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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Ugh! KarenG still has me beat for "All Time" postings. (Do not let my hubby see this.) I must post way too much! Can you tell that I love to talk? Humm....I keep telling myself that I love to help others. In turn, it helps me keep on the gluten-free diet and makes me feel connected to those who are in the same boat. But maybe, I am ADDICTED...
  2. cyclinglady
    Brian, Welcome to the forum. You have been given excellent advice. Six months into the gluten free diet after a celiac diagnosis is still early in the game. I do not know why many doctors say it just takes a few months (in theory it should take just a few months). It takes a few months just to learn the gluten free diet as the learning curve is...
  3. cyclinglady
    So nice of you to be supportive. Anyone can get headaches (celiac or not). We are not doctors and can not offer medical advice. But I can say that any medication should be gluten free. If the headache is severe, a trip to the doctor is best. It might not be related to celiac disease.
  4. cyclinglady
    The ultrasound will catch the stones, but a HIDA scan (nuclear test) will determine functionality. You might not need this if you are not having pain or digestion issues. I had uterine fibroid tumors (one huge strangulated one was removed during my C-section). More grew back, but those never bothered me. They are still there for all I know. Maybe...
  5. cyclinglady
    The IgA (deficiency) test is usually run to determine if the TTG IgA or the DGP IgA celiac tests are valid. It does not determine celiac disease. It is used as a control test in the case of diagnosing celiac disease. Your son has an elevated IgA which can mean many things like allergies, infection, or an autoimmune disorder. (Assuming you correctly typed...
  6. cyclinglady
    Thanks, Karen!
  7. cyclinglady
    My hubby went gluten free 15 years ago per the poor advice (based on what we know today) from my allergist and his GP. He did it. Took about a year to really get the diet down and to have the determination to stick with it. It worked! But now he refuses to do a gluten challenge. Getting "glutened" has made him very ill for at least a week. But he'd...
  8. cyclinglady
    May I suggest you read our Newbie 101 thread located under the "coping" section of the forum? You might find some helpful tips! Enjoy your meal!
  9. cyclinglady
    I love Gemini's no nonsense advice! As usual, it is excellent. Here's my two cents. My grandma had RA and Lupus, my mom has Fibromyalgia and Graves, my MIL had Multiple Sclerosis. Mom is still alive and kicking in her seventies. Grandma and my MIL lived into their seventies too and that was long before any good medical support. If I had known about...
  10. cyclinglady
    It is so nice that you want to make a meal for your friend who has celiac disease. However, as nice of a gesture it is, as a person with celiac, I never eat food prepared by anyone who does not have celiac themselves or is a trained chef. Why? Well, you noticed that cooking spray might have gluten. But what about your non-stick pans, wooden spoons, colander...
  11. cyclinglady
    Hi Galixie! I had my gallbladder removed almost a decade ago (celiac disease dx in 2013). I often wonder if my gallbladder could have been saved if I had known about celiac disease and had been healed by adhering to the gluten-free diet. Anyway, I have not researched this much as it is "water under the bridge". But I can tell you that my diet is heavy...
  12. cyclinglady
    Hello Nicole! Welcome to the forum. Have you been tested for celiac disease? You should rule it out before embarking on a gluten free diet.
  13. cyclinglady
    No, I would not recommend taking B-12 unless you are deficient based on lab results. There are several types of anemia. The low iron stores that you have (ferritin) appears that you have iron-deficiency anemia. But you could have a different anemia on top of that one (I have Thalassemia which is genetic and diet or supplements are never going to change...
  14. cyclinglady
    If you already are gluten light (not consuming grains) an intestinal biopsy would most likely be negative (at least for celiac disease). I think you are on the right path. Cross contamination is huge for celiacs as well as hidden sources. Please give the diet at least six months. It took me over a year to feel well and "normal" after two years and I do...
  15. cyclinglady
    I am sorry that I was not able to help you. I am definitely not a doctor. I am 54 and was on and off HRT for over a decade, but autoimmune issues run in my family -- not cancer (though you never know). I agree that medical doctors do not get much training when it comes to nutrition (though I think they are improving). I laugh each time I see...
  16. cyclinglady
    You are a minor and I do not think you can do this alone. You need to get your parent's involved. If they are not willing to help you, you need to find a trusted adult (school counselor, clergyman, doctor, social services -- someone who can get you medical help. I think your parents probably do not believe that you have a celiac disease or a gluten...
  17. cyclinglady
    If you do have celiac disease, absorption of different minerals and vitamins occurs in different sections of the small intestine. I think taking iron, vitamin D3 and calcium as recommended by your doctor is fine for a while. I took iron before I was diagnosed. It would bump up my ferritin level, but it would drop when I got my 30 day periods! Ugh, that...
  18. cyclinglady
    I am not a doctor, but I have had sleep issues and hot flashes (still do) which can be related to perimenopause and menopause (post) symptoms. HRT was helpful for me. The benefits outweighed any risks. I also manage my Hashimoto's thyroiditis as well with hormone replacement. Those hormone levels can be checked by your medical doctor. It's been...
  19. cyclinglady
    Yes, negative but look at this..... Open Original Shared Link Not everyone makes antibodies...... Open Original Shared Link And if not celiac disease, your doctor should rule out other things that damage villi: Open Original Shared Link
  20. cyclinglady
    I am glad you are doing better! I too, am much better! My last bone scan showed that I was holding steady (I was hoping for an improved score), but I have not had a fracture in two years! I focus on strength training and a good diet. Best wishes!
  21. cyclinglady
    Just be sure all your supplements and prescription drugs are gluten free! Do not rely on your doctor or pharmacist to watch out for you. It is a hassle to call the drug company, but it's worth the time.
  22. cyclinglady
    An IgA deficiency (low IgA) is a big concern. It has been actually linked to celiac disease. That's why during a screening, if the IgA deficiency test comes back low, further testing for celiac disease is required. Gluten Free in DC is right. Get another opinion or insist on a complete celiac panel! Continue to consume gluten until all testing is complete...
  23. cyclinglady
    How many biopsies were taken? Did you know that the small intestine (when laid out flat) is the size of a tennis court? It is easy to miss damaged areas per celiac experts like Dr. J. Murray and Dr. A. Fasano. It's another reason why celiacs manage to go so long without a diagnosis. Until is super severe, you are still able to absorb nutrients. You...
  24. cyclinglady
    Well, there HAS to be a reason for you to be anemic. For that reason alone, your doctor should be investigating as to why you are anemic (and don't let them blame in on your monthly cycle). I can only tell you that I went in for a routine colonoscopy (yep, over 50!) and my GI looked at my chart and stated that he suspected I had celiac disease. ...
  25. cyclinglady
    So true! My immediate family jokes that I am the gluten "police"!
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