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nvsmom

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Latest Celiac Disease News & Research:

Everything posted by nvsmom

  1. nvsmom
    I agree that while it could be celiac disease, it is unlikely. Probably a reaction. I've seen some pretty severe reactions to vaccines. Years ago my husband had to cancel a trip to Africa because of a severe and long lasting reaction to a vaccine that he was advised to get for his trip. If you think it could be celiac disease, you ma as well get the...
  2. nvsmom
    ITP used to stand for idiopathic thrombocytopenia purpura. It is an autoimmune problem. Thrombocytopenia is when you get low platelets for some reason or other. Platelets are responsible for clotting so if they are low you are more likely to bruise, get very heavy periods, and nose and gum bleeds. It can cause anemia BUT it can also be caused by other...
  3. nvsmom
    My boys all like the corn bread mix from BRM. We haven't had any noticeable problems over the last couple of years.
  4. nvsmom
    I know we all need and use RT3 but the majority of our T4 should be converted to T3. I believe there should be about 40% RT3 and 60% free T3; when those numbers gets reversed, for whatever reason, your body is a bit out of whack. I think there could be potential problems when RT3 is too high AND the free T3 is low. In that case it looks like your body...
  5. nvsmom
    It doesn't correlate in everyone, but yes, there is often a connection. It's funny, when I was younger I would think I was feverish but I was only 98 point something. That's actually a fever for me. LOL
  6. nvsmom
    To me, your TSH looks good. That lab's range is very wide but you are nicely placed close to a 1. If you are concerned about it, aske to check the free T4 and free T3. Those should be in the 50-75% range of your lab's normal reference range. TPO Ab will (usually) show if there is an autoimmune attack on your thyroid. Try taking your basal body temp...
  7. nvsmom

    ARCHIVED Any Ideas?

    nvsmom replied to ch88's topic in Related Issues & Disorders

    We (husband and ped) think our oldest son is very mildly autistic (what would have been mild Aspergers) but he was not diagnosed because we homeschool and he did not need special school accommodations or medication. Anyway, his behavior changed a fair bit when gluten-free and casein free. He could concentrate better and tolerate things much better than he...
  8. nvsmom
    Lactase pills might help you ease back into dairy. Mmmm, I love a well buttered, garlicky and peppered steak!
  9. nvsmom
    The most common recommendation is 1-2 slices of bread per day (or equivalent - noodles, muffin, cereal). 2-4 slices is on the high end and is a good idea if doing a short gluten challenge (like 4-6 weeks). Some say 1/2 a slice is enough, and that is often for the longer gluten challenges (closer to three months). Now those times are for the blood...
  10. nvsmom
    No they usually can not see the damage visually during an endoscopy. There are often signs of inflammation but the vast majority of celiacs need a biopsy for their damage to be seen. Hang in there. Many of us have had our problems brushed off or were told it's all in our head. I almost think it should be a sign of celiac disease. People often come...
  11. nvsmom
    My doctor did not want to up my synthroid but I was still hypo so I warned him that I would be upping it myself. I started breaking my pills and taking more. I warned him I would need more frequent prescriptions. He went along with it until I finally found a better doctor. I feel for you. That is a tough spot to be in. I hope it never happens again...
  12. nvsmom
    That's impressive that your doctor thought of celiac disease. For most doctors, I don't think it would have crossed their minds. Don't tr the gluten-free diet until testing is done because it can affect your results. If you have questions about your results (get copies) we can probably help you with it. My symptoms involved more stomach aches but...
  13. nvsmom
    The best thyroid tests (in my experience) are: TSH - should be close to a 1 (unless you are taking a T3 med like cytomel or armor) regardless of the normal range Free T4 and free T3 - should be in the 50-75% portion of your lab's normal reference range (if in the bottom 25%, you could be hypo) TPO Ab - should be pretty low Reverse T3 - should not be high...
  14. nvsmom
    A protein powder added to your smoothie is good way to sneak in protein. I used to add it to my coffee but if you use a whey protein powder make sure the coffee isn't too hot or it will curdle. Yuck. LOL
  15. nvsmom
    The only reason eating gluten-free is unhealthy is if you eat many processed gluten-free (junk) foods like cookies and muffins. gluten-free bread is not enriched with vitamins so if you relied on fortified grains for your vitamins, you could come up short. Otherwise, fruits, veggies, meats, eggs, dairy, and some grains (like rice) are all very healthy...
  16. nvsmom
    Ditto Colleen. I am an odd celiac who is high in Ca and B12. My only low vitamin was A and D was a low normal, but I blame that on being Canadian. Get your nutrient levels tested. Good ones to check are Cu, Ca, Mg, K, Fe, ferritin, B12, zinc, D, A and... I'm forgetting something. Hmm. If you do need to supplement, sublingual or liquid vitamins...
  17. nvsmom
    If you do stay gluten-free, without testing, it seems most people need to give the diet at least 3-6 months before symptoms steadily improve. Until then, it is often two steps forward nd one step back.... or more. I personally felt much worse at 3 months gluten-free compared to how I did at 1 month or 6 months gluten-free. It can take a long time. There...
  18. nvsmom
    Glad it's done. Good luck with the diet. I hope you have a speedy recovery!
  19. nvsmom
    Wow. Really? I have not heard that. I wonder what their reasoning is for that too. I'm pretty sure my kids are human eve if they dobn't always behave that way. LOL
  20. nvsmom
    That GI is not a winner. If the kids can't see a better doctor, or get a celiac disease diagnosis, I hope you will have them join you on the gluten-free diet. Sometimes the system doesn't help and you need to work outside of the box to keep your family healthy. Best wishes.
  21. nvsmom
    Her GI must be trying to do a money grab or something. Those tests are incredibly positive. It is not often that I see a celiac panel that is entirely positive, and I've been hanging around this board for a few years now. The EMA IgA is 98-100% specific to celiac disease meaning that out of 100 positive tests, a maximum of 2 are caused by something other...
  22. nvsmom
    Does it get easier? I’m sure it does I am just having a hard time seeing a light at the end of this frustrating tunnel. Yes, it gets easier. It takes a few months but it does. Once you get a new core of recipes, brands and places to shop it becomes almost effortless. The only time I balk a bit is when travelling and that is because I have 3 very picky y...
  23. nvsmom
    From what I know, it isn't fat that makes us fat, it's sugar (and starches). If you ate 2500 calories a day and at least half was fat, I doubt you'd gain but if half was from sugar and starch, I bet you'd pack on a few. Fat is good for you, sugar...not so much. That's just what I have read and interpreted over my years. That low fat diet from the ...
  24. nvsmom
    Don't forget that non-celiac gluten sensitivity (NCGS) has all of the same symptoms as celiac disease minus the villi atrophy and possible dh rash. NCGS is found in 6-15% of the population unlike celiac disease at 1%, so you are much more likely to have NCGS rather than celiac disease. There are no good blood tests for NCGS yet, the ony way to diagnose it...
  25. nvsmom
    I really dislike it when labs do not give the exact normal range - I don't like trusting "negative" or "positive". It looks like a positive EMA test but the EMA IgA is usually given as a titre - meaning they keep doubling the dilution until the endomysial antibodies are no longer detectable. Your test is unusual. I agree that you may want to retest again...
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