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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    No. I am NOT IGA deficient! I was retested this month because I was accidentally glutened. Different doctor and perhaps a different lab. Again, everything was negative except for the DGP IGA test. As a result, I have asked my family members to get retested and to ask specifically for the DGP tests. My doctors (GI and GP) agree! The TTG tests do not...
  2. cyclinglady
    Here are all the celiac tests: Tissue Transglutaminase (tTG) IgA and (tTG) IgG -Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG -EMA IgA -total serum IgA and IgG (control test) -AGA IGA and AGA IgG - older and less reliable tests largely replace by the DGP tests -endoscopic biopsy - make sure at least 6 samples are taken (Source: NVSMOM -- ...
  3. cyclinglady
    Looks like your daughter is IGA deficient thus making the IGA tests (TTG and DGP IGA) invalid (common in those with celiac disease). You did get one positive. I am not a doctor, but I am one of the wacky ones who only had a positive on the DGP IGA and the rest were negative yet I had a Marsh Stage IIIB biopsy. Babies are tough to diagnose. Let's...
  4. cyclinglady
    Places like Petsmart have gluten-free pet food. I buy mine at Costco.
  5. cyclinglady
    You should really get tested for celiac disease before going gluten free! Why? Because it is a lifelong commitment. People often find it difficult to maintain the gluten-free diet if they doubt their self-diagnosis. This works for some when all else fails. I do understand the long and frustrating road to getting a diagnosis! Then finally, if you do...
  6. cyclinglady
    Welcome! Here is the deal. It sounds like you have been recently diagnosed. What your doctor probably did not tell you is that it can take months to years to heal from celiac disease. Learning how to eat gluten free is a huge challenge, but it is doable. I encourage you to read the Newbie 101 thread under the "Coping" section of this forum. It contains...
  7. cyclinglady
    Well said and so true!
  8. cyclinglady
    It could be gluten ataxia. Why not get tested? It would be a good place to start. Here are the blood tests and you have to keep eating gluten or the tests will be invalid. Not sure how gluten free or gluten light you may have been. That is something to research.. Typically, you need to to have been consuming 1 to 2 slices of bread daily for 8 to 1...
  9. cyclinglady
    Have you tried an antihistamine? Sounds like an allergic reaction.
  10. cyclinglady
    Tx!
  11. cyclinglady
    Have your doctor order the DGP IGA and DGP IGG tests. These seem to be better in determining dietary compliance. The elevated TTG? I recall a few posters saying that other autoimmune disorders could affect it. Hopefully another forum member can shed some light. But I would be happy to find that is the TTG result is almost normal. Some of us take a long...
  12. cyclinglady
    With a history of cancer, I would push my doctor for a GI consult/endoscopy ASAP! See if they can squeeze you in! In the meantime, you can take a b-12 supplement (sublingually since you might have intestinal damage (be sure it is Gluten free just in case) and eliminate dairy since many Celiacs have lactose intolerance that is often temporary due to...
  13. cyclinglady
    Yes, results can be negative on celiac testing if you are not consuming gluten daily! You need to make sure you had the complete celiac panel. I have Hashi's and I tested positive on only the DGP IGA test. The others were all negative yet I had moderate to severe intestinal damage. If you do not have celiac disease, Non-Celiac Gluten Intolerance, or even...
  14. cyclinglady
    I always double rinse my clothes (per my MIL). We are sensitive people here -- it is not related to gluten. I think these new-fangled washing machines do not do a good job of rinsing. My mother's new top loader without an agitator is awful! It seems to just sprinkle the clothes. My SIL's front loader stinks (okay, it is always damp in Georgia). I...
  15. cyclinglady
    Could be the potatoes (nightshades). Fill up on sweet potatoes (not a nightshade plant) and winter squash instead. I order just plain coffee at Starbucks. We have had baristas post about cross contamination issues. At least postpone until you have healed and have the gluten-free diet under control. Hope you get your test results soon!
  16. cyclinglady
    About your weight loss....are you eating enough "safe" foods (not sure if you have any intolerances)? I took a gluten hit six weeks ago. Weight started dropping. So, I started eating lots of stewed meat and fish, fat (even adding coconut oil to my coffee, drenching olive oil on my cooked veggies, eating chicken skin, consuming the fat from the stewed...
  17. cyclinglady
    You are in a hard place. I wish celiac disease testing was easier! You could have celiac disease but you will never know until you had the testing. I guess it might be worth it since you are doubting yourself. I am officially diagnosed, but my husband is not. He went gluten-free 14 years ago per the poor advice of my allergist and his GP. It worked...
  18. cyclinglady
    Ditto what Gemini stated!
  19. cyclinglady
    Here are a few links: Open Original Shared Link Open Original Shared Link I hope this helps!
  20. cyclinglady
    I would say no. Like Gemini stated, the DPG tests are specific to gluten. Keep eating gluten until all testing is complete. The next step is to do an endoscopy and take at least six samples. I have Hashi's and had only the DPG Iga test show positive. The rest were negative and yet I had moderate to severe intestinal damage.
  21. cyclinglady
    Based on studies by celiac experts, the "less than 20 PPM" is deemed safe and should not cause intestinal damage. You might find this interesting reading from the FDA: Open Original Shared Link
  22. cyclinglady
    My hubby typically recovers in just a few days too. Not me! I was diagnosed over two years ago (anemia was pretty much my only symptom) and it took me about a year or longer to feel good and resolve all deficiencies. I think was accidentally glutened a few times during my recent vacation in July. Five weeks later, I am still suffering. Now I have...
  23. cyclinglady
    I use Lipton tea bags too. Whew! It's going to be over 100 degrees today. Heading to the refrigerator for some ice tea that I brewed this morning!
  24. cyclinglady
    Glad to be of help. I would avoid going out to eat until your symptoms are under control. It is like Russian Roulette -- especially with SIBO and MC. Also, I would research the SIBO diet and adhere to that for a while. At least discuss this with your doctor. From my understanding antibiotics can not do it alone. The diet helps. I am pretty sure granola...
  25. cyclinglady
    I think a gluten challenge should be the least of your worries! I would focus on getting well and healing from SIBO and MC and that probably means going gluten-free forever! I am diagnosed formally (two years) but my husband went gluten-free per the advice of my allergist and his GP 14 years ago. It took a year for him to get the diet down (no cheating...
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