Jump to content

nvsmom

Advanced Members
 View Profile  See their activity

  • Posts

    4,529

  • Joined

  • Last visited

  • Days Won

    62

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by nvsmom

  1. nvsmom
    Sorry to hear of your diagnosis. ANA levels don't always indicate how active the rheumatic disease is, but it often does. A low positive ANA is probably a 1:80 or 1:160 titre. Have your platelet levels been checked recently? I ask because thrombocytopenia (platelets are attacked so you can't clot) can be a symptom of lupus. I had a severe form...
  2. nvsmom
    I too would do a bit more testing just because I find it much easier to cut out convenience foods when I have "proof" that I must. I got so used to my symptoms that they weren't a driving factor for me to change my usual diet.... I probably would have cut my gluten down, but now it is completely out of the house so my kids are gluten-free too even though...
  3. nvsmom
    My morning gluten reactions were always most noticeable for painin the mornings. I remember getting terrible stomach aches after eating waffles... I thought it was the syrup. Lol. It sounds like you probably need to stay gluten-free. Hope you feel better.
  4. nvsmom

    ARCHIVED Rebound Pain?

    nvsmom replied to M-Rods's topic in Coping with Celiac Disease

    I would get what felt like a gluten caused pain when I ate milk products on an empty stomach. Could that be it? Something didn't agree with you. It could have been crosscontamination (gluten) or another food irritant. I have had periods of stomach irritation from nachos, beer sticks... the more processed the worse it gets me. It would usually last a couple...
  5. nvsmom
    Southern Alberta... so we don't get as cold as you but we're so close to the mountains that we get less than 3 months of frost free days a year. LOL We can Winnipeg "Winterpeg"... I can't imagine those cold Manitoba winters!
  6. nvsmom
    With the swollen feeling in your throat, and all your symptoms, it could be a thyroid problem too. The symptoms largely fit. Try googling the symptoms and see what you think. Can you get your celiac test results and the reference ranges? There are a few tests that many are knowledgeable about here and we might be able to advise you on what was done. If...
  7. nvsmom
    My worst week was my second week. The withdrawl migraine was awful and my stomach wasn't much better yet. I really started seeing improvements after the 3rd or 4th week. There is a chance that this is related to something else. The stress of diagnosis could have kicked another autoimmune attack into gear that is affecting your gut. If you are certain...
  8. nvsmom
    I agree with the others, it's more about how you react to the gluten and what symptoms you show... With your pregnancy analogy, you could compare how some people tend to sail through pregnancy and feel great, others have morning sickness, some have other health complications, and yet others tend towards multiple births... there's a lot of room for variation...
  9. nvsmom
    I'm sorry you felt so badly! Sounds like a bad cc situation, a hyperthyroid situation, or a really bad virus or reaction to something. I hope you feel better.
  10. nvsmom
    My gastrointestinal symptoms and migraines are much much better! It was nice to get rid of that stuff... I didn't realize how often my gut and head hurt until it was gone! It's amazing what you get used to. I do have a few other health issues that I'm working on sorting out so I'm not fine yet, but I'm working on it!
  11. nvsmom
    I'm pretty sure that I've been a celiac my entire life; I know I've had symptoms since my early school days... I remember being doubled up on the couch with pain. Because I had no clue (and my doctor was clueless) I wasn't diagnosed until I was 38. I think it's possible that living as an untreated celiac caused the thyroid problems to show up, or at least...
  12. nvsmom
    I found out I had Hashimoto's when I requested a TSH test, along with nutrient levels tests, when I found out I was a celiac. I've suspected that I was hypothyroid for about 15 years but my doctors always told me that I was normal, or just a bit high, and not to worry about it... I've since learned not to be so trusting and request the lab results because...
  13. nvsmom
    My stomach aches and migraines are mostly gone, and I usually had one or the other all the time. My bloating went way down in my gut... I thought I had a beer gut and was becoming apple shaped, it was bloat. My hair started to grow back in (but I lost a bunch again due to another issue). My "C" cleared up after 2-3 months but that could have been from thyroid...
  14. nvsmom
    I personally noticed my stomach aches and headaches were much less within a couple of days but I went through a withdrawl of sorts so I felt extra tired and cranky. Overall, in the first two weeks I really didn't feel much better. After a month or two I really noticed a difference, especially in the gut... I no longer looked pregnant. lol. Now that I'm 6...
  15. nvsmom
    I was diagnosed with a positive ttg IgA and a positive EMA IgA... same tests that you had done. Those were good enough for me but it's a personal choice whether to pursue further testing. Welcome to the club. Hope you feel well soon.
  16. nvsmom
    From what I've read, yes, once your body has started making antibodies against itself you are more likely to develop another autoimmune disease than someone who does not have AI diseases. Some medical circles are even starting to classify the diseases into groups: celiac disease falls into the Type III Polyglandular Autoimmune Syndrome. Heres's a quick overview...
  17. nvsmom
    (hugs) I understand your frustration. I was getting some good regrowth on the gluten-free diet and then it started falling out at an unprecedented rate. I too have a comb over and a few bald spots... it's hard to handle. Unfortunately, I am almost sure that my hair loss was related to starting thyroid treatment or a rhuematic AI disease. I hope it's...
  18. nvsmom
    Your daughter sounds gifted in reading if she is that far ahead. Not many kids are gifted in multiple areas but it sounds like reading is her thing. It would be nice if the teachers could give her grade three work, or use her skills to teach the other kids... it's tough on kids when teachers don't have the time or resources to advance kids in their gifted...
  19. nvsmom
    I would guess the fever and snack were a coincidence. I have never had a feverish feeling from gluten (although I have during an autoimmune attack of another sort). My guess is that she has a virus. Either way, I hope she feels better soon. We homeschool our three boys and find it is a great alternative to regular school for bright kids who have a hard...
  20. nvsmom
    Ditto Karen. Unfortunately it sounds like something else is happening, and since autoimmune diseases often run in groups, another AI could be the cause. I hope you get it figured out soon.
  21. nvsmom
    If you are comfortable going gluten-free without a celiac diagnosis, i say go for it. I have half a dozen friends who are gluten-free due to non-celiac gluten intolerance and to treat other autoimmune problems. They don't have a specific, doctor given diagnosis either but they sure do feel better now. On the other hand, if you need a diagnosis for insurance...
  22. nvsmom
    I recently saw someone posting about finding a gluten-free perogy recipe so I thought I'd post my aunt's recipe here. I haven't tried it yet but it has been Ukranian approved! Below is her dough recipe. You can fill with cheddar and potato or saurkraut or whatever you fancy. Pyrogys Dough (Gluten Free) ( I batch dough makes 30 depending on thickness...
  23. nvsmom
    Your reaction, in some ways, sounds more like an allergic reaction than a celiac reaction to me, but we all react very differently so there might be someone on the board who is similar. Fatigue and depression are not unusual to celiacs (or many other autoimmune diseases for that matter) but the chest tightness and lump sounds asthmatic. You could be a...
  24. nvsmom
    Mouth sores (and fatigue) are commonly found in other AI diseases too. A few months back I had some sort of AI flare up with deep fatigue, arthritic joints and hair loss... when it first started I thought I was getting sick because of the fatigue, aches and pains, and a sore throat but it wasn't a sore throat, it was a round of big mouth sores (mostly on...
  25. nvsmom
    Your FT4 is still pretty low and in the bottom 15% of the normal range. From what I understand, most hypothyroid /Hashimoto's patients feel best when their FT4 is above 50% and closer to 75%; for you that would be 1.3 to about 1.6. My FT4 is just above where yours is (with synthroid) and I still feel pretty fatigued. Your TSH might do better near a 1....
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.