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nvsmom

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Latest Celiac Disease News & Research:

Everything posted by nvsmom

  1. nvsmom
    It's the type 1 diabetes that celiacs are at higher risk of getting. Type 2 diebetes (adult onset - usually due to obesity) has the normal risk for us... which is still not exactly low now a days. Celiacs with type 2 diabetes should keep an eye on it though because it could be type 1 misdiagnosed. It's tough cutting back on sugar.... good for you! ...
  2. nvsmom
    More people have NCGS than celiac disease. You may be correct that it could be NCGS - the symptoms are basically the same anyways. Give the diet a good 6 months before judging it's effectiveness. Some symptoms change quickly, but others, like anemia and arthritis, will take quite a while to improve. Best wishes.
  3. nvsmom
    Most doctors focus on the tTG IgA and EMA IgA. The EMA IgG is not usually used unless the patient is deficient in IgA and needs to rely on IgG based celiac tests. The EMA tests are usually given as a follow-up test to the tTG test. It is very similar but tends to indicate the disease is more advanced. I think doctors like the IgA based tests because...
  4. nvsmom
    You don't need to see a GI specialist except if you want that endoscopy (I skipped that, and the Gastro, too). Your GP should be able to order the follow up tests for you. Request the bone density scan. It's a good thing to check. Request nutrient levels are checked. Ask for: D, A, B12, Ca, K, Mg, Zn, Cu, folate, ferritin. Daibetes (T1) and...
  5. nvsmom
    Welcome to the board. You may be asked, unfortunately,to go back on gluten for further testing at the GI's office. You may want to call the office and find out if they'll want that. It might be easier to go back on gluten sooner rather than later in your recovery. Once you are feeling well, it will be tough to make yourself sick. The recovery...
  6. nvsmom
    Be careful with Amy's Pizza. I think I remember reading somewhere that it is made in a facility that uses wheat. I could be wrong - I don't buy Amy's.
  7. nvsmom
    That's what I read too; looks all negative. tTG normal range is 0-3 and AGA (anti-gliadin antibodies) range was 0-19. The SGA tests are not very good, and few doctors use them any more. Look on page 12 of this report: Open Original Shared Link You can see the sensitivity can be as low as 17% for one AGA test, which means that 83% of celiacs would be...
  8. nvsmom
    ...But doctors often do treat them differently. It should all be the same, I agree, but it often isn't.
  9. nvsmom
    Wahhhh! I use the gluten-free Rice Krispies for the kids for treats and on vacation. Other gluten-free brands cost so much more. Dang.
  10. nvsmom
    I understood it like Cyclinglady did: CI can possibly bring on celiac disease but it doesn't say that curing the CI will cure celiac disease. A number of phyiscal traumas or illnesses can do this like pregnancy or mono, and this is true for all autoimmune diseases. It may bring down your anti-gliadin test results (AGA IgA and AGA IgG) but it doesn't say...
  11. nvsmom
    Yeah... it takes a few months to get really used to this way of eating. And giving up convenience foods was really the hardest part. Smack your hubby on the head with a rolled up magazine for me. That wasn't thoughtful... Opposite of thoughtful really. LOL I know it is (a bit) tough on the spouses to help us stay gluten-free but he's gotta know...
  12. nvsmom
    The World Gastroenterology report on celiac disease has this table in it: Table 1 The modified Marsh classification of gluten-induced small-intestinal damage [33,34] Stage 0 Preinfiltrative mucosa; up to 30% of patients with dermatitis herpetiformis (DH) or gluten ataxia have small-intestinal biopsy specimens that appear normal Stage 1 Increase...
  13. nvsmom

    ARCHIVED Sparse Bangs

    nvsmom replied to sella's topic in Related Issues & Disorders

    My hair thinned at the front due to celiac disease and hypothyroidism. I had very thick hair as a child though. Now... I would have to start my bangs back on the top of my head. LOL If your hair changed, I would suspect disease. If it has always been thin I would guess it is genetics or possibly a deficiency you have had since infancy. Best wishes...
  14. nvsmom
    True. Because you don`t need the accommodations yet, there is no rush to test now if you don`t want to. I`m in Canada, and homeschooling too, and up here they generally trust whatever the parent tells them. For instance, my boys attend classes with the local public school board through the homeschool program. My oldest has a tree nut allergy, mild asthma...
  15. nvsmom
    With foods like nuts, a scrub in water should remove gluten traces. I really would scrub them to ensure it isn`t in the cracks and dents of the nuts. I just avoid those that could be contaminated - I`m too lazy to wash it. Plus I`m not sure if I would do a good enough job. Generally speaking, if something says it could be contaminated with trace gluten...
  16. nvsmom
    Good ones to check are D, B12, folate, A, Mg, Ca, Fe, ferritin, K, Zn, and Cu. Remember supplements may not be absorbed well until healing is underway (often after 6 months gluten-free) so discus large doses or injections with the Dr, until numbers really improve. A bone density scan is a good idea, especially if Ca is low. It`s also a good idea...
  17. nvsmom
    Good luck!
  18. nvsmom
    Toddlers are the hardest to test. Usually they say 2 and under is tricky. If she resumes eating gluten, remember that she'll need to be retested every two years for life. It might be safer to just keep her gluten-free until she wants to test.
  19. nvsmom
    Your pediatrician is wrong. Celiac can develop at any time in life from early infancy well into the senior years. Plus, the disease needs to build up to quite a high level (of inflammation and intestinal damage) before it can be caught. Tissue transglutaminase levels (tTG) can be low in children and slowly build over the months and years until it finally...
  20. nvsmom
    I'm glad you found an answer! Welcome to the club. I hope you are feeling better soon.
  21. nvsmom
    I agree. The positive tTG IgG means that your body is attacking the endomysial layer of your intestines. That will never happen with NCGI (NCGS), in fact that is the defining difference between the two. Take a look at this paper: Open Original Shared Link The (SN) sensitivity of the tTG IgG test is low at 40% (meaning it misses over half of all celiacs...
  22. nvsmom
    Celiacs, or people with non-celiac gluten sensitivity (NCGS), can have other food sensitivities but not all do. The most common food problem for celiacs (before they have healed for a good 6 months) is lactose intolerance because the villi in the intestines where the enzyme that digests milk (lactase) is made are damaged. Other sensitivities that can pop...
  23. nvsmom
    If your rash is dermatitis herpetiformis (DH) then you may end up with false negatives. Those with dh have a notoriously high false negative rate for the blood tests and endoscopic biopsy. Often a biopsy beside the rash is needed. Were you eating gluten in the 2-3 months before the test was done?
  24. nvsmom
    This report by the World Gastroenterolgy Organisation on Global Guidelines for Celiac Disease, shows the specificity of the tTG IgA and EMA IgA tests (see pages 10-12): Open Original Shared Link Specificity refers to what percentage of positive tests are caused by celiac disease. The EMA IgA has a specificity of 98-100%. That is as specific as it can get...
  25. nvsmom
    Good stuff! Just make sure they take 6 or more samples - 6 is a good minimum but many doctors only take 4. And you probably won't know anything from their visual scan, most celiacs' intestines look fine if not a bit inflamed. Not many celiacs can be diagnosed without the biopsy. Get them to run the full celiac panel because the tests can miss some...
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