 
        africanqueen99
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Latest Celiac Disease News & Research:
Everything posted by africanqueen99
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	ARCHIVED I Have Cancer, Was Just Diagnosed Gluten Intolerentafricanqueen99 replied to JesikaBeth's topic in Coping with Celiac Disease Thyroid cancer in 2007 when my oldest was just a wee one. I'm only gluten-free because I'm still nursing one of my kids with Celiac, though. I've never been a worrier and have always been pretty darn healthy, but the experience of cancer helped me realize that nobody else cares about my health, but me - so it was MY job to keep riding my Pediatrician...
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	Aldi'safricanqueen99 replied to Tina73's topic in Gluten-Free Foods, Products, Shopping & Medications I emailed Aldi asking them to consider keeping their gluten-free line in their regular offerings and this was their response... Yay! Aldi isn't in my regular rotation, but I would totally make a trek there regularly for many of their gluten-free foods. Granted, I have two Aldis in a ten minute drive...so it's not out of my way.
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	ARCHIVED While Tests Say No I Think Ds Has Celiac.africanqueen99 replied to gypsyrosenfmommy's topic in Parents, Friends and Loved Ones of Celiacs My youngest also had that belly - she looked like a kid in a Sally Struther's commercial. All belly and little twig limbs. I still remember those screams all night long. That was a really rough year. But, like Cara, I waited out everything to get a true DX. Please reconsider altering his diet until he has a firm DX. It will makes things so much easier...
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	ARCHIVED One Child Celiac, The Other Notafricanqueen99 replied to beth01's topic in Parents, Friends and Loved Ones of Celiacs I have two kids with and one without - with a gluten-free house and car. The middle kid is pretty much always with me or fed by me so he's gluten-free, but every once in a while my husband will take him out for a "gluten fest".
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	We have several different lunch box options - totally depends on the day. I will say that the LL Bean one is our favorite. Plenty of room for the storage boxes and a separate water bottle space. Stays cold. It's like the perfect lunch box shape! In fact, at the end of last year she lost it (how? I don't know!) and I picked up another one on vacation...
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	ARCHIVED New Hereafricanqueen99 replied to BeckyS.'s topic in Parents, Friends and Loved Ones of Celiacs Hi Becky! I hit the genetic lottery with 2 out of 3 kids with celiac. And I started out sad, scared, overwhelmed and so obsessively occupied with food. But it gets easier with time. I promise! Ask anything you want - seriously don't reinvent the wheel. The parents on this forum rock and are insanely helpful!
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	ARCHIVED Suspected Celiac In Toddlerafricanqueen99 replied to maddierozell's topic in Parents, Friends and Loved Ones of Celiacs Will they run a stool sample? It won't confirm Celiac, but the sacs sound like something is going on.
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	ARCHIVED Places To Eat In Atlanta...africanqueen99 replied to africanqueen99's topic in Gluten-Free Restaurants Thanks! If you think of anything else please let me know! We used to always have a rule that we wouldn't eat at chains while traveling - always preferred the "mom and pop" places. Yeah, that's out the door now that the kids' diets are restricted!
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	My oldest is going to Celiac camp next month - she's so excited to not have to think about food for a whole week!! I will be driving her to Atlanta and dropping her off the next day. It's a ten hour drive (no stops) so I'll pack food for the car - we can wing it. My husband and I will drive out again to pick her up on a Friday and spend that night and...
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	ARCHIVED Dealing With Parties At Your Houseafricanqueen99 replied to veryami1's topic in Coping with Celiac Disease Almost all of them. My friend (with the kid that is allergic to everything) kept an excel sheet on her computer. We just took turns calling manufacturers and crossing them off our list. Between wheat germ and oats they kept getting the boot! Like Stephanie mentioned - it's so much of a non-issue for the vast majority of people that it's not a concern...
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	ARCHIVED Dealing With Parties At Your Houseafricanqueen99 replied to veryami1's topic in Coping with Celiac Disease Yep! It's only an issue for my youngest b/c they do a lot of shaving cream play and painting at school. Barbasol is one without gluten (at least that's cost effective for wasteful play). A friend (her kid can't have gluten, corn, egg, dairy) can only use ONE variety of Barbasol! These are just the things you have to think about when the people with...
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	ARCHIVED Ignorant Pharmacistafricanqueen99 replied to Eddierickles's topic in Gluten-Free Foods, Products, Shopping & Medications ^^^ And I'm just saying that I wouldn't trust that information coming from anybody but the manufacturer TO ME. If the manufacturer says there is gluten in it then find a different medication or have it made at a compounding pharmacy. As mentioned earlier, they often have a CYA statement that won't say gluten free, but will say there are no gluten ingredients...
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	ARCHIVED Dealing With Parties At Your Houseafricanqueen99 replied to veryami1's topic in Coping with Celiac Disease Back to OP's post... We do the vast majority of the entertaining and I do it all. When people ask what they can bring I suggest either fruit or raw veggies with dip. Most are happy to have an opportunity to share, but get why I have these rules. Yes, gluten crumbs won't jump off the floor into my mouth, but you can bet my Hoover of a 2 year old will...
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	ARCHIVED Ignorant Pharmacistafricanqueen99 replied to Eddierickles's topic in Gluten-Free Foods, Products, Shopping & Medications Maybe I'm just lucky, but we use CVS for our pharmacy and the pharmacist hands me the box that the medication comes in (without the medication in it, of course) and I stand there and call the manufacturer with the appropriate codes. My kids' notes say they can't have gluten and I just explain that our entire house is gluten-free. It's never been an issue...
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	Aldi'safricanqueen99 replied to Tina73's topic in Gluten-Free Foods, Products, Shopping & Medications I bought one of everything that's certified. The cookies and the granola must be Enjoy Life (the taste is spot on). The kids liked the mini pancakes (not as well as fresh "mom made", but good enough to eat before school). The pepperoni pizza wasn't bad - not that frozen pizza is ever good, but the cheese was horrible (and my kids prefer cheese). The younger...
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	ARCHIVED Toys? Wash Or Buy New?africanqueen99 replied to Sw33th34rt4my's topic in Parents, Friends and Loved Ones of Celiacs Sorry - just clarifying a different point. You and two of three kids have celiac and you all live with your husband. His daughter visits on weekends. Husband and step-kid eat gluten at home. Right?? I would have a very difficult time with gluten eaters in my house/car. Mostly because I know how dirty kids can be. Like the toy box/Goldfish scenario...
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	ARCHIVED Gluten Free At Fast Food Place?africanqueen99 replied to Fenrir's topic in Gluten-Free Restaurants We didn't ask - just held the bag of buns on our way in. Who knows, maybe the other kids in the back were joshing him. I'll just call it odd and move on.
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	ARCHIVED Gluten Free At Fast Food Place?africanqueen99 replied to Fenrir's topic in Gluten-Free Restaurants For those of you that eat at Five Guys - do you take your own gluten-free buns or just eat the slab of meat with the toppings? My family ate there last night (first time as a gluten-free family) and took in a package of Udi's buns. The cashier knew what we were doing and had all the burgers put in the little aluminum bowls for us. During our meal he...
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	I will say that I was overwhelmed when my youngest was DX, but it felt better when the oldest joined her with a DX. Now they weren't alone. And the oldest couldn't be pissed that the baby was forcing all this change in the house. It worked really well for us. And now my middle kid will automatically ask if any food has "gwooten" in it to make sure it...
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	ARCHIVED A Few Questionsafricanqueen99 replied to ashleyld's topic in Parents, Friends and Loved Ones of Celiacs ^^^ Good point. My kids are responsible for feeding the dog and providing treats. We had to switch out all that. I didn't want any chances. FWIW, the dog's coat looks so much better on the grain free diet.
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	ARCHIVED A Few Questionsafricanqueen99 replied to ashleyld's topic in Parents, Friends and Loved Ones of Celiacs ^^^ Oh, I get it. My 2 y/o was licking her arms the other day. Why? Heck if I know! But lotion would end up in her intestines. I'm sure you are nowhere near as bad as an 8 y/o. At least you shower!
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	ARCHIVED What Is Your Restaurant Spiel?africanqueen99 replied to JodyM75's topic in Gluten-Free Restaurants The people with celiac in my house are kids - so we can't chance not being able to eat and giving them water. That would be a disaster! The best thing I ever did was start sharing our DX news with friends that would get it - ones with kids with allergies/intollerance/etc. Then I found out which local and/or chain places are easy to work with. I found...
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	ARCHIVED A Few Questionsafricanqueen99 replied to ashleyld's topic in Parents, Friends and Loved Ones of Celiacs OP's kid is still really young so I'd recommend making anything on the skin be gluten-free, too. Kids always seem to have their dirty hands in the mouths. Heck, my 8 y/o and her gross little friends can't stop picking their lips and sticking fingers in. Why are kids so weird?
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	ARCHIVED A Few Questionsafricanqueen99 replied to ashleyld's topic in Parents, Friends and Loved Ones of Celiacs I ran this process in waves once we got our DX. 1. Had one last "Goodbye to Gluten" party! Friends over to eat out our freezer and pantry. It was awesome fun for the kids. We had so many desserts of just gluteny goodness! 2. Got rid of all gluten containing food. Friends, food bank, a family on Craigslist took all the expired things. ANYTHING opened...
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	ARCHIVED Kudos To Costcoafricanqueen99 replied to TGK112's topic in Gluten-Free Foods, Products, Shopping & Medications My kids are the ones with Celiac in this house - both DX in 2013. Anyway, we used to go to Costco all the time to get hot dogs and then eat up all the free samples. It was a good way to waste a weekend day. Last month we went and every free sample was gluten-free. Every. Single. One. !! As we were leaving my oldest said "It's like they knew we were...
