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darlindeb25

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Everything posted by darlindeb25

  1. darlindeb25
    a really good elephant ear should not be greasy--it is like a very a very flat donut--they are ususally dropped into hot oil and removed--if placed on a paper towel and flopped over--then rolled in cinnamon and sugar--ohhhhhhh man--they are very good--sweet and flaky-------------i think probably the last thing i ate was hot ham and cheese on aunt millies...
  2. darlindeb25
    hey bean Dangerous Grains is a great book, isnt it and the stats are probably higher now--that book has been around for a very long time---i am one of the celiacs who has tummy pains--more intolerances keep popping up with me--you didnt have any stats for celiacs who get neuropathy and for now--the docs dont even know why there is a connection between neuropathy...
  3. darlindeb25
    I emailed this to: mmmm gluten and now I want the rest of you to see what I told him: Sometimes I dont understand we celiacs--we are a very sensitive bunch--some of us have been sick for so long and we get defensive when we feel we are being attacked--as I read some of your posts, I wonder if you just have a dry sense of humor that the others didnt get...
  4. darlindeb25
    Laura--yes, you could be gluten intolerant and are on the way to full blown celiacs--Dr. Green says that if you do have the DQ 8 gene, then chances are good you could be celiac--at any rate--if you feel better gluten-free then go gluten-free--dont let any doctor change your mind about it--i feel you are a celiac and they just have not found the spot that...
  5. darlindeb25
    Roo, are you talking about the chips with the owl on the package--we have Wise chips here on long island--i never buy them because there are so many ingredients in them--i really dont eat many chips---call the company and find out from them if they are ok--always call the company when in doubt--deb
  6. darlindeb25
    GREAT ANSWER SUSAN--I LOVE IT--I WAS LIKE WHEN YOU SAID HOLD OFF ON FRENCH KISSING AND THEN I FELT BETTER WHEN YOU SAID "DURING MEALS"----I HAVE NEVER BEEN GLUTENED IN THIS WAY EITHER--MY SWEETIE ISNT gluten-free EITHER, HE IS VERY CAREFUL WITH ME--BUT HE EATS NORMALLY, DRINKS THE OCCASIONAL BEER AND I DO LOVE THE SMELL OF BEER, NEVER DID LIKE THE TASTE...
  7. darlindeb25
    well magnus---let me give you some real things that have happened to me--i was sick my whole life, not just 6 years--i searched for a diagnosis for so much longer then that--the average diagnosis timein the US is 11 yrs--now that sucks and believe me--no one heals from celiacs in 2 weeks--i have been gluten-free for almost 4 yrs and i am still trying to recover...
  8. darlindeb25
    well--i will try this again--there is a post monster lurking here today--ate my post 2 times now--anyways--you sound celiac to me--the diarrhea is a definite synptom--you sound like i used too--email me if you would like to talk---darlindeb25@aol.com -----deb
  9. darlindeb25
    mamy flavored coffees contain gluten--i got very sick from hazelnut coffee--i dont like flavored coffees and i didnt buy it--it had been made in the wrong pot--i only drink regular coffee--if it says 100% coffee, it should be fine--watch for additional ingredients---deb
  10. darlindeb25
    No--DH is just another symptom you can have with celiacs--some very bad celiacs have no symptoms at all--they are "asymptomatic" some of us are very sick before diagnosis--some of us doctor for years and are never diagnosed and we figure it out ourselves--there is no rhyme or reason to celiacs---Deb
  11. darlindeb25
    Almost 4 years here and I have never intentionally cheated--I have been glutened by accident, but would never cheat--I was even asked by the Chicago Hospital if I wanted to be tested for free, but I had to eat gluten for 6 weeks prior--I told them ABSOLUTELY NOT--i dont need a sheet of paper to tell me what gluten does to me--I have no gluten in my home,...
  12. darlindeb25
    so true mcdougall---so very true--a very tough reminder that we can never be too careful--i have gotten so i dont trust anyone with my food and thats bad, but i cant face this kind of sickness--i just cant---deb
  13. darlindeb25
    wow, a new yorker thread, but i am a "lawn guylander"--i live in e. islip, long island, new york--there is a celiac support group in westchester county but i dont know how close that is to you either--but i would love to talk to any of you--deb
  14. darlindeb25
    well--all i can say is that the rest of you are so lucky---but, i do believe its the same as anything else--you can be celiac and diabetic, celiac and neuropathy, celiac and and and--get my meaning i do have other intolerances and much of the time i feel it isnt fair, but it is my lot in life and i will learn to deal with it--i am soy and corn limited, very...
  15. darlindeb25
    i can safely say i have not been glutened from kissing and if that did happen, oh well, cause i will not give up kissing for celiacs--my sweetie is very careful with me and he is more then willing to eat my gluten free food--he does enjoy a beer now and again and i do love the smell f beer, never did like the taste--at any rate--i have never been glutened...
  16. darlindeb25
    paxil and xanax are gluten free too--i have taken both---its normal to be depressed too--its a lifestyle change we have to make and we mourn food--i read that we celiacs are addicted to gluten and we crave it--dont feel alone--you have to look at the plus side of things--you are alive--going gluten-free you are lowering your chance of stomach cancer, there...
  17. darlindeb25
    I am not sure if our sleep disturbances have anything to do with being celiac--I think our lifestyles make the difference---although, many of us have pain from other ailments that celiacs may have caused--I have neuropathy, I also have tinnitus, which I have had all my life but is in a serious flare up condition for now--there is a field of crickets in my...
  18. darlindeb25
    yup--just as stephanie--i react to band-aids too--just like a burn--it must be the adhesive--funny--i can use them on my fingers without trouble, but not anywhere else--put them on my arm or somewhere and it is like it takes a layer of skin with it when it comes off----deb
  19. darlindeb25
    well--i didnt take the poll cause i have had migraines before, but probably only 5 or 6 in my lifetime--my mom has migraines and some of my kids do--one son, nick had to take inderal for them as a young child--inderal is a beta blocker---and celiac3270--keep your chin up--most boys who have migraines do out grow them--my son has headaches, but very rarely...
  20. darlindeb25
    i have a son with ADD--he is now 23 and i can see the pattern still effecting his life too--i used to blame his ADD on his father, but now i realize that people with ADD are usually quite intelligient--they normally just cant pull their thoughts together--he does very well with on-hands things--book work has always been difficult for him---and as i age, i...
  21. darlindeb25
    miracle whip is fine--but dont use the miracle whip light--the last i knew it contained gluten--miracle whip mayo is fine too--and most vinegar is ok too--its a rough decision to take--sometimes i think and think and put it back--deb
  22. darlindeb25
    morning---well, here goes---I have always had tummy troubles--as a child I would get carsick--my mom always said that I had to have a change of clothes with me when traveling--my sister is celiac too and I remember as a child, she would eat dirt--my mom finally took her to the doctor to find out why and, of course, it was a vitamin defiency--she was given...
  23. darlindeb25
    ummmmmmm my son is the manager of a Mcdonalds in Michigan and he says they have been safe with the fryers for a very long time and I might add--I have never gotten sick from McD fries--I am now living in New York and have not had any fries for 3 months now--but even here when I visited before I was fine--I have been gluten-free for almost 4 yrs now--I definately...
  24. darlindeb25
    well--i look at things differently that many people i guess, but then so does my sister this has never been a problem for me---celiacs is celiacs and weddings are weddings--one has nothing to do with the other--i dont go places worrying about my celiacs--celiacs has stopped me from going because i was too sick to go before gluten-free but since gluten-free...
  25. darlindeb25
    i do have one question celiac3270----ask about celiacs and neuropathy and what vitamins they feel are necessary for us to be taking, especially us that went years without diagnosis--otay---i would be very interested in that question-----------by the way, anyone interested--Dr. Green will be talking at the suffolk county celiac support meeting on tuesday april...
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