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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Do not go gluten free just yet. Now is the time to ask your doctor for a celiac blood test: Open Original Shared Link The catch is that you must be consuming gluten daily in order for the tests to detect any antibodies. celiac disease a can manfest in so many ways and because this it is often not caught by doctors. There are over 300 symptoms...
  2. cyclinglady
    Welcome! Did your GI order celiac blood tests? This is done in conjunction with the blood tests as it is easy to miss damaged areas of the small intestine. Here are the tests: Open Original Shared Link
  3. cyclinglady
    Hi! The celiac blood tests are pretty good, but not perfect. . One positive on any one of them calls for a GI consult to really confirm a diagnosis. The blood tests are really just for screening since doctors can not order an endoscopy for everyone due to resource constraints, etc. You do have a positive family history. If your doctor is willing to provide...
  4. cyclinglady
    Hi! I have Hashi's too. I test strangely on the celiac panel. Even on follow-tests, I test positive to only the DGP IGA test (like you) yet my biopsies (via endoscopy) revealed a Marsh Stage IIIB which is moderate to severe villi damage. You can ask for EMA, but why bother? You have one positive and that should be enough (along with having Hashi...
  5. cyclinglady
    Hypoglycemia could very well be related to celiac disease: Open Original Shared Link Here's from a member of the forum, Peter: I would not say that a gluten-free diet would necessarily help someone with hypoglycemia unless they actually had celiac disease. So, in your case (if you were diagnosed), you should go on a gluten-free diet and...
  6. cyclinglady
    (Smack head!) Why didn't I think of that? In anycase, Willy might be able to at least get the TTG IgA and the IgA deficiency test (control test in celiac disease). He'd still need to keep consuming gluten (you know that, but he might not!)
  7. cyclinglady
    I am not a diabetic expert or a doctor, but after I hit my first fasting at 100 one year after my celiac disease diagnosis, I started researching. I found Blood Sugar 101 website. The administrator, Jenny Ruhl, had some excellent advice. I learned to test myself watching for post-prandials going over 140. Why? Gee, I already had to modify my diet to...
  8. cyclinglady
    I used to get a pinching sensation in my stomach (the actual organ). I don't have a gallbladder either. I never had any issues with my pancreas but when family members had it, they were usually hospitalized because the pain was so severe. Are you back on gluten for testing? I recall that you tested mildly positive on the DGP IgA test (like me),...
  9. cyclinglady
    Great advice from everyone! In the meantime, if you have celiac disease, you might be lactose intolerant. The enzymes to digest lactose are usually released from the villi tips. When those are damaged you can become lactose intolerant. Often this is just temporary until healing begins (or not if you are genetically doomed to be lactose intolerant. Other...
  10. cyclinglady
    Welcome to the forum! If you suspect celiac disease, you should remain on a gluten-rich diet until all testing is complete. I am sorry that your doctor did not tell you this. Why listen to a possible crazy celiac lady on the internet? Take the advice of the leading celiac researchers and doctors. Here's a link to the University of Chicago's celiac...
  11. cyclinglady
    What's a "quinoa bake thing"? Is that a manufactured/processed cereal bar? Was it certified gluten free? What was on the label? Quinoa itself should be fine, if you washed it like rice before using it. I am sorry you are ill. Try to look at all your foods for the day. Sometimes, it takes a while for symptoms to hit. I hope you figure it out...
  12. cyclinglady
    I bet your insurance requires a GI to order an endoscopy (that's how my insurance/provider works). Some of our members our in Canada or Great Britain. Their wait times (NHS) can be pretty long (up to a year) for the GI consult. Those folks often go gluten free and then have to go back on gluten for several weeks prior to the endoscopy. Let me tell you...
  13. cyclinglady
    Only you can make that decision, but here is some advice from experts: Open Original Shared Link Open Original Shared Link GI cancellations do occur. Perhaps you can get an earlier appointment. That has happened to others on then forum. I wish you well.
  14. cyclinglady
    It took me 3 months to heal and another 3 to regain lost weight. I honestly do not know what glutened me. I suspect two products and they might have been mis-labeled or cross contaminated. For all I know, it could have been weeks of gluten contamination. My original symptom was anemia. No tummy issues that I was aware of. This time, I had vomiting,...
  15. cyclinglady
    Yes, it can. I was glutened last July. I have no clue as to what zapped me either. Six weeks after the glutening, my antibodies were higher than when I was diagnosed. So, it is possible.
  16. cyclinglady
    I use apple cider and wine vinegar all the time. No gluten issues at all. I think it is smart to stick with unprocessed foods for a while until you see some improvement.
  17. cyclinglady
    My daughter's best friend is allergic to peanuts and milk. They have been in class together since the third grade and are in the same Girl Scout troop. I know how hard it was and still is for her. Her Mom sent wrapped cupcakes to school that her teacher kept in the teacher's freezer clearly marked. She also kept Skittles and Oreo Cookies (no milk) to...
  18. cyclinglady
    Oh no! A hard lesson to learn as a celiac kid -- do not accept food from anyone but Mom or Dad! Another unfortunate incident as a result of the gluten-free craze! I have only bought gluten-free baked goods from 100% dedicated gluten-free bakeries. There are a couple of bakeries in town that offer a gluten-free line and friends have told me about...
  19. cyclinglady
    This is great news! I have been researching since you posted this. I found this: Open Original Shared Link It talks about the new antibody testing. It confirms that the TTG is not able to catch all celiacs and that a full panel is best. I have been pushing the full panel because I always test negative to the TTG even on follow-up testing. ...
  20. cyclinglady
    Two months is not long enough to heal. Give yourself more time. The learning curve is steep for the gluten-free diet. Check out our Newbie 101 thread under the "Coping" section. It takes most of us a year or longer to heal. Remember, this is an autoimmune disorder. A flare-up triggered by gluten can last for weeks or months. Do they bake in...
  21. cyclinglady
    Thanks! We use a lot of corn tortillas, but I like the pancake idea! My family would really like these. Me? I have diabetes too , so I stick with lettuce wraps!
  22. cyclinglady
    With the new gluten-free labeling laws, this company has probably chosen to remove the gluten free statement from their gummies because they do not test for gluten even though they might not put gluten in their product at all. They also probably added the allergy statements concerning the facility for the same reason (new labeling laws). (I do not have...
  23. cyclinglady
    It sounds like you need to find a new doctor! I live on the West Coast, but how far are you from Chicago? Might be worth a trip to the University of Chicago's celiac center. Just something to consider.
  24. cyclinglady
    Can you clarify? Was it plain coffee or a flavored one? How long have you been gluten free? You might be reacting to coffee if your gut is still damaged. It's pretty acidic. Did you drink it on an empty stomach? Tea will do that to me. My grandma who was British, always insisted we drink tea with milk and to have a biscuit too! Coffee...
  25. cyclinglady
    Foam, I am glad that you are doing well! After one year of being gluten free and still following the Standard American Diet (SAD), I was feeling better but not great. Then I got my diabetes diagnosis. I went grain free, cut the carbs (because any carb can raise blood sugar per my meter) and I consume lots of dairy (mainly plain yogurt), fats...
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