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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by cyclinglady
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ARCHIVED A Little Bit Confused...
cyclinglady replied to Georgia-guy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
For the blood test to be valid, you should be consuming gluten for 2 to 3 months or a few weeks if you are just doing the biopsy. Go to the University of Chicago's celiac website and review the testing requirements with your doctor. Open Original Shared Link -
ARCHIVED Gluten In Medications
cyclinglady replied to daytonav8's topic in Gluten-Free Foods, Products, Shopping & Medications
Any medication can contain gluten (inside and the coating). You have to check with the manufacturer. You can ask the pharmacist to help you. -
You must be consuming gluten if you plan on getting tested. I think it is a piece of bread or two for several months for the blood panel or less if you are getting a biopsy. Please look at the University of Chicago's celiac website for complete testing details. Oh, I can relate to the coconut intolerance! I hope you find your answers!
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ARCHIVED Does This Mean I'm Going To Be Super Sensitive To Gluten?
cyclinglady replied to Kirakisses's topic in Coping with Celiac Disease
I am not sure I understood the poster's question properly. I assumed that the poster was worried about small amounts of gluten from cross contamination in her still gluten-containing kitchen causing symptoms. I think five days in is too soon to determine if she is a super sensitive celiac. Would you agree? Reading the newbie section under "Coping"... -
ARCHIVED Does Dh Disappear And Reappear?
cyclinglady replied to anti-soprano's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
DH is supposed to be INSANELY itchy and lasts and lasts long after exposure to gluten. Scabs form over the water-filled hives as you scratch even in your sleep. Folks get scars from scratching. Allergies affecting the skin can be itchy, but I do not think they would be in the insane category. I get hives from the cold that wheal up and itch, but they... -
ARCHIVED Does This Mean I'm Going To Be Super Sensitive To Gluten?
cyclinglady replied to Kirakisses's topic in Coping with Celiac Disease
Yep! Once your testing has been completed, I would advise eliminating gluten from your house. My husband and I are gluten-free, but my 13 year old is not. I buy her prepackaged gluten foods to take to school. If she wants a burrito or pizza, we stop after school. She eats gluten-free waffles, toast and bagels in the house and begs for gluten-free cupcakes... -
ARCHIVED Does Dh Disappear And Reappear?
cyclinglady replied to anti-soprano's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
When my daughter was sick one weekend, she kept asking for Orange juice. We complied thinking she needed to stay hydrated even though we normally do not allow juice (eat the fruit). She broke out in a rash and took her to Urgent care thinking she had some weird virus. They were not concerned about the rash. It went away. Then a few months later, I was... -
ARCHIVED Weight Loss Seems Impossible
cyclinglady replied to moosemalibu's topic in Related Issues & Disorders
I am diabetic (celiac disease too) and chose the low carb, high fat diet to control my blood sugar three months ago. I dropped 10 pounds in a flash! I thought that having a kid at 40, plus getting older meant weight gain even though I am active. By the way, I have always had a normal BMI. I now weigh what I did when I was married. This diet has lowered... -
ARCHIVED Looking For A Little Advice For My 4Yo
cyclinglady replied to Sarahaa's topic in Parents, Friends and Loved Ones of Celiacs
Sorry, do not know anything about B-12 as I am not a doctor, just a mom! -
ARCHIVED Looking For A Little Advice For My 4Yo
cyclinglady replied to Sarahaa's topic in Parents, Friends and Loved Ones of Celiacs
MCV means little blood cells. I have them and so does my daughter. It is genetic. If she has good hemoglobin and ferritin, then she is fine. You can google it. -
ARCHIVED A Little Input Please
cyclinglady replied to beth01's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hang in there! If you can avoid the glutenings, you should feel relief soon. It took me about six weeks to see improvement. Everyone heals differently though. Some take a bit longer and others less. Good job on cleaning gluten out of your house. Do not eat out until you are feeling better. Every glutening sets off your system and can take 1 to ... -
ARCHIVED Non-Gold Standard Dx Or No Dx--Which Is Better?
cyclinglady replied to BlessedMommy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I think I mentioned that my husband has been gluten-free at the advice of his GP/PCP and my allergist for the past 13 years. "Why don't you give up wheat for a week and see what happens?" First, he stopped snoring immediately. That, in itself, was a miracle and still is the first symptom to appear when he gets glutened by accident. Then all his body... -
ARCHIVED Vanilla?
cyclinglady replied to BlessedMommy's topic in Gluten-Free Foods, Products, Shopping & Medications
Just buy a reputable brand like McCormick. I use Costco's vanilla extract. It has a long shelf life because of the alcohol and it is inexpensive. -
ARCHIVED Acid Reflux (Gerd) And Celiac
cyclinglady replied to Woodhach's topic in Related Issues & Disorders
Takes time to heal and time to really learn about living gluten free and preventing setbacks from cross contamination. Have you read the newbie thread under coping? There are some great tips there like the ones Mamaw suggested. -
ARCHIVED Small Toaster Recommendations
cyclinglady replied to BlessedMommy's topic in Coping with Celiac Disease
I just purchased the toaster bags for an international trip and can not vouch for them yet, but for almost the same price I purchased a toaster at Walmart for out RV. In the original box, it stores nicely in the microwave. I did purchase another cheap toaster to use at my Mom's house since we are there six to eight weeks out of the year. I store my gluten... -
ARCHIVED Going On A Cruise This January Kinda Nervous About Food....
cyclinglady replied to KayM's topic in Traveling with Celiac Disease
Great tip! My food will be purchased in England. Will not bring in fresh fruit. Just prepackaged stuff. -
ARCHIVED Dr. Fasano's Gluten Freedom Discussion
cyclinglady replied to powerofpositivethinking's topic in Publications & Publicity
Thanks! Counting down...six weeks. -
ARCHIVED Dr. Fasano's Gluten Freedom Discussion
cyclinglady replied to powerofpositivethinking's topic in Publications & Publicity
No, they were the Boska Holland brand. I read the reviews and they seemed okay. I thought they might be useful at the B & B's in England. We are staying in one B & B in Bath that caters to Celiacs for several days. I will use the bags at other B & B's that are not gluten friendly. I plan on packing in food at those locations. -
ARCHIVED Dr. Fasano's Gluten Freedom Discussion
cyclinglady replied to powerofpositivethinking's topic in Publications & Publicity
This thread is so timely! I just ordered his book on Amazon (along with toaster bags for our trip and I hope they work). I can not wait to read it. -
ARCHIVED Going On A Cruise This January Kinda Nervous About Food....
cyclinglady replied to KayM's topic in Traveling with Celiac Disease
I am still packing snacks for excursions. I challenge them to toss out gluten free food! It is not as if I were smuggling in alcohol! -
ARCHIVED Facial Swelling After Glutened
cyclinglady replied to annajazz's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Rosacea and swelling go hand in hand for me. My face is completely clear unless I eat the foods that trigger it. In my case, red wine is big trigger. Within minutes I get itchy and then a red bump will appear and it will turn into a tiny pustule, but it is not a pimple. My skin under the itchy rash area will actually raise and swell. Mostly affects... -
ARCHIVED Diagnosis Confusion
cyclinglady replied to KayM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I was diagnosed last year, but my husband went gluten-free 13 years ago at the advice of his GP and my allergist. There is no way he will ever do a challenge at this point. He knows that gluten makes him very sick. Though he says that I have fared much better in terms of support from medical and family. The kitchen is my domain and I prepare all the... -
ARCHIVED A Few Questions
cyclinglady replied to ashleyld's topic in Parents, Friends and Loved Ones of Celiacs
Read the newbie section under the "coping" section of this forum. Also, my husband went gluten-free 13 years before me. I think it is easier to make the entire house gluten free for a while. Better for her and for you. Testing is in order for all of you. Do not stop eating gluten until testing is complete. Welcome! -
ARCHIVED Waiting On Daughters Biopsy Results, And Have A Question.
cyclinglady replied to mom2J's topic in Parents, Friends and Loved Ones of Celiacs
Yes, anxiety goes hand in hand with celiac disease. I thought I was going crazy and blamed it on menopause, but it was really the celiac disease. The anxiety went once I healed up! I am glad you know where you stand and that your daughter feels better soon. -
ARCHIVED Fringe Benefits To Making Kitchen gluten-free
cyclinglady replied to BlessedMommy's topic in Coping with Celiac Disease
Yep, my diagnosis coincided with my 25th wedding anniversary. I treated myself to all kinds of gluten-free kitchen gadgets!