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Nantzie

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Nantzie

  1. That's not how I meant that at all. I'm talking about the bragging part - not the cheating. I'm talking about when people go on a diet for weight loss and then talk about how they're eating all the stuff the diet says they shouldn't eat. Usually accompanied by lots of giggling. Cheat brag = bragging about cheating and thinking it's funny and...
  2. I don't mind people going gluten-free to lose weight at all. I think a lot of the 95% of undiagnosed celaics may end up figuring it out by doing something like this. But it's the restaurants issue that concerns me too. Can you imagine what would happen if a chef went out of his way to specially prepare a gluten-free meal for someone who he thinks...
  3. I wouldn't worry too much about the sleeping. My kids get on those cycles sometimes - eating a lot or sleeping a lot. Some of my experienced mom friends say it has to do with growth spurts. As far as cheese crackers go, I don't know of any at all. I can't believe that they can make such normal tasting pretzels and nobody has come out with a cheese...
  4. As sick as she is, I wouldn't wait for a second opinion. I'd try the gluten-free diet (dairy free too for now) and see how it goes. You should see at least some difference within a few weeks. I agree that you should find a new ped GI, but I think that's secondary to getting her healthy. Start her on the diet. Worry about finding a new doctor...
  5. Yep. It's just one of the weird things with celiac. You go from eating tons of gluten, go gluten-free for a short time, and then you can't handle even the smallest amount. Nobody knows why it happens and I don't know of any research on it, much less any peer-reviewed articles. When I first found out about all of this, I thought the people...
  6. Here is some information on celiac groups in Indiana. You could start by asking them for recommendations. Open Original Shared Link Open Original Shared Link https://www.celiac.com/st_prod.html?p_prodi...-33107160020.91 Also, try PM'ing jenvan . She's in Indianapolis. She might be able to help point you in the right direction. You...
  7. That's not selfish AT ALL. That's actually my area of interest right now - how to be able to be gluten-free AND travel. Those of us diagnosed as adults sometimes spent years having such bad symptoms that it made travel difficult because of dealing with the symptoms. Now that we're on the road to wellness and can actually leave the house without getting...
  8. Nantzie

    ARCHIVED Dr Appt Today With New Pcp

    I was on the chubby side when I found out about all of this - size 14-16. Now I'm size 10, sometimes 8. I lost 30 pounds over the course of about six months just from going gluten-free - no additional diets or exercise. And more than my fair share of gluten-free junk food, I might add. I think that the medical community in general just doesn't...
  9. Thanks for posting this. Lots of detail that I've never seen. Nancy
  10. Happy Birthday!!! Nancy
  11. Although I've seen much higher numbers, she's got about the same numbers as my kids did as far as gluten goes. They both showed a dramatic improvement in digestive issues AND behavior/mood issues on the gluten-free diet. Nancy
  12. What a lousy day you had. Doctors can be jerks just like everyone else. Consider HER fired, not you. Remember, she works (worked) for you. We wouldn't put up with a lawyer, a dentist or an accountant dismissing our concerns or not taking care of what we go to them for. But we all seem to put up with doctors doing stuff like this. A lot of people end...
  13. Your doctors are misinformed. I can see that they think they're protecting her from something, but they're asking her (and probably other children in their care) to suffer through way more than a diet change. There have been stories of doctors here who refuse to give a celiac diagnosis because they think the diet is too hard. The diet is not hard. Being...
  14. Ugh. That sucks. Why can't they keep their gluteny fingers out of our dang food. Bah! Nancy
  15. Maybe adding some applesauce to the dough? I've never tried this, but I've heard of it being done to make things moister.
  16. Nantzie

    ARCHIVED What If?

    Absolutely. It also makes me wonder how many people are suffering with gluten-induced depression when the gluten-free diet is so easy compared to struggling with depression every day. The gluten-free diet doesn't fix everything and make life sunshine and rainbows, but it sure helps me a lot. I was definitely depressed before my diagnosis. It's not...
  17. I second what Tiffany said. Ice and anti-inflammatories. Ice sucks this time of year, but it would be the best thing for you. Nancy
  18. Yea, I'd say Pamela's would be the best premade mix - you're looking for the Baking and Pancake Mix. Already has the Xanthan Gum in it. Ev - I haven't seen just a basic flour mix from Pamela's. Is there something new out or are you using the Wheat Free Bread mix as a flour mix? Nancy
  19. Nantzie

    ARCHIVED Opinions Needed!

    To be honest, your story fits right in here. It sounds like gluten is a very strong possibility. I would say you should try the gluten-free diet. I had negative tests as well, and my life totally changed after I went gluten-free. I had 18 years of symptoms, the last three years of it being the worst. I also seemed to have a reaction no matter what...
  20. I agree with taweav - it makes me cringe to hear that they're waiting for more damage than what they're seeing. I'm sure they just know how much she's (and you) have been through and don't want to add another thing to her list. But they're doing a disservice to her by saying you should wait. If she actually has villous atrophy (the finger things that...
  21. I've also been diagnosed as gluten intolerant, but I respond to the diet, and especially slip-ups, as if I have celiac. I really don't believe there is much difference at all. I think the villous atrophy is one of many things that can happen to someone with gluten issues. I made the decision not to go for an official diagnosis because some people...
  22. Imodium definitely works for me. Make sure you get the caplets. I heard at one time the liquid either had gluten, or was "produced in a facility" with gluten ingredients. Not sure about the chewables. I always bring some gluten-free bread with me in my suitcase. If you're staying in a hotel, some hotels will provide you with a mini fridge for free...
  23. Pamela's Wheat-Free Bread Mix. Worth the effort of baking ten times over. Nancy
  24. I'm so glad you liked them! They're yummy aren't they? You could try using the flour mix and xanthan gum as a substitute in your fortune cookie recipe and just see what happens. That's all I did with my recipe and it ended up working out fine. That flour mix is pretty successful with baking any kind of cookie that I've tried. It's definitely worth...
  25. When we had a combo household, I used dishcloths instead of sponges - one color for gluten, another for gluten-free. That way even if a mistake was made, you just put them through the washer and dryer like any other towel and it's fine. They sell dishcloths most places. The ones I use are from Walmart. I get them in the same area as mops, rubber...
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