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It looks like your wife has a positive anti-tissue transglutamase IgA (TTG IgA) test but I'm not sure because the reference range was not given. Did the lab tell what the "normal ranges" were that they compared your wife's results with? For example, a patient might have a result of 34 on a test; if the reference range is 0-20 then it is positive but if the... -
I've had a LOT of sciatic pain over the last 10 years with bulging discs. Eventually one of my discs burst and pinched off and killed the sciatic nerve that was causing me the most problems. It caused some paralysis down my leg right to my big tow... on the bright side, it doesn't hurt anymore in that spot. LOL I do wonder sometimes if the sciatica was...
-
ARCHIVED Bloody Diarrhea When Glutened
nvsmom replied to whoknewafter25years's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
With hemorrhoids, if your bowels get really irritated, like with diarrhea or constipation, bloody stools can happen. It can range from a bit of red on the tissue paper to full on disturbingly red toilet bowl water. Could it be a hemi? They're harmless, just a, well.... pain in the butt. I hope that's all it is for you. Best wishes. -
ARCHIVED Biopsy ...so Frustrated At Myself
nvsmom replied to VeggieGal's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I was diagnosed on blood tests alone too. A positive is a positive whether it's a blood test or endoscopy... and you had two positive blood tests! Adios gluten is right! And just tell your family that you had the blood tests, and "went in" for the endoscopy, and you tested positive... they don't need to know your testing details when you are trying... -
ARCHIVED Could I Have A Gluten Intolerance?
nvsmom replied to BonnieRadcliffe's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The symptoms you describe are experienced by many people on this forum so I think some sort of (non-celiac) gluten intolerance (NCGI), or celiac disease, could be the cause of your problems. GI symptoms don't have to occur for there to be an intolerance; I have one friend who is NCGI and the only symptoms she gets is joint pain... I'm amazed she figured out... -
ARCHIVED 20 Month Old...starting Diagnostic Process
nvsmom replied to wembles's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
There are a few abnormal numbers in there; high results aren't always better in blood work. For example, RDW has to do with the size consistancy on the red blood cells; his RDW is a bit high which can indicate (hemolytic) anemia or low levels of B12 or folate (which also causes anemia). Lymphocytes and eosinophils are also high; this can indicate an infection... -
ARCHIVED How/when Were You First Diagnosed With Celiac?
nvsmom replied to revolverblue85's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That's great you've found the cause... I hope you have a speedy recovery. Hang in there through the first couple of months. They are the toughest as many of us needed to learn new ways to eat, and those first two weeks can feel lousy if you hit withdrawl. It's worth it in the end if you stick it out. Good luck! -
ARCHIVED Celiac's Not Sticking To The gluten-free Diet
nvsmom replied to tennisman's topic in Coping with Celiac Disease
I can see where it is easier for those with symptoms on the bad end of the spectrum to follow the diet; and those with other diseases. I suspected celiac in myself for over a year before I finally got myself tested. I had been told decades ago that stomach aches were normal for me, and I believed that doctor for almost 30 years (dumb eh?)... well, I partially... -
ARCHIVED Question About Gluten Sensitivity
nvsmom replied to vnm07's topic in Parents, Friends and Loved Ones of Celiacs
If your son was gluten free when he was tested for celia, his results probably aren't accurate. Plus very young children do not test well for celiac; they have a very high false negative rate. There is a chance his negative result was not accurate, or he could be a nonceliac gluten intolerant person. Does your son drink milk? Perhaps his lingering "d... -
ARCHIVED 20 Month Old...starting Diagnostic Process
nvsmom replied to wembles's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The others gave you great advice... unlike the health care practitioners you've met with. Sheesh! I'll juist add a few things: Celiacs are often lactose intolerant because of the damage to their gut. If anything, I would further cut dairy from your little guy's diet. As the others said, we're not cows and technically we don't need it. Coconut milks... -
ARCHIVED New With Questions
nvsmom replied to breiec's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
(hugs) I'm glad you know for sure and hope you have a fast recovery. -
ARCHIVED A Year, A Novel, A Thank You
nvsmom replied to Adalaide's topic in Coping with Celiac Disease
(((HUGS))) Happy healthy anniversary. -
ARCHIVED Celiac's Not Sticking To The gluten-free Diet
nvsmom replied to tennisman's topic in Coping with Celiac Disease
It's more of a head shaker for me. Just like my uncle who had lung cancer and still smokes, and a diabetic friend who eats a bunch of sweets.... Just not smart... and it makes them seem...weak to me. -
ARCHIVED Good Alternative For A Wheat Bag?
nvsmom replied to nvsmom's topic in Coping with Celiac Disease
Oops. Thanks. I feel a bit foolish for missing that... -
Hi all, It's been really really really cold here the last few weeks so I've been taking a microwavable heating bag to bed with me. I was also feeling a tad bit off during that time and then my hubby pointed out that my microwaveable bag is a wheat bag. LOL I stopped using it about a week ago and I feel really good now... I don't know if it's a coincidence...
-
ARCHIVED First Week Dealing With Celiac Disease
nvsmom replied to MBMike's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
That's great you are feeling better... mostly. For some, like myself, the first few weeks are tough because some go through a withdrawl of sorts; I remember being incredibly grumpy, tired, grumpy, very headachey, and grumpy. It wasn't fun... my family is lucky to have survived me. Like you, during that time, my GI issues and migraines mostly resolved,... -
ARCHIVED Testing Accurate?
nvsmom replied to TammyTE's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I would say, based on her AGA IgG, that she is a celiac and does not just have a gluten sensitivity. That means that she has an autoimmune disease, which she will not grow out of, which causes her body to attack her small intestine when gluten is eaten (it acts like a a trigger). If she does not eat gluten, her body will not produce the autoantibodies that... -
ARCHIVED New With Questions
nvsmom replied to breiec's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You do have a very positive ttg IgA test. That is most likely an indicator of celiac but it could also be from diabetes, thyroid disease or even autoimmune liver problems, although it is less likely. There a few other blood tests that can be done: AGA (antigliadin antibodies)-IgA AGA-IgG EMA (anti-endomysial antibodies)-IgA EMA IgA is considered to be... -
ARCHIVED Help, Again. Please
nvsmom replied to DavinaRN's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Oh geez. Good luck with your testing! I hope you never have another experience like that again... Yikes! -
ARCHIVED Ummmm...is This Normal For Starting Out Gluten Free?
nvsmom replied to shellybean's topic in Coping with Celiac Disease
I don't know about being glutened, or the stats you mentioned, but I wanted to mention that I too felt really off those first few weeks. I've rarely been so grumpy and tired... My poor family! LOL It didn't last. By three weeks it was done so hang in there!- 14 replies
-
- bloating
- gluten bombing?
-
(and 2 more)
Tagged with:
-
ARCHIVED Celiac And Hypoglycemia
nvsmom replied to HeazerHacker's topic in Coping with Celiac Disease
I had some problems with this that resolved within about 3 months of being gluten-free. I never saw a doctor about it, but if I didn't eat every 2-3 hours, I had the shakes and got headaches. I have low blood pressure so that didn't help... I ended up light headed and shaky a few times a week. After 6 months gluten-free, this very rarely happens to me...