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janpell

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Everything posted by janpell

  1. janpell
    I don't have RA but I do have Psoriatic Arthritis which is pretty much the same but I also get the added bonus of psoriasis:). I was able to get off my medications by following a pretty strict diet. It's frustrating to figure out and currently am slipping so I have really sore ankles, tight wrists and a thumb I can't bend right now but I can get on track...
  2. janpell
    Hate to add more to your list but you may also want to look into Oral Allergy Syndrome. Mostly because how you describe almonds. Yes, it is another extensive list of foods for intolerance and allergies.
  3. janpell
    I have psoriatic arthritis which mimics rheumatoid arthritis. I don't have the Rh factor but am diagnosed through symptoms and of course the biggest one being that I have (haha had) psoriasis. I am gluten free but that alone did not clear my arthritic pain but it did more or less clear my psoriasis. If I have tomato I get the worst lower back pain. I can...
  4. janpell
    Me too. I have been off gluten for six years now and before that I had chronic UTI's. I only took antibiotics when I had the chills and fever and it was too painful to function (prob 4 x's/year). Otherwise I spent most of my time on the uncomfortable side. This started in my early 20s and went on until I was 40. So glad that is over. I had one infection in...
  5. janpell
    My 9 year old daughter has the exact same marks as you. It is being dismissed as her doing it to herself. I honestly don't think she is but I do know once she gets the sores she is a chronic picker which does not help. The main reason they say it is self inflicted is because they are only on her arms and legs - never her torso. Sorry I don't have anything...
  6. janpell
    I have the worst time with tomatoes. Potatoes are noticed if they are too often and bell peppers are fine. With how bad I react to tomatoes, I can't believe I can't fully eliminate them. It's crazy. I am gluten free, cow dairy free, soy free with no problem but tomatoes - I cheat, oranges too - close to same reaction but still cheat a few times a year. I...
  7. janpell
    I noticed a huge improvement once I started my iron supplements. It still grows very, very slow though but no hair loss anymore.
  8. janpell
    I had costochondritis years ago and wrote it off as an isolated symptom. Years later, I don't have pain anymore but find I find a hard time getting a really good inhaling breath and tend to yawn - a lot. The same as when I was diagnosed with costo. Every so often when I do try and get a really good inhale, I get a sharp pain. I have to eat a very certain...
  9. janpell
    Well, I don't have RA but have PsA, which is similar to RA but is zero negative in diagnosis. I was on medication too - I did sulfasalazine and Celebrex as I wasn't willing to take methotrexate or biologics. When it got really bad, I looked for another option and did the elimination diet. I don't have Celiac and have never been tested for it but am totally...
  10. janpell
    Well, I don't really have pain but inflammation and stiffness in my ankles right now. I should be happy where I am but I have had a few days where I felt nothing - no tightness or inflammation and that is what I am really striving for (and for my CRP to be 0). But I am too weak (diet wise) to keep it up though.
  11. janpell
    I was diagnosed almost 10 years ago but had joint pain for about 20 plus. It was the worst in my late 30's/early 40's. I couldn't even close my hands. My right knee made me feel the worst as it took away comfortable mobility. I have been gluten free for about 4 years now and can make a tightly closed fist. I have no deformities. I do have some tightness in...
  12. janpell
    Whaaaat? I thought I heard everything for joint pain. I don't have lupus but psoriasis and PsA. If I am extremely strict with my diet I can be completely joint pain free but then it is a very, very limited diet and I have to be honest with myself that I just can't do it. I keep out gluten, dairy, soy, tomatoes but need corn sometimes and rice. This will be...
  13. janpell
    I find when I do renos I feel horrible! I do question the drywall and compound used because when I do the taping and then the sanding my face burns up, breathing feels laboured and my joints swell up over the next few days.
  14. janpell
    I am lucky as my symptoms usually appear within 1/2 hour of consuming certain foods. Symptoms usually last a full day. I can tell by how my body feels when I wake up in the morning. Three years later I am still playing with what bugs me - as in full denial over some food choices. I am talking to you potatoes! My body took 2-3 years before I felt really...
  15. janpell
    You can make a cream sauce with soaked cashews - for pasta. I made a macaroni and cheese sauce and didn't mind it unfortunately, the cashews didn't agree with me so it's off limits also. I use nutritional yeast for a parmesan-like taste for something like garlic noodles. I really miss dairy but can't have so I don't let myself dwell over it. I make a creamy...
  16. janpell
    I get it at times. Mine comes on with exercise, usually with outdoor activities. I hate it as I find the itching almost unbearable.
  17. janpell
    Even though I haven't been diagnosed with Celiac I gave up gluten (and many other foods) close to four years ago. I have very long eyelashes. I used to cut them shorter when I was younger because people kept commenting on them - almost obsessively so I felt like a freak. My two boys also have very long eyelashes and are also gluten free due to health issues...
  18. janpell
    I know what you mean about the meds not working. I used to go to support groups (online) before the diet change and many of us were/are in the same boat. Just take one step at a time, be aware and research other avenues, and you will notice results. I was gluten light for the first year before I gave it up completely. It just takes time and commitment and...
  19. janpell
    I do have arthritis in my spine which is thankfully in remission. I have to expand my diet restrictions to beyond just gluten. One of my biggest offenders are tomatoes. I also have to avoid dairy, potatoes, most vinegars, most legumes, citrus, most corn chips and corn (there is still one brand I can have, yay) high sugar, soy, fermented foods, and a few gluten...
  20. janpell
    I find dairy sets me off and puts me in a foul mood (irritation and anger) for 5-6 hours afterwards. I stay away from it. I can do some hard goat cheese but that's it - no cow or anything with casein.
  21. janpell
    I have never been tested for Celiac because I didn't present classicly. I went gluten free years ago because my other autoimmune conditions weren't being helped with medication so I tried alternative therapy and wow, the diet change changed my life and I will never go back to eating to the traditional low fat, high grain diet again and we ate healthy then...
  22. janpell
    I guess so. I will bring her in to address the sores on her arms along with prolonged stomach aches and I will up the gluten for the next couple of weeks.
  23. janpell
    I have gluten intolerance as do my two boys. I didn't think my daughter was affected by it so I let her consume it when she goes out places, which is often enough. I notice lately she is getting weird behaviour afterwards, some sores on face and arms, rash around her mouth (almost like a beard), has many stomach aches. I brought her to the doctor for the...
  24. janpell
    I stay away from oranges because they are like trigger foods for me. I can't have just one it usually turns into 4 or 5. Same with grapefruit, can't stop at 1/2 but end up eating 2 large ones and then get a very stiff neck with piercing pain. I don't go crazy on lemon and limes so I don't really notice anything. Stress is also pretty bad on your system....
  25. janpell
    That is the same with me enlarged lymph nodes, poor skin (crazy skin actually, uncomfortable, itchy and painful at times) - I also have psoriasis, psoriatic arthritis, yellowing skin, chronic UTI's etc. I went gluten free three years ago without it being recommended by my GP and Rheumatologist. I did it because I decided to take the natural route to heal...
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