Jump to content

Nantzie

Advanced Members
 View Profile  See their activity

  • Posts

    1,575

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Nantzie

  1. Nantzie
    Hello! I've been seeing all the cute 70's and 80's pictures on the board and figured there must be something going on in Rachelville. You guys are all so adorable. I read a few pages back and I saw that you guys have been talking about yurts. It reminds me of my dad telling me about yurts and how they make the felt for them. I swear...
  2. Nantzie
    You can be gluten-free and still be tested by Enterolab. The genetic test is the cheek swab. The stool test checks for antibodies in the stool. Some of the same antibodies that they look for in the blood, I believe. The theory that Dr. Fine is working with is that the antibodies are much easier to detect in the stool than in the blood, and they...
  3. Nantzie
    Enterolab. They send their genetics to Laboratories at Bonfils, which is an immunogenetics lab that does matching for transplants, etc. They've been around since the 1970s. When I was deciding whether or not to go through Enterolab, I really researched the genetics aspect. I wanted to make sure that whoever was doing the genetic testing was reliable...
  4. Nantzie
    Ooo... That's good to know. I tried the GFPantry French Bread mix before. I thought it was pretty good, but my husband doesn't like it. I've been meaning to experiment more, but just haven't. I've been using the muffin top pan trick to make hamburger buns too, but it really is kind of a PITA so I don't make them as often as I should. Using the...
  5. Nantzie
    Celiac really does prove that necessity IS the mother of invention. I love donuts. I've been okay with the Kinnikinnick donuts, but they're not the same. Going to try this technique soon. Thanks for posting this. Nancy
  6. Nantzie
    Ugh. Sorry you're feeling so awful. Immodium can help if you're still having GI symptoms (the caplets are gluten-free). I've had some luck with a product called Glutenease if you want to give that a shot. I've found that it doesn't help prevent a glutening, but if I've been glutened it seems to help soften the symptoms. I'm not sure if it would work...
  7. Nantzie
    That is SOOO coool. What a bargain. Thanks. Nancy
  8. Nantzie
    It varies from person to person. As bad as my GI symptoms were pre-diagnosis, I don't usually get anything near as bad as I used to. I've also noticed that depending on how I've been glutened, and how much I got, I'll get different symptoms. But it follows a distinct pattern. For example I always get tired and irritable, but only sometimes do I get...
  9. Nantzie
    He sounds wonderful!! What a dream. A knowledgeable doctor, WITH strong opinions in our favor. There's a Doctors section here. If you could do a new post in that area and let us know his name and location, it could be helpful to others in the future. Sometimes that's the hardest part about the pre-diagnosis period. Doctors are getting better, but...
  10. Nantzie
    I've never heard of anyone testing negative for at least gluten intolerant genes actually. They say that most people carry at least the gluten intolerant genes (it's just that not everyone develops the intolerance). But then again, people don't go around investigating these symptoms if they're not having serious problems. You don't come across celiac...
  11. Nantzie
    Yes. When mine was at it's worst, I would have to push my kids out of the way to run to the bathroom 10 feet away. Sometimes I wouldn't make it. I was scared to go anywhere because it happened without notice. It would just start coming out. Like your son says, I couldn't even feel it until it was already happening. It was horrible. I hope this ends...
  12. Nantzie
    My belief is that if it is something anyone suspects, trying the gluten-free diet is always a good idea. Eating this way is actually pretty healthy. So there's no real reason not to just give it a shot. If gluten has anything to do with anyone's problems, the inconvenience of the diet is worth it 100 times over. I do think that getting tested is...
  13. Nantzie
    Same here. I usually use a soup spoon and mutilate it pretty good in the process. Nancy
  14. Nantzie
    Thanks! That's a great collection. How does Bette Hagman's French Bread compare to the real thing? I've been wanting to experiment to find a good substitute. Nancy
  15. Nantzie
    Cool. Now that you mention it, bleach does make the water slippery doesn't it? Good to know. Thanks. Nancy
  16. Nantzie
    I wouldn't risk it. I heard the same thing about wheat grass and almost passed out while I was home alone with my 2yo and 3mo. Scary. This was before I had even heard about celiac. I didn't know why it did that to me at the time, but it was definitely the wheat grass.
  17. Nantzie
    I used to get dizzy standing up every once in a while. Now that you mention it, I can't remember the last time it happened. Hmm. I'll keep the ginkgo in mind. At this point, my balance is functionally fine, I just know there's that little bit if I do the "test". I'm curious if it will go away completely just by being gluten-free. Our new neighbors...
  18. Nantzie
    I have done the same thing in the hypersensitive realm. I go weeks without getting glutened and start thinking I'm being too careful and get myself zapped. I bought a bag of gluten-free chips a couple weeks ago when I was out shopping and didn't wash my hands before I ate. Not smart. I also do the same thing with St. John's Wort - an herbal antidepressant...
  19. Nantzie
    Really, it's just through being here mostly. I was told when I got my genetic results by someone here that DQ1 tends to have more neuro symptoms as well as the GI. As I've read other people's results and symptoms, it has held true in many cases that there tends to be more cases of neuro with DQ1. I was also told that you tend to be hypersensitive to gluten...
  20. Nantzie
    I came across celiac as a way to fix my GI problems. I had no idea my pain and mobility issues (I could barely walk for about 2-3 years), headaches, balance, nightmares, insomnia, mood issues, etc. had anything to do with gluten. Some of my family members thought I was a hypochondriac and wouldn't even babysit for me so I could go to the doctor. My...
  21. Nantzie
    I hope you're feeling better. The best way I found to keep temptation at bay is to keep a big stash of gluten-free goodies. There are always those days when you're just ticked at the whole situation. Massive amounts of chocolate can go a long way toward making yourself feel better. The automatic mom thing can be hard to adjust out of too. I...
  22. Nantzie
    Hi Janel - I was planning on going to this, but my husband's got crisis stuff at work. He's going to be up all night tonight, and probably some long nights the rest of the week. I was really looking forward to it too. Sigh... Maybe next month. Nancy
  23. Nantzie
    I've heard about this every couple years since the late-1980's. I'm not sure if it's an urban myth, or whether it's a proposal that keeps getting shot down that they keep trying. If you go to www.fda.gov, you might be able to find some information about it. If you can't find anything, you could email them. Let us know if you find anything out...
  24. Nantzie
    You have one of the genes I have: DQ1, subtype 6. It tends to cause neuro and mood issues a little more. You may have pain or mobility issues (like fibromyalgia), headaches, sleep issues, nightmares, balance issues, irritability, anger, anxiety, depression, etc. These can be symptoms that other gene types have, but with DQ1, subtype 6, they seem...
  25. Nantzie
    They sound SOOOO goood... I always forget to check those recipes. Thanks! Nancy
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.