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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    Thyroid problems suck. I had the run around with thyroid problems for years and years and it was because my TSH was a high normal to slightly high. It was in between a 2.6 to a 6.8. Our normal upper range was 6 so my doctors said I was normal, but it wasn't normal for me. My hair was thin, my temperature was between 96 and 97.5, my skin was scaly,...
  2. nvsmom
    Oh yes, get them all tested, even if they have no symptoms. They say the chances of the immediate family getting celiac disease is 1/10 but it seems higher in some families. And remember, celiac disease can appear at any time so if they continue to eat gluten they should be retested every two years or as soon as suspicious symptoms appear.... They'll...
  3. nvsmom
    An endoscopy is not needed for recovery, and if you are sure that it is celiac disease, then you can skip the endoscopy if you wish - it is a personal decision. Some like to have the endoscopy so they know their starting point in case they do not improve in a timely manner. I skipped the biopsy because my blood tests were very conclusive and I was...
  4. nvsmom
    Good luck. Glad it is good so far.
  5. nvsmom
    LMAO That really is quite the mental picture. Hang in there.
  6. nvsmom
    Oh, that's tough. I hope you can hang in there. Remember, you only need 1-2 slices of bread (or equivalent) for 8-12 weeks before you test. If you have done a long gluten challenge (around the 3 months) you can probably get away with a 1/2 slice per day. Don't overdo the gluten if you can help it. Try to only eat you gluten in the evening, when...
  7. nvsmom
    I actually did go out and buy a bunch of gluten-free treats. It helped me feel like I wasn't being deprived in any way...and I actually lost weight at first. LOL It helped me to have a gluten-free household too. I didn't have to watch my family members eat foods that I wanted to eat but couldn't - that made it much easier for me. My children are all...
  8. nvsmom
    I've read that 70% of people experience improvements of some symptoms in the first two weeks gluten-free. The problem is that it is just SOME of the symptoms. LOL My stomach aches and bloating started to improve in the first week. Fatigue and migraines got worse for a while. My bathroom habits did not change for almost 9 months, and then I swung from...
  9. nvsmom
    If you need back-up, this report (especially pages 10-12) has some good info on testing: Open Original Shared Link
  10. nvsmom
    I think most people around here have experienced testing frustration on top of the frustration of not knowing how to make ourselves feel better... You are definitely in the right place.
  11. nvsmom
    It could be celiac disease. Because you already have one autoimmune disease you are more likely to get celiac disease than other people. Testing is a good idea. Your doctor is wrong. Celiacs with symptoms do not necessarily have positive celiac tests. There are celiacs out there who had positive biopsies but never had a positive blood test. It happens...
  12. nvsmom
    I have had that happen only with TSH testing, and the doctors always (and in my case, wrongly) went with the normal result. They don't seem to believe in "best 2 out of 3". LOL No wait, I once had my tTG IgA tested about a month apart and the results differed by almost 20 points. At the time I had been gluten-free for close to a year, but the results were...
  13. nvsmom
    I loved Green's book and I like this article. They even brought up the low (HDL) cholesterol as a reason to get tested! Most doctors just say it's great that your cholesterol is good. Nice.
  14. nvsmom
    Yeah, most are okay. Just give it a quick check. At first it seems like gluten is everywhere, but it really isn't. It's just good to check everything if you are able.
  15. nvsmom
    Welcome to the board. Diabetes and Hashimoto's thyroiditis are the most autoimmune diseases found to co-occur with celiac disease. Your list of symptoms definitely point towards celiac disease - your symptoms are very similar to some of mine. I am glad you being tested for it. The tests you want are: tTG IgA and tTG IgG DGP IgG and DGP IgA EMA...
  16. nvsmom
    If the endoscopic biopsy of your intestines (not the stomach) was negative, as were the blood tests, then I agree that you probably have non-celiac gluten sensitivity (NCGS). There is a small chance that it is latent celiac (meaning early celiac disease) but that is usually defined by a positive blood test and negative biopsy. It is possible, although...
  17. nvsmom
    If you suspect Hashimoto's thyroiditis, you need more than a TSH test done. I suspected a thyroid problem for 15+ years but my doctors only tested my TSH which was always normal or just above normal; I didn't realize that my city's TSH range is ridiculously large (0.2-6) compared to most of North America (-0.5-2 or 3). Your TSH should be near a 1. Check...
  18. nvsmom
    That sort of wrecks peaches for me! Taking a bite out of a peach and licking off the juice seems just.... weird now! LOL
  19. nvsmom
    Play dough. Sun screen. Kitchen utensils or baking tools that could be contaminated. Ummmmm... Sugar canisters or other baking supplies that may have had a flour coated measuring cup dipped into it? Sounds like you've got most of it to me.
  20. nvsmom
    I'm afraid that I agree with the others. That's probably not a safe work environment for you. (hugs)
  21. nvsmom
    Hang in there. The first few months are tough because symptoms are coming and going still. If it is a virus, that will make everything worse, and I was hit MUCH harder by viruses when I was undiagnosed - I hardly ever get sick anymore. L-glutamine can help with intestinal healing. It might be a supplement to consider using for a few months. Hope...
  22. nvsmom
    As a young adult, I found having a bit of sugar and a big coffee before going out helped me have a good time more than alcohol ever did. Being active helped me keep my energy levels up so I could keep up with friends at 2am. You can go anywhere you want while sober. In fact, I think drinking limits your activities more than sobriety. When drinking...
  23. nvsmom
    Tell her the truth: there is no such thing as remission in celiac disease. Symptoms can wax and wane but you are still sick and destroying yourself even if you don't feel it at the moment. It's like a cancer - it can grow pretty big and become life threatening before you ever feel it. Symptoms do not completely correlate to health when it comes to celiac...
  24. nvsmom
    LOL I've almost given up wondering about it - Nothing I do changes it anyways. I've heard so many people say that low B12 affected their energy levels - made them tired. Am I supposed to have high energy levels then? I'm missing out in that. LOL
  25. nvsmom
    You have celiac disease. A positive blood test and endoscopy means you have celiac disease. You could be one who heals very slowly, some of us are, or it could be caused by another problem like Hashimoto's. I have Hashi's and the symptoms really overlap the celiac disease symptoms. Many symptoms that I thought were due to celiac disease were actually due...
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