Lisa

Most of us have had internal issues for some time and perhaps many years. And endoscopy and colonoscopy, in my opinion, would be wise.

I'm not quite sure where your pathology report stops and you comments begin. But, you might look into NSAID sensitivity or over use. Some people can't handle it....interesting stuff, though.

So I've been gluten free for almost 8 months, and my symptoms (stomach pains, Diarrhea, etc) went away. Around 3 weeks ago they started to come back, and as of 2 days ago, there has been bright red blood in my stool, partnered with horrible sharp pains in my stomach.

I'm going to a nutritionist in a few weeks because my mum rang the Coeliac Society and they said it sounded like I had a food allergy.

What do you guys think?

It could be several things. If this continues, I would see a doctor promptly. I don't think that bright red in your stool could be a food allergy.

Sometimes when I am a bit constipated, I get stomach pains, my stools are hard and I get some bleeding. (sorry to be so personal... )

Hi Lisa,

I am so glad that I have found your post. I have spent countless hours trying to find the best test for gluten intolerance/sensitivity but they seem to be not very accurate.

Would you say that the full Serologic Celiac Panel is my best bet? If the results come back normal then does it mean that I am 100% OK or still there could be some issues that the test did not detect? Are there any other tests that I should take to get sure 100% that I do not have any gluten issues or full Serologic Celiac Panel is all that I need?

BTW is gluten intolerance and gluten sensitivity the same thing?

Thank you very much in advance.

Alina

Hi and Welcome! Here is some current information for you, which you might find helpful:

https://www.celiac.com/categories/Celiac-Disease-Diagnosis%2C-Testing-%26amp%3B-Treatment-%28Gluten%252dFree-Diet%29/

Thank you, Lisa. Instead of trying to explain in my own words what a functional medicine doctor is, I will paste a definition: What is Functional Medicine?

Functional medicine is an evolution in the practice of medicine that better addresses the healthcare needs of the 21st century. By shifting the traditional disease-centered focus of medical practice to a more patient-centered approach, functional medicine addresses the whole person, not just an isolated set of symptoms. Functional medicine practitioners spend time with their patients, listening to their histories and looking at the interactions among genetic, environmental, and lifestyle factors that can influence long-term health and complex, chronic disease. In this way, functional medicine supports the unique expression of health and vitality for each individual.

So I have been to 4 doctors and no body has been able to help me. Nobody has even mentioned gluten-intolerance. After researching and reading about it, it totally makes sense. And since there is a chance that this is it, I decided to get it out of my diet and see if things improve - and I think they have. The only test she is doing for this is the saliva test which is much more accurate than stool and blood testing. I will no for sure in 1 week.

I know there is a learning curve involved in knowing what foods have gluten in them. But I am quite confident that I haven't had any gluten in 4 1/2 days. I can't believe how much better my tummy is and stools have changed.

I will check out the list you are speaking of on here. Thanks again.

Here is some information regarding testing: (In the US) The Saliva Test does not support accuracy/diagnosis regarding Celaic Disease.

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Hello~

I am new to this forum. I found it while doing an internet search. I think I may have celiac/gluten intolerance (although at this point I am not sure there is a difference between the two).

I went to a functional medicine doctor and I gave her all of my symptoms and she thinks I am gluten intolerant. She did a saliva test and I am awaiting the results. My main symptoms are extreme fatigue, failing thyroid, muscle weakness, some gastro upset, loose stools (light colored too), etc.

While awaiting the test results, I decided to go gluten free. It has been 4 1/2 days now. The fatigue has lifted a little and gastro symptoms have went away. So my main questions are:

1) based on what I have said, I can assume this is the issue?

2) is there any sort of "gluten withdrawal" symptoms I should expect or be aware of ?

3) if this is what it is, how long before I start feeling well?

4) I know gluten is in all wheat products, but what are some names for the hidden gluten that I should look for?

Thanks for any help you can offer!

Welcome!

You should stay on a full gluten diet until all testing is finished.You may never know if you have a gluten allergy, a gluten intolerance or Celiac Disease. All require the same diet, but with Celiac Disease the autoimmune response can cause great damage to your system.

To answer your questions:

1. no, no assumption can be concluded - testing would be advised.

2. some people have claimed a withdrawal period.

3. the diet is not one that you can quickly claim...it takes time to master it.

it can be very complicated.

4. there is a listing of safe and unsafe ingredients listed on the home page here.

This site is full of wonderful information....talk a walk around and again, welcome.

PS - What's a functional medical doctor?

Just found a pretty great recipe book for Vegetarians and those that are NOT!

125 Gluten-Free

Vegetarian Recipes - Carol Fenster, PhD.

Gazpacho Shooters - yum

It's vegetarian, but also has a section to add non vegetarian options. I love it.

Wendy's has some nice gluten free options.

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Sorry, but I just got Open Original Shared Link

French Fries:

Potatoes, vegetable oil (canola oil, hydrogenated soybean oil, natural beef flavor [wheat and milk derivatives]*, citric acid [preservative]), dextrose, sodium acid

pyrophosphate (maintain color), salt. Prepared in vegetable oil (Canola oil, corn oil, soybean oil, hydrogenated soybean oil with TBHQ and citric acid added to

preserve freshness). Dimethylpolysiloxane added as an antifoaming agent.

CONTAINS: WHEAT AND MILK.

*(Natural beef flavor contains hydrolyzed wheat and hydrolyzed milk as starting ingredients).

It's that natural beef flavor that gives McD's fries their distinctive taste, but unfortunately, we can't eat it. BTW, TBHQ is a Open Original Shared Link that has some rather nasty side effects.

So sorry teacherkd, but McD's fries and hashbrowns ARE considered gluten free. All the Celiac Associations support that position.

In an effort of full disclosure, McD's has posted honestly. What you need to know is that hydrolyzed wheat is processed to the point of rendering it gluten free, below what is considered safe for people with Celiac Disease to consume. They are cooked in dedicated fryers.

This is a frequent topic and one that will go down in the record books around here! Eat them if you feel comfortable, or don't. Cross contamination is a risk at all fast food restaurants..far greater than the hydrolyzed wheat.

I do enjoy the fries from time to time.

So, hubby's test results came back - genetically he is DQ2/DQ2 (which increases his risk to 1 in 3 or 4 instead of 1:133), but his antibodies are well within normal range. Still, he is very symptomatic. If these were your results, what would you do? Dumb question, I know, but ...

You are correct (if I remember my stats correctly). He carries the genes which would indicate that he has a 30% change of developing Celiac Disease. On the flip side, 70% of the general population carry the same genetic link, do not develop Celiac.

Along with his genetic testing, coupled with his symptoms, I would consider it either Celiac Disease or Non-Celiac Gluten Sensitivity (NCGS). Either way, the remedy is the same.

Unless your husband desires further testing, I would suggest to go totally gluten free, and feel better. If he wants additional information, continue consumming gluten and continue with the antibody tests.

I called the company and they told me that many of their plants have been cross contaminated with the new ones with pretzels. They started making them last 8/10 and it was in October that I started to get sick from them. Be careful and don't buy any holiday ones because they are made at their overflow plants. They stated that these plants are definitely contaminated.

I don't know who "THEY" are, but I have never found a company who would respond in the way you have indicated.

If a company adds one of the eight main allergens, lines are washed thoroughly between continued processing. And most would list a disclosure regarding shared lines.

Mars is one of the good companies. I have confidence in their labeling policy and manufacturing procedures.

...nor would it stop me from an occasional sweet from M&M's.

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She's only five..creativity goes a long way.

I just contacted them yesterday after reading this thread and was notified that NO slurpee flavours contain any gluten. Not surprising. But all that sugar??!!

Thanks for taking the time

This thread is over six years old and the information found here may not be acccurate.

I doubt that any Slurpee's contain gluten.

Well, Whewwwwwwwwwwww....... . . ...((((((((((groaning and falling on hotel bed)))))))))... . . . . ...

We've seen Abe, Ben, Thomas J., JFK and Jackie, Holocaust survivors, snipers on Obama's roof......

Youse Yanks really know how to put together a national capitol. 'Tis magnificent: regal, clean, welcoming, bustling.......it is important for all to see this city, methinks.

Now everyone must come north and check out Canada's city of government........Tag! You're all it!

I wish we could have organized a Psilly Psummit.............next time, and when I'm a little further south.....or west?... . . . ...

Awww....you're in my city! I was raised ten miles out of town and worked there on "the Hill". Isn't she beautiful???!!! And at night she's magnificent and fun I must add.

they still snap, crackle and pop!

Can't ask for much better! I made RC Treats and they were gone in five minutes...all gluten eaters...and all over the age of 27

Have a wonderful day Peter!

I'm going to the Outback with my daughter tonight. I am so excited and nervous....I hope I don't get glutened!

I love eating out. Hope you enjoy it.

Welcome Alex's Mum....so glad you found us.

Hi, I am wondering if anyone knows of an alternative to butter that does not contain - gluten, soy or dairy? If it's a lost cause, can you give me ideas on:

How to flavor my veggies so they are a little more enticing

How to replace butter in recipes appropriately/ get over not being able to eat buttery things

Any tips appreciated, even if it is "Suck it up, Buttercup!"

Check out Earth Balance, Buttercup!

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I could use your help with ideas for new side dishes I can try. I have always been a meat and potatoes guy b4gf and still enjoy my steaks, chicken, turkey..., but am growing tired of the same sides, (rice,3-4 days a week, potatoes 2-3 days a week) and maybe oreida fries or gluten-free pasta (very $$) once in a while. I also have my share of veggies and fruit throughout the day. I know this is the place to get answers and would very much appreciate any ideas. Thanks.

Summer is here (unless you're down under) and you have lots to choose from. Do you have a farmers market near? We have snap beans (southern for string beans), butter beans, field peas, may peas, acorn squash, yellow squash, zucchini, broccoli, to name a few. Chef salads, with deviled eggs with left over grilled meat. And.... my all time favorite, corn on the cob, off the cob, bbq'd, creamed, grilled, in your salad, in salsa...heck, in ANYTHING.

Fresh fruit salads. OH did I mention I love fresh local corn!?

And check out the recipe thread or "What are you cooking tonight" thread...lots of options.

Any tips or suggestions on this place? I have to go tomorrow for work

Here are you options:

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Will they be able to get a celiac diagonis from a colonoscopy or is it a waste for time and money (insurance only pays 1/2). I am scheduled for one on July 6 because I have pain in my upper left quad of my abdomen and pepcid 20mg is not helping. I have had negative blood test for celiac.

Celiac Disease is detected in the small intestines and tested/biopsies through an endoscopy exam. A colonoscopy tests the large intestines for other issues.

Just wondering if anyone has bought or used this book ? Gluten-Free Grocery Shopping Guide : : I came across it while at the Celiac Mall website. Looks like it could be handy but I have only been dealing with being gluten free for about a month so all this is still very new to me. I just don't want to invest in something if it's really not helpful.

Hope everyone is doing well, I have been pretty stressed out trying to learn how to live a new life

It seems like I am always hungry, hopefully this will pass as my body adjusts to the new diet.

I have had both Cecilia's MarketPlace Guide and Triumph's Grocery Guide. I found it very helpful...especially with the *less than obvious* products. I highly recommend either, for the newly diagnosed.

They publish a new version yearly to keep up with the product changes.

I am exhausted and did nothing this weekend. May have something to to with spending two nights with BE (Hey! Nothing happened!!). He has this thing about wanting to actually touch me while I sleep which isn't really conducive to sleep. He's had a rough couple weeks at work so I did the supportive girl friend thing and let him snuggle. Also think I talked him into quitting.

We'll see how that goes.

Still workin' on that issue, after thirty years of marriage. Good luck! <harph>