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nvsmom

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Latest Celiac Disease News & Research:

Everything posted by nvsmom

  1. nvsmom
    I don't think I became more sensitive, but I think my reaction became more obvious. Before I was diagnosed I was constantly feeling poor - it was my normal. After being gluten-free for many months, illness was no longer my normal so if something bothered me, it was much more obvious. KWIM? For example, when I had a stomach ache after almost every meal...
  2. nvsmom
    I can only answer about Hashi's from my own experiences, and I'm not even sure that I have Hashi's because my TPO Ab has never quite exceeded normal. I do have other autoimmune diseases so I am assuming my thyroid doen't function well due to Hashi's. Am I correct I can have normal TSH levels and still have Hashimoto’s? It's possible but more people e...
  3. nvsmom
    Getting a diagnosis is one of the most stressful parts of this disease. Hang in there.
  4. nvsmom
    Welcome to the board. You might as well get tested because so many of your symptoms could be attributed to celiac disease. Because you already have thyroiditis (Hashimoto's?), you are more likely than the regular population to get celiac disease - autoimmune problems tend to run in packs. If you get tested, try to get the full test panel run. Celiac...
  5. nvsmom
    I think it may be more of a matter of not having the proper gut bacteria that can help with digestion. Many people I have talked with about this said that it took them a while to adjust to a greater amount of raw fruits and veggies when their diets changed. Maybe it takes a while to get accustomed to the raw foods. It could also be other food sensitivities...
  6. nvsmom
    Welcome to the board. It can take weeks or months for symptoms to really calm down even if you are eating safely gluten-free. Your belly will get flat again and start staying flat for longer periods of time. Celiac recovery is often two steps forward and one step back - Just hang in there.
  7. nvsmom
    LMAO
  8. nvsmom
    LOL Me too. Never done it. Part of that reason is that I have the type of "all or nothing" personality that wouldn't do well with just one cheat.... It could be a slippery slope.
  9. nvsmom
    Thanks Peter. I guessed that would be true. Now I just have to figure out if I can get past the psychological barrier of eating something with "wheat" in the ingredients list. LOL
  10. nvsmom
    If it is bright red it means that the blood is coming out, er, near the end - around the anus - and it is probably due to a hemorrhoid. Hemi's can make an incredibly shocking amount of blood from red spots on toilet paper to turning toilet water red to bleeding through pants. If the blood continues for a many days into weeks, it could need treatment. ...
  11. nvsmom
    My gluten-free son was offered a Menthos candy the other day and after reading the label (he's good about that) we found that it had wheat glucose in it, so he declined. I had never seen that as an ingredient before and although I assumed it was not safe for a celiac, I have found many websites stating that it is in fact safe for celiacs - as safe as distilled...
  12. nvsmom
    I still think soy sauce is a weird one. Why? Why would it need that? I remember being unpleasantly surprised when I learned that deep fryers needed to be dedicated gluten-free to be safe, but I suppose that is more of a cc issue. And Daura (supposedly) gluten-free beer. Yeah, someone needs to tell them that gluten -removed is NOT the same as gluten...
  13. nvsmom
    Dr Fasano, a leading celiac disease researcher, sya one needs 4 out of 5 of the following criteria for an "official" celiac disease diagnosis: symptoms of celiac disease while on a normal diet positive blood test positive endoscopic biopsy positive genetic test positive response to the gluten-free diet To be honest, I would guess that maybe 60% of...
  14. nvsmom
    I had constipation my whole life but I thought it was normal because I knew no difference. I am pretty sure I also had celiac disease since babyhood based on what my mother told me. I discovered I was a celiac in my late 30's and it took 9 months, and starting meds for hypothyroidism, before my C finally resolved. I think I was a bit slower than others...
  15. nvsmom
    Welcome back. I'm sorry the gluten challenge hit you so hard. Did you get tested after the challenge? If not, you might want to do it right away so you know if you are dealing with celiac disease or the more common non-celiac gluten sensitivity (NCGS), which has almost all the same symptoms that a celiac has. Hope you feel well again soon.
  16. nvsmom
    Your tTG Iga is normal but it is not at zero or low.... I would assume it means you are fine but you never know. Getting a few more tests, especially the DGP IgA, DGP IgG, and tTG IgG would most likely catch celiac disease if it's there. Again, remember that none of these tests will catch NCGS and it is much more common (about 6% of people suffer with this...
  17. nvsmom
    Wow. Weird. As a former substitute, I would just tell (hopefully a different secretary) that you have a health issue and need a bathroom key, and if they say no, I would consider not accepting jobs there (if it will be a problem)
  18. nvsmom
    For me that left side pain was related to constipation - the descending colon is there.
  19. nvsmom
    I've had issues with fainting a few times in the past. More commonly (up to a few times a day) I would get that tunnel vision one gets when they are a bit faint, and it almost always happened when I was getting up - postural hypotension. I generally have fairly low blood pressure but it tends to fall more when I stand up. I have a doctor who is giving me...
  20. nvsmom
    Good luck! I hope it makes a huge difference for you.
  21. nvsmom
    I was given a diagnosis of celiac disease with only a positive tTG IgA and EMA IgA too. With those two tests, it is a sure thing that you have celiac disease. As Cara said, even if the biopsy misses the damage (and it does about 20% of the time) you still have celiac disease. Page 12 of this report shows how specific the EMA IgA and tTG IgA actually...
  22. nvsmom
    That could well be celiac disease, including the low D. I had most of those symptoms for years too. I also have hypothyroidism so some may be attributed to that - I only mention it because hypothyroidism is more common among celiacs than the regular population so if it is celiac disease, it is good to get hypothyroidism checked out too. Do you know if...
  23. nvsmom
    Do you happen to have the normal ranges for those tests? Lab ranges can vary quite a bit. You might want to try to get the rest of the celiac disease tests run. It looks like he only ran the tTG IgA and that one can miss up to 25% of all celiacs. Lyme and SIBO might be worth looking into if you can't find answers. If all celiac disease tests come back...
  24. nvsmom
    I haven't read this entire topic but would like to warn you against cheating. The autoantibodies can stay positive in the body for YEARS after you go gluten-free. They don't stop being produced the moment you cut gluten from your life. I personally had autoantibodies (as shown by my tTG IgA test) still positive at about a year gluten-free, and I was even...
  25. nvsmom
    Huh. I thought the EMA IgA had about the same specifity as the DGP IgG but it's a bit tougher for kids to get a positive on that one as it tends to be positive once the disease is more advanced. It's a very similar test to the tTG IgA and is rarely positive if the tTG IgA is negative - I think I've only seen that around here once in the last two and a half...
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