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Latest Celiac Disease News & Research:
Everything posted by kbtoyssni
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ARCHIVED Pre-diagnosis, Is It Possible To Tell Celiac From Ibs...
kbtoyssni replied to nikki2008's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
No. IBS can have many causes, celiac just being one of them. Other possibilities are candida, chrons, ulcers, etc. -
ARCHIVED Overwhelmed With 15 Month Old
kbtoyssni replied to georgeismyboy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Ditto what everyone else said. Go with your gut and get this kid off gluten! It's hard to have a gluten-free kid, but it's harder to have your child get sicker and sicker, to watch him start developing additional, irreversible health issues due to undiagnosed celiac, to have a kid that's too sick to go to school or do anything. -
ARCHIVED Anyone Know Of A Decent Free Voicemail?
kbtoyssni replied to nikki2008's topic in Introduce Yourself / Share Stuff
You can call into most answering machines, enter a password, and listen to the messages. Could this be an option? -
Awesome! That doctor's a keeper!
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ARCHIVED Overly-anxious Child
kbtoyssni replied to Darn210's topic in Parents, Friends and Loved Ones of Celiacs
Gosh, I'm sorry you have to deal with this. Must be really tough to see the little guy going through all that. I wish I had some advice for you. I imagine the death of his sister combined with ill health due to celiac could definitely be the cause of his health and injury related anxiety. -
ARCHIVED Where To Get Gluten Free Kids Stickers
kbtoyssni replied to Vanessab00's topic in Parents, Friends and Loved Ones of Celiacs
I think it is *possible* for stickers to contain gluten, but it's not common. I'll admit that I make the assumption that stickers don't have gluten and go ahead and use them. As of two years ago I know RoseArt brand stickers were gluten-free. Not sure about other brands. -
ARCHIVED 1 Week Gluten. Enough For Positive Biopsy?
kbtoyssni replied to MELINE's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It's probably not long enough. Do you really think you can re-create all the damage you did to your villi in just one week? If I were you I'd politely tell my doc that I would not be having a scope. -
Could you drive out of the area to buy uncontaminated veggies? Or take a shower at a gym outside the contaminated area?
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ARCHIVED My New House Is The Size Of A Shoebox
kbtoyssni replied to imsohungry's topic in Introduce Yourself / Share Stuff
If you are looking to save money on curtains for the closets, I bought a spring-loaded shower curtain rod at Target for about $10 and bought a top sheet (about $5) for the curtain. I did have to hem the bottom up a bit, but using sheets for fabric is so much cheaper than going to the fabric store. Plus sheets have that nice fold-over top that you can use... -
ARCHIVED Bob's gluten-free Oatmeal... Not gluten-free?
kbtoyssni replied to crittermom's topic in Parents, Friends and Loved Ones of Celiacs
Maybe they test the harvested oats to 20ppm or something. Not sure how they do it. -
IF you can find a nutritionist who knows celiac, it may be helpful. Most here have found the nutritionist they went to see knows less than they do - they'd hand you a printout of what not to eat that you can get on this site and tell you to eat rice crispies with malt and good luck! I have found that this site is far more valuable than what you can get...
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ARCHIVED Hidden Sources Of Gluten...even Lipstick?
kbtoyssni replied to LeahKristen's topic in Coping with Celiac Disease
Pet food is a common source of gluten. A significant other's personal care products. Baking supplies like sugar and cornstarch that was opened pre-gluten-free and may have had a floured measuring cup dipped in it. -
ARCHIVED I Made A Five Layer gluten-free, Sf, Df, Egg Free Cake And It Held Perfectly!
kbtoyssni replied to Glutenfreefamily's topic in Gluten-Free Recipes & Cooking Tips
Beautiful! -
They have to pick some non-zero limit so it's testable. 0ppm is untestable. The testing method will show if the food has less than 20ppm or greater than 20ppm. Of course, it's possible to test to 2ppm, but the cost of that level of testing would probably make it impractical for companies. While I also only want a gluten-free label on foods that are 0ppm...
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If they are insistent on getting you some food, you could suggest them having a few snacks around like fruit or eggs or individually packaged cheese.
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I feel that I'm the one who has to do all the research on the ramifications of the disease so I can make sure I'm getting the right treatment. Most people your age wouldn't need a test for osteoporosis, but for a celiac I'd recommend it. You're young enough that you may be able to reverse some of the symptoms.
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ARCHIVED Hidden Sources Of Gluten...even Lipstick?
kbtoyssni replied to LeahKristen's topic in Coping with Celiac Disease
Oops, that was what my previous post was supposed to be answering - I could have been more clear about that. So yes, once I realized this could be an issue, I got rid of mine. It probably helped that I still had a lot of experimental teenage and college colors. I wasn't too crushed to see those go! -
ARCHIVED Confused
kbtoyssni replied to lizzy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you are not eating gluten, your body is not going to be producing antibodies. After three years, any antibodies you once had will be gone. You doc doesn't have a clue what she's talking about. -
ARCHIVED Hidden Sources Of Gluten...even Lipstick?
kbtoyssni replied to LeahKristen's topic in Coping with Celiac Disease
I kept some that I had used prior to going gluten-free because I didn't know better. Once I realized, I tossed them all. I really only use one or two shades so I told myself that if I tossed all the ones I didn't use, then I could go get a new shade for fun. Maybe now is a good time for you to clean out he makeup drawer. Most of us keep makeup for way... -
ARCHIVED Mom Thinks I Was Cursed By The Devil...lol! Rant
kbtoyssni replied to Bravie's topic in Coping with Celiac Disease
I think you should move out ASAP. I don't think there's much that you can do to change her mind. I'd also recommend some counseling for you - it may help deal with this dysfunctional family situation. This is your life, you really need to focus on what's best for you. I read a great book on dysfunctional families a while back that might be helpful for... -
ARCHIVED Gluten Free Trial For Celiac Diagnosis?
kbtoyssni replied to Spunky007's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You certainly could be celiac. Bloodwork isn't exactly know for it's accuracy. There are many false negatives. It takes a long time for the antibodies that build up in the intestines to leak out into the blood so positive blood work means you're really sick. It's certainly worth trying the gluten-free diet (but do remember going gluten-free pretty much... -
ARCHIVED Need Help
kbtoyssni replied to jmcbride4291's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hormel deli meats are labeled gluten-free. Oscar Meyer is owned by Kraft and therefore will have gluten labeled (pretty sure many of OM's products have caramel color so it's nice to know this brand will label if it contains gluten). Smuckers always labels gluten. Remember that while you're still healing even gluten-free foods can make you feel sick... -
I'm self diagnosed (negative blood test after two weeks of mostly gluten-free). I tell people I have celiac. I figure the treatment is the same, and I am just as strict with my diet as a true celiac should be. If I were running around saying I'm celiac and not worrying about CC, that would be a disservice to the celiac community. Plus I feel that gluten...
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Are you sure? I'm pretty sure that if you do have celiac, eating gluten will be harmful to the baby. If you're not absorbing nutrients properly, that can't be good for the baby. Many celiacs have fertility problems and miscarriages. Maybe someone can cite some research here. I don't want to freak you out, but I do think that you want to seriously consider...
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It's never rude to put your health first. There are polite, discrete ways to deal with this, too. Politely saying you will eat your own food, not making a big scene of it shouldn't be a big deal. Since your dad had you take your turkey out first, I wonder if he's trying but just doesn't quite realize all the potential places for CC yet. It takes time...