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CaliSparrow

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Everything posted by CaliSparrow

  1. It takes a few days to hit me as well although sometimes I get a few suspicious symptoms right away. I also have multiple symptoms (pretty much the ones you listed) and agree with Notme that it feels like being hit by a train. The symptoms do seem more severe since I went gluten-free even though I was extremely sick beforehand. It's shocking to find...
  2. Julie, Why not take the meaning of "topic" and "blog" literally and vent your aggravation in your blog where people are more likely to offer well-wishes rather than suggestions? That way, a bunch of time & energy isn't spent on someone who just wants to vent (and not wanting suggestions). These people who have a lot of good advice can then give their...
  3. I have wanted to write about all those battles but it has not been something I wanted to tap back into. However, it's getting to the point where it feels about time. Far away enough to remember it has long passed and soon enough to remember the emotion. Probably some emotion there that I wasn't able to express at that time. (It might also put some perspective...
  4. People have been so nice & writing IS good for the soul. A poem just popped out of me. It's been years! :)

    1. CaliSparrow

      CaliSparrow

      p.s. GOOD NIGHT!

  5. I don't think I wrote that in a clear manner and feel misunderstood. I'm really speaking from my experience. My attention span was not up to par. I didn't receive the benefits of learning the basics of cooking and now need them (without having much energy). My mom did all of it. I'm about to lose her and wish I had the experience of cooking with her...
  6. Julie, My parents sheltered me (and not my siblings) and I suspect it's subconsciously because of my vulnerability. It's always been difficult for me to handle too many steps. The longer I'm off of gluten, the more this changes. It's really been a catch 22. If my parents had been more strict and my difficulties more apparent, maybe I would have been...
  7. Wow. I'm sorry you are experiencing these issues. I had no idea someone could be diagnosed with CF in adulthood. Good luck to you. I hope that it is "simply" Celiac. Take good care of yourself. Cali
  8. This forum group is a godsend. I'm very comfortable here and wish I could speak up for myself better out in the real world. Things come up, people ask things of me that I cannot give because I don't look sick on the outside. Well, I look tons better after eliminating gluten but, you know, I look normal to others regardless. People make assumptions and...
  9. I'm tired of this.

    1. moosemalibu

      moosemalibu

      It really does drain you. Stay strong and keep fighting!

  10. Back in Black -- AC/DC
  11. Ouch to the smoking finger! My mom had numbness like that when I was young. She would cut her hand and not know it. It always makes me wonder. My doctor told me my CNS had been very impacted but I can't remember which thing she attributed it to, my appointment was so l-o-n-g! Maybe Vitamin D? Probably more than one thing as I have mercury poisoning...
  12. Me too! I would eat in order starting with the healthiest. As a teenager, I also would divide my M&Ms by color and start with the smallest pile first. I used to also get very upset if my food groups touched each other. My mom tried buying me a plate with dividers once but I was insulted. Ha! Once I hit my Tweens, I also had to eat an even number...
  13. I am a Man of Constant Sorrow — John Hartford
  14. That's a shame. Ask your doctor about testing for food intolerances. I go to a doctor in Functional Medicine.
  15. I did the ALCAT test. It helped (obviously, there was no way I could have sorted it out myself). My inflammation went away immediately after I stopped eating those foods. Good luck!
  16. I experienced the deep fatigue and tingling for years before going gluten-free. It's been a slow course to feeling better. It IS progress even though it's been up and down. The fatigue and tingling have improved a lot over time (been gluten-free since 11-2012). On Wednesday, I reintroduced dairy and the tingling is out of control. My doctor checked me...
  17. Thank you. I'll mention it to my doctor. She's gluten intolerant and that's a plus. When I first went gluten-free, I began drinking coconut milk and using coconut oil. It must have been too much. Now I'm intolerant to it and don't want to reintroduce it until I've healed more. Nothing I've reintroduced comes without symptoms . Hopefully, waiting longer...
  18. On Wednesday, I was weak and reasoned that introducing dairy back into my diet was a good idea. Bad idea. One of the worst symptoms is the feeling of electrical currents shooting down my legs. My nerves are on fire and I have little tolerance for noise. It is jarring to walk barefooted across my tile floor. It also seems to affect my head in that there...
  19. My animals are gluten-free and also do better without it. Both of them had improvement in fur quality and arthritis! I was once glutened by my shampoo. Now I only use gluten-free shampoo and make-up just to avoid having ANY gluten enter my mouth. Toothpaste is another culprit. I have enjoyed reading the articles written by Jane Anderson on about.com...
  20. I'm sorry you feel poorly after what was probably an evening of "normalcy". I do not eat what others prepare. Most people do not have a grasp on what contains gluten unless they've gone through this themselves. Those who have become proficient in handling social situations recommend taking the first serving from the dish you bring so as to avoid cross...
  21. BIG CONGRATS! Cali
  22. Before getting off of gluten, I had these huge lines on my face in the shape of two Vs. They would start at the corners of my eyes and would come together to form the base of the V mid-cheek. It looked weird as all get out to me and I kept wondering if it was some genetic trait. I would also get the dark circles under my eyes. I believe that dairy causes...
  23. That's awful luvs2eat! I've heard the symptoms can get worse but I am not there yet. Icelandgirl, I've been gluten-free for 15 months. The third and fourth days are the most obvious for me. The first thing it impacts is my ability to think so it sometimes takes the symptoms getting a head of steam for me to realize it's happened. That's unless I try...
  24. One time I thought I had ingested gluten when I actually had a stomach virus that was going around. I'm glad you got help. Used to be I worried myself over having anything and everything, my CNS has been so impacted and anxiety through the roof. Now I sum it all up to gluten. It's not easy to be objective when you're not well. Thanks for the heads up...
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