Lisa

I think that it's always useful to spell the Celiac vernacular out and also for the not-so-computer wise such as myself.

I remember several times I refered to someone by what I thought was their name. They ended their post with TIA. I welcomed alot of TAI's.

But I think this law only applies to food...I would call. I use culturelle which is gluten-free.

I stand corrected HAK is correct. The FDA laws pertain to food only at this time.

Yeah, I can't have them, I can't have soy. Soy lecithin is ok, but soy flour is out. I knew it would be something I couldn't have.

Sorry, Deb for the temptation I do tend to forget about other intolerances.

I've been taking pro-biotics as i simultaneously take another antibiotic... it's a long story--I bought the probiotics on a really bad and hectic day and have already stopped taking one because I noticed it had maltodextrin and did NOT say gluten-free. The other two both DO say they contain MD BUT they also say the product has "no wheat (gluten)" in it. I understand this can be solved by calling the company, which I will do tomorrow, but I just wanted to know if anyone else had run into this problem before. I know MD can come from corn, but usually the label will say this.

Just confused.

Thanks!

Maltdextrin in the US is generally dervied from corn. If it is derived from wheat it will say "Maltdextrin (wheat)". This is US FDA Law.

If your label says Maldextrin and does not list wheat, it is gluten free.

Yes, nausea was my warning symptom to look for the nearest bathroom, quickly!

I am new with celiac. While reading some posts I found out that there are some products (cosmetics, tooth paste etc) that may be non safe. Could someone tell me what I have to look for in the labels??? Is that amount capable of causing me any harm?? Does it differ from person to person??? Some people are more sensitive than others and may have problems with gluten even in their shampoos?? I just can't imagine how this can happen....I usually don't eat my shampoo.......!!!

Welcome,

Here is a list of things to look out for:

https://www.celiac.com/articles/182/1/Unsaf...ents/Page1.html

Here is a list of companies who will clearly list gluten (as in wheat, barley, malt and rye):

Open Original Shared Link

Sensitivity does differ from person to person but in the beginning it's very important to be 100% gluten free so you can heal.

The ANY amount of gluten will set off the autoimune reation in your small intestines and create damage. In other words, it's not the amount that you consume, it's the reaction that it causes.

And no, I don't think that any of us eat our shampoo. But, try not to get any in your mouth when you shower. It's always best to error on the side of caution. Check all your lotions, shampoos, lipsticks for gluten content.

(I noticed that you are from Athens. Please note that the links that I posted are US links)

Waht are vanilla waffle's made of?

"Van's" Waffles are found in the frozen section in stores that carry this brand. They have several, but do have a glutenfree/wheat free.

Deb,

Try your peanut butter on a toasted Van's Waffle. It's heaven when it melts.

I don't know your personal history but generally for most people it takes some time to heal.

It took me several months before I could eat a meal and it followed a "normal" route. If your villi are damaged think of your intestines like a water slide....whooooosh.

When the villi grow back they are able to absorb nutrients from the food we eat.

Lisa,

So glad that you are feeling better.

Just wondering what brands you enjoy:

-Pudding (either pre-made or mix)

-Salsa (the Hormel website isn't clear if Chi-Chi's is gluten-free, so looking to see what some of you use)

-Hot dogs (I tried to call about Ball Park regular and lite, but they're closed on the weekend)

-Soy sauce

Thank you!

Pudding - Kozy Shack (labled gluten free)

Salasa - Most Newmans are gluten free

Hot Dog - Boars Head, Oscar Meyer, Hillshire Farms (Nathans contain gluten)

Soy Sauce - La Choy

Has anyone confirmed whether Priolsec OTC is Gluten free?

Yes, it is gluten free as is the generic Omeprazole

Do these contain gluten or not? My daughter loves these with p.butter and jelly............I posted about the soy concern. The ingredients of the rice cakes show only rice. But I am reading here they have gluten????

I have not bought them in quite some time, but I do believe they are gluten free. HOWEVER, some people do react to them most likely due to cross contamination. Lumberg Rice Cakes are manufactured on dedicated lines and should not be subject to cross contamination.

Jason, if you're a great saleman, you can talk your way around a meal with clients and no one would notice.

What about reading stories or helping at an art table? If helping with meals and clean-up I would wear latex gloves and be careful about air born flour or pancake mix.

I sounds like you had a very memorable trip. And you certainly show some great art talent in creating such a beautiful bowl. I hope you can continue to perfect your skills.

I'm new and questioning: So what else it there? Any other tests? What else can we do?

Hi Alley and welcome.

After a while the gluten free diet will become second nature. The only thing that you can really trust is yourself

The problem I have with these articles is that they always state the only treatment for celiac disease is a strict adherence to a gluten-free diet and that the diet is very difficult to follow. I just do not agree with that at all. Once it is mastered, I have not found this diet difficult at all. For me, being able to eat a good, varied diet without getting horribly sick, and done without any meds, is a gift in itself. Telling people who are not Celiac, or those who are undiagnosed, that the diet is difficult produces a mindset that is not good to start with. If you tell someone it's horrible and difficult to follow, it will be for them.

As far as a pill for Celiac, it's not even a consideration for me. I just doubt that a pill will be able to shut off the autoimmune reaction to the point where there will be no damage. Plus, I would bet that this medication will cost a bundle, all so people can eat crappy, fast food again? Look at what other meds cost and with the lure that eating gluten again will be for some people, they may be able to eat pizza but they'll be financially in the hole. My dislike for pharmaceutical companies is showing but what they charge for meds is outrageous and I have no doubt it will be the same for this. I also would put money on the fact that if this is marketed, all of a sudden doctors will take celiac disease seriously and everyone that was told they have IBS will be put on the gluten pill!

Quite eliquently spoken! My I shadow your words?

I just ordered it and sent it to my daughter. I can't wait to hear you reviews when you get past the first page Julie.

My daughter's pedi GI said they never order AGA IgG (but they do send AGA IgA)...he said the AGA IgG is worthless. I know from these forums it isn't worthless, but why? How does that value help with the diagnosis of celiac? I'd like to be informed for the next time I speak with him. Thanks!

Open Original Shared Link

This might be helpful.

Are there any mainstream resturants that have gluten free dishes? I don't have trader joes, I wish I did.

Welcome!

I expect that Ken will be here shortly to answer you questions.

Kaiti!

So great to hear from you and with such wonderful news. You were certainly missed.

More details!!

I still am mystified when this product could ever be used.

I'm glad that you posted this. I'm always interested in new things, but I just can't wrap my head around this product other than to put lots of bucks in someones pocket at the expense of the gluten intolerant. To me, it's just another gimick.

FYI - didn't see this topic when I did a search - hopefully isn't a repeat.

Had a reaction Saturday to a "safe" cooked-at-home from raw ingredients meal. We'd run out of regular butter so on the rice I used some DH had from baking last month - was unsalted.

when I did my paranoid "I will now read all labels even though I know I've read them before" routine, the unsalted butter listed "natural flavors" which some sources will say are gluten-free as a category but others point out wheat can be used in processing without requirement to list as an ingredient. All I know is that I had a (mild, but noticable) reaction.

So at the regular grocery store all 3 unsalted butters had "natural flavors", at WholeFoods only 1 of the 5 unsalted butters had "natural flavors". Salted butters both stores were all simply cream & salt as ingredients. Silly me I didn't think butter of any kind was something I had to check

Caveat-I still haven't found a vitamin (whether gluten-free or not) that I don't react to, so there's an outside chance the 'natural flavor' reaction wasn't gluten. However I don't have any other sensitivities that I can tell, and am fine with dairy in general and regular butter in particular.

The "unsalted" butter that you mentioned would, by law, have to list wheat if it is an ingredient. Malt, rye or barley would unlike be an ingredient in butter.

Your suspect would most likely be from the cross contaminated butter from your husband. I presume that he uses that butter to spread on his bread, toast, pasta or other gluteny things.

You may also consider having a temporary dairy intolerance, which often goes hand in hand with newly diagnosed Celiacs.

Learning to contact companies is a required skill.

I started my gluten elimination diet this past week...and honestly it has completely changed my life! But I can't help but think about all the wonderful foods I'll never have again. So my question is - can you splurge every once in a while - or will the results be disasterous...seeing as your body has been completely rid of gluten up to that point...? Thanks!! :-)

Welcome,

There is no simple answer to your question. If you have Celiac Disease, gluten can never be eaten. Gluten to a person with Celiac will set off a dangerous chain of events resulting in damage to your small intestines and puts you at a risk for other unfortunate autoimmune diseases. Gluten will always be your enemy.

If you have an intolerance or an allergy to gluten (which is often considered a precursor to Celiac) you might not occur any damage.

But fear not! There are some wonderful gluten substitutes that are very good.