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Nancym

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Everything posted by Nancym

  1. Nancym
    Anyone with an autoimmune disease has a much higher chance of having celiac disease too. The causality isn't established yet, although it seems pretty clear in my mind that if your body is under siege constantly from antibodies created in reaction to food proteins, it could start responding to other body proteins (which causes autoimmune diseases). Plus...
  2. Nancym
    I'm glad you asked that, I was about to ask the same thing.
  3. Nancym
    You might want to check out The Gluten File (see signature). I'd definitely be supplementing B-12 and Folic acid but the other B's as well, B-6 can get depleted. Might as well get them all as B vitamins are water soluable and what you don't use just gets peed away. Congrats on getting a clear diagnosis, so few of us do!
  4. Nancym
    I had my bladder scoped once... OW! The actual procedure, like you said, isn't bad but the pain when you pee afterwards is hideous. They gave me some kind of pills that made my pee orange that were supposed to help with the pain. I suppose they did. Man, it is hard getting yourself to "let go" when you know that pain is coming. Anyway, I feel for...
  5. Nancym
    Personally I'd use enterolab.com, in fact, I did! I think that lab, Optimum, might have been called "York" before and they had just horrible customer service. People waited months and months for their tests. Sounds like (if it is the same lab) nothing has changed.
  6. Nancym
    Allergies are not the same thing as intolerances. Allergies involve IgE immune thingies and intolerances involve IgA immune thingies. Other differences are: Allergies are generally fast acting and can be very severe to life-threatening shortly after you eat. Intolerances may take 24 hours or more to show up as they might not affect you until they get...
  7. Nancym
    You might find this interesting: Open Original Shared Link
  8. Nancym
    Well, if you want to feel well and lose the symptoms, I'd recommend treating this just as if you had a celiac diagnosis. There's a lot we don't know about celiac disease versus gluten intolerance but as far as I'm concerned, I'm treating them exactly alike. At least give it a good honest try for a few months and see if your symptoms clear up.
  9. Nancym
    TJ has stock that comes and goes. Some of it is seasonal, some is just part of their normal business cycle. I always try to stock up when I find something I really, really like. BTW: On the W. Coast they have a flyer listing all their gluten free products located on a display. Those of you on the E. Coast might want to look for that flyer. They do...
  10. Nancym
    I was making a Christmas Stollen, a pretty wreath-like cake (pre-gluten free days) and I forgot to add the eggs. I ended up adding the eggs after the dough was all formed. It came out ok anyways, if I recall correctly. My first dinner I made for family, right after graduating from college, I put the salads in the freezer to just get a nice chill quickly...
  11. Nancym
    No, not all have gluten intoelrance genes, some have celiac genes. The DQ1 gene you have is associated with neurological problems. You probably won't find intestinal damage (although sometimes some people have it anyway, rarely) but you may have a lot of neurological symptoms like brain fog, ataxia, seizures, depression, anxiety, etc. The Gluten File...
  12. Nancym
    Yeah, they're weird these doctors. I guess they think that life on a gluten free diet is so horrible that one should be on the Midnight Express to death before prescribing such a diet.
  13. Nancym
    I have some made from Birch that are the softest most wonderful sheets I've ever had!
  14. Nancym
    I diagnosed myself based on dietary trial and using Enterolab.com. It isn't an "official" diagnosis, but I'm a big girl and don't really need one to change my diet.
  15. Nancym
    Doesn't the return of your symptoms kind of confirm that you need to stay on the diet? I mean, what if the results come back negative, are you really going to resume eating gluten and just tolerate the symptoms? I'm not following your logic.
  16. Nancym
    I would think the earlier you start the easier it is going to be to keep them on it. Besides, why not have the whole family eating the same? It's gotta be a ton easier and lowers the cross contamination issues for those of you who KNOW you have issues.
  17. Nancym
    Empty your house of gluten. That should help a lot.
  18. Nancym

    ARCHIVED Fat/mental & Celiac?

    Nancym replied to Cag's topic in Doctors

    I heard it was like 11 minutes on the average. :\
  19. Nancym
    Dairy gives me awful muscle spasms. Good luck figuring this out! I also want to suggest you might have a kidney infection. See your doctor!
  20. Nancym
    Well, I'm sorry your daughter is having a hard time sticking to the diet. Would sending treats to school with her help keep her from cheating? If she had her own gluten-free cookies, maybe she wouldn't eat the gluten ones. I feel that gluten intolerance can be just as damaging as celiac disease. It has probably caused a couple of autoimmune diseases...
  21. Nancym
    The tests are often falsely negative or inconclusive and so many of us have to believe that dietary response is the best test of all. If it is important to you, ask your doctor for the diagnosis based on dietary response. If not, then just stick with the diet anyway! Genes can't really determine it. You could have the genes but it might not be active...
  22. Nancym
    I'll give another plug for The Paleo diet (or any sort of evolutionary diet). It really helps a lot of people with their autoimmune diseases. Sounds like you could possible have one. Google "paleo diet" and read up. I have a form of autoimmune arthritis that it helped me with immensely. I found that all grains (rice not so much) were giving me issues...
  23. Nancym
    You might want to read some of the articles by Dr. Lewey. He writes a lot about multiple food intolerances. Open Original Shared Link It won't be possible to get this diagnosed by a typical GI doctor, they're just not informed.
  24. Nancym
    Read this and see if it helps: Open Original Shared Link Open Original Shared Link
  25. Nancym
    I wonder... I made a chocolate flourless cake for NY Eve using Open Original Shared Link recipe. It was divine! Anyway, I'm thinking that perhaps yours was a bit overcooked? That'd certainly dry it out. The recipes I see for cakes like this with loads of eggs and ultra dense usually have you cook them in a water bath.
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