LauraTX

I may have missed this but did you get a total IgA done to make sure your ttg IgA wasn't a false negative?

Edit: spelling is hard.

Milkshakes with cookies and cream of wheat are good ideas.  When I had my wisdom teeth out, I got cups of easy mac and cooked them with extra water, chopped the noodles up with my fork, and slurped it down, haha.  I also got peach cobbler and mac and cheese baby food... you should be able to find some gluteny baby food, the ones for older babies that have kind of chunks in them actually aren't that bad.

Welcome to the forum!

Some Celiacs get what are thought of as atypical symptoms or no outward symptoms at all.  The blood test is a good indicator of the autoimmune activity that accompanies Celiac, and the endoscopy will give you a good idea of what kind of damage is going on in there.  The doctor probably marked you as urgent so you would be scheduled in ahead of the people who are just getting their routine checkup scopes done.

It is likely that you will be told to go gluten-free, so I would take this time to eat up what is in your pantry, and research the gluten-free diet a little bit.  Here is a link to the newbie thread that others have mentioned: https://www.celiac.com/forums/topic/91878-newbie-info-101/

If you have any further questions, feel free to ask us!  Let us know how the endoscopy goes.

thanks for the info.

 

one more question guys, im kind of stessing about if its something else and was wondering if my symptoms actually seem like celiac symptoms or more like somthing else? i was reading about lyme disease and that has scared me a bit as my symptoms are quite similar to many associated with lymes, although lymes is quite rare in the uk.

If you feel like you may be at risk for lyme disease, it is always a good idea to get the blood test to rule it out.  You can just ask them to throw it in there with the other tests.

That is awesome to hear.  It has been since May?  So, 3 months? With more time you will feel even more better!

Welcome to the forum!

I have asthma, allergies, get bronchitis at the drop of a hat, but I also have other conditions that help that along.  Here are a few links to articles you may find interesting:

 https://www.celiac.com/categories/Celiac--Disease--Research..--Associated--Diseases--and--Disorders/Asthma--and--Celiac--Disease-c-3466

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Thanks LauraTX. BEST NEWS ALL DAY

 Made me smile to read that!

Yeah, very inaccurate article.

Welcome to the forum, Maddy!

Just grabbing the plain coffee anywhere is going to be fine as far as gluten issues go.  The flavored coffees and such could maybe potentially have some no-no ingredients in there, so definitely check with the store to see if they have an ingredients list, or write corporate.  Anything blended like fancy drinks at starbucks have some CC potential.  But when it comes to just the plain brewed coffee, have at it!  

Check out the Gluten Intolerance Group's page, they have a few in CO:  Open Original Shared Link

Also general web searches may uncover a non-GIG support group or two.  Udis is based in Co!

Some of the contaminants in rice scare me. I try to use mostly white basmati rice from India, because that rice has the lowest levels of arsenic. Generally, I don't buy rice flour anyhow, I grind it from whole rice.

What tool do you use do grind your rice and millet?  (That is you who makes the millet bread, right?)

I have thought about getting the grain mill attachment for my kitchenaid mixer, but I know it is made for wheat. not sure if other stuff will gum it up.

If you are able to get a copy of the blood test report, we can help you interpret how quite positive it is.  But your doctor is probably correct on that.  If there is any doubt in your mind, get the endoscopy done.  It will help you solidify the diagnosis, and also diagnose how bad the Celiac damage is so you kind of have an idea if it is going to take a long or shorter time to heal up.  If you go gluten-free now and change your mind later, you will have to consume gluten again for the endoscopy to be accurate, so it is best to knock it all out of the way now, and eat through the remaining gluten foods in your pantry.  

Nothing like an overplayed song that gets stuck in your head to turn you into a crazy person with a bad attitude in a snap. :lol:

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That is what that makes me think of.. haha!  (Has a few curse words so NSFW and kids)

You know what makes me happy?  They finally aren't playing that "Happy" song to death on the radio anymore.  Yay!

Have you seen a doctor yet?  That should always be the first step.

.... You'll find some about as nutritional as licking your walls...

I like my waffles to taste like the schnozberries on the wall!

I'm going to try to get more info from Chanel, but in the meantime - what do you all think about this in terms of lip products?

I think Chanel gave you a pretty thorough answer.  Shared facility, no gluten ingredients used.  They don't want to call anything gluten-free since they are not set up for that.  I do think lip products need the most investigation, and to me, the answer they provided (no gluten but also a cover your bum statement) is good enough to mean it is safe for use.  Some people who are super sensitive may not feel comfortable with that, and that is why gluten-free lipstick is a profitable endeavor for the red apple people.  Honestly, I don't know the price difference between Chanel and some of the certified gluten-free cosmetic makers, but if I am going to spend a lot of money on a product, I will buy the one that caters to my needs the most.  So, if I buy a $6 jar of pasta sauce, I am going to buy the one labeled gluten-free over the one with just no gluten ingredients that I had to write the manufacturer for.  That doesn't mean one is necessarily more gluten-free than the other, but I want to reward the efforts of the proactive company with my purchasing dollars.

Just commenting on the price difference....and I guess if you just accept that gluten-free flour and food has to be 1000+% more than the gluten counterparts....prices are not going to change.

It just takes a long while to get used to the sticker shock.  After time passes and you no longer stop to stare at the gluteny foods, it will be a little less painful.  I will say that the cup4cup flour brand is usually the most expensive option I see out there, but lower demand things like gluten-free flour that need special handling and testing are just going to be more pricey.

Im working on making my own cup for cup flour with some actual nutrition. Im hoping to make some freezer waffles or pancakes when I finally decide how I want to make my flour.

If you are going to do a lot of baking, check out the Americas Test Kitchen does gluten-free cookbook. They have a nice flour blend recipe in there, and give some really great explanations and tips on substitutions and such. Making your own flour may not realistically turn out to be a cup for cup kind of thing, but once you get familiar with a flour blend you will know how to adjust recipes.  Measuring by weight usually gives you the best results. 

Ok-then along the same like--Jergen's Lotion says the same thing--their products don't contain gluten but they can't guarantee their suppliers are the same...so ok to use or not?

 

INGREDIENTS: WATER, GLYCERIN, CETEARYL ALCOHOL, PETROLATUM, STEARIC ACID, C12-15 ALKYL BENZOATE, ALUMINUM STARCH OCTENYLSUCCINATE, DIMETHICONE, LAURETH-3, CETEARETH-20, DMDM HYDANTOIN, ALLANTOIN, METHYLPARABEN, ARGININE, SODIUM HYDROXIDE, PROPYLPARABEN, CARBOMER, FRAGRANCE, PANTHENOL, PENTYLENE GLYCOL, LECITHIN, ALCOHOL, ASCORBYL PALMITATE, TOCOPHEROL.

When it comes to cosmetics, I just read the label and if there are no gluten ingredients that is sufficient.  Non-food companies are rarely going to give a gluten-free guarantee, so the answer you got from jergens is usually the best you are going to get unless you want to pay for the guarantee that comes with some certain brands, but in reality it isn't necessary.  Unless you are putting that lotion into your mouth (Ever see that show my strange addiction?) the inability to rule out trace amounts is not a big deal.  

I would have left after he handed me the biscuit.  

Looks like the standard "No ingredients but we don't test for it" response.  With something like makeup, it seems fine.

I completely agree with the sentiment that you can create your own happiness even if your life is full of chaos.  My life story is full of tragedies and terrible things, and in my current state I have a number of terrible illnesses to deal with.  The way I cope is looking at the positive.  If you don't know how to do this, please do the most loving thing you can do for yourself and seek counseling.  It can be hard to be happy when a lot of things are going bad, but in the end it teaches you what truly matters.

I had some, and immediately, indigestion. Had to go to the bathroom. But then felt ok. I haven't had any gluten in 2 weeks. Are you absolutely SURE that this product does not contain gluten (I am in the U.S...)

There are no gluten ingredients listed, but if you want to be absolutely sure the product is manufactured in a place free from cross contamination, you will need to contact the manufacturer.  

As Karen said, if anything bothers you, don't eat it.  It doesn't mean there is gluten in it, just some people cannot tolerate certain things, especially with a healing gut.

I understand how you feel here.   When I first left college I got a job that worked with animals. Unfortunately, I am allergic to most of them, and I had to leave that position.  With those types of allergies they eventually get worse and I was going into mild anaphylaxis so I had to get the heck out.  It is a hard and stressful step to make, but you just have to roll with it and try to make the best of it.  

Sorry you had to pick up and go, it is really hard when you don't have time to plan.  But you seemed to handle it well!  I will help family bake and cook at their house, but usually it isn't anything crazy poofy.  If you are worried about poofy flour you can wear a face mask to keep it from being ingested after it is inhaled.  But I am glad to see you finally had something turn out well on the food end!