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tarnalberry

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  1. tarnalberry

    ARCHIVED Disabilty?

    tarnalberry replied to Rpm999's topic in Doctors

    you would, at the least, have to have a doctor confirm your disability. if you're in the US, you may be able to get at least very basic, emergency care at community hospitals. maybe not the best in the world, but better than nothing. sliding-scale clinics are another option, for some. if you suspect gluten-intolerance, you might try getting off *all*...
  2. tarnalberry
    you can't assume that a whole category of anything is gluten free - if it's not a whole food, you *HAVE* to read the ingredients. sryups can certainly have a wheat based ingredient, depending on what type of syrup you're talking about, as it may have malt. salad dressings as well, particularly if they have soy sauce. always, always read the ingredients...
  3. tarnalberry
    my main symptom of hypoglycemia is "nausea". it's not like I feel that I'm going to throw up, but it's definitely an unsettled stomach that does not react well to motion, and is mostly "felt" in my head, though through the stomach. makes total sense, right? anyway, trial and error and research has led me to understand and know that it's a blood sugar issue...
  4. tarnalberry
    I'm probably the least sympathetic when it comes to urges to cheat, mostly saying "buck up" and "use your backbone" (the latter in a friendly, encouraging way). But it really can be hard to *always* have to say no to these sorts of things, when you know lots of people who don't have to. There's really just no getting around the fact that it's a challenge...
  5. tarnalberry
    Blue Shield has many, many different plans, and it depends which one that you are a part of. (For instance, I stayed with the same company (which was providing my employer-provided health insurance), but moved to a different state. The coverage in the new state was a different - and not as good - plan. Still good compared to most of the HMO's, but not...
  6. tarnalberry
    You guys have pointed out something interesting, about lying patients. I think it would also be useful for doctors to be more fully open with their patients about what is useful information. Two of the best doctors I've had do a tiny bit (well, I assume it's a tiny bit, but it's more than none) of their thinking about how to treat me as a discussion with...
  7. tarnalberry
    You may find that the lack of activity on many days is part of the problem - it's lowered your metabolism. I know, I know... trying to find a balance that keeps you from being unable to do anything for days is a problem. I'm still working on finding mine. But you need to get out and do something - and it is likely to help you have more pain free days....
  8. tarnalberry
    There are many ways to do an elimination diet - on mine, I had pork, but not rice (as it can be allergenic in some people), and olive oil as my main sources of protein and fat. It's hard, but mostly you'll have to figure out how you want to do your own elimination diet, if you don't have a doctor walking you through a particular one. The reason to eliminate...
  9. tarnalberry
    On a strict elimination diet (and there are *many* ways to do them), you may well find yourself losing weight, because your options are so limited. Try to eat as many calories as you can, but realize that this is a short term thing. At 124, you are not underweight for your height, (you're doing quite excellently!) so you have a little bit of room to work...
  10. tarnalberry
    If you've gone gluten free, a biopsy may give you a false negative at this point. I would encourage you to continue reading this site, continue learning more about what you need to avoid to stay gluten free, and learning as much as you can. There's a steep learning curve to going gluten free, and it takes time to do it. And it takes time to make the...
  11. tarnalberry
    The first step I want to see is for doctors to trust their patients' self-assessments unless they have a good reason, and I mean a long-standing history of good reason, to believe otherwise. If a patient says that the diet makes them feel better, the doctor should respect that decision, just as the doctor expects respect for the years of training they have...
  12. tarnalberry
    You'll find OODLES of suggestions if you look through the posts on here from the past year or two (and I suggest it not merely because I'm lazy, but also because we'll make lots of suggestions, but forget lots of ones that have been suggested before, and you might find some fun things by going back and looking for posts like this one). Some things I often...
  13. tarnalberry
    Heh, I know the feeling. I've had a lot of conversations that were hard to start (though not related to celiac). I think the easiest way to handle them is to say it up front. The "So, I know this seems odd coming totally out of the blue, but I thought it was important I let you know about this inherited thing I found out about, and couldn't figure out...
  14. tarnalberry
    I would highly encourage you to look into getting something that will enable you to exercise at home in the winter as a *long* term solution instead. I know the difficulty - it's a horrid cycle with the lack of sun, the cold, the blah! I am very glad we built a light box (it's major overkill, but my husband and I like engineering projects, and now I have...
  15. tarnalberry
    I think you've gotten great advice, and know what you need to do, though it must be incredibly hard to do it. So I can do is say *hugs* and send my best wishes that she gets through this phase quickly, and that you two come out of it together, smiling, soon.
  16. tarnalberry
    I've had a couple people say "I couldn't do it". I don't really react to that - they're telling you about their own personal weakness. Like if you said "I love hiking and climbing mountains," and they said "I could never sleep in a tent." It doesn't matter to your choices what they can and can't do. You still make the same choice you're going to make...
  17. tarnalberry
    We all got a tin of M&M's from our boss for a Christmas present. Quite frankly, from someone who often has trouble relating to his group as a whole, I actually feel proud of him for picking something that the vast majority of his unweildly (sp? ) large group would actually *really like*. But I can't have them (I'm Gluten-free Casein-free - they have...
  18. tarnalberry
    Actually, you may be surprised to find that this result is relatively common. As many as half of all celiacs have no outward symptoms, and wouldn't find out they had celiac until a sharp doctor picked up that they shouldn't be showing osteoporosis at 50, or anemia at whatever age, or stomach cancer given their environment. The body compensates as best it...
  19. tarnalberry
    there isn't a "obvious one set of tests" that all doctors agree on for celiac disease. you got a fairly thorough testing. the EMA is on it's way out as a test for celiac, and that "Immoglobulin A" test is likely a total IgA test. What seems missing is a tTg, but you can still get a decent story from 80% of the pages of a book, and this one is saying that...
  20. tarnalberry
    This is a discussion we've had here a number of times. The law has to take into consideration practical, real-world limitations on testing. Testing equipment cannot test down to literally 0 gluten, because instrumentation is neither that sensitive, nor can you have an infinitely large sample size. So, they have to set a "small enough" basis. What is ...
  21. tarnalberry
    that's an interesting case. unless you're talking about no-fat milk and cheese, you're getting dairy fat, and it seems that it's likely something else that you're reacting to. but unless you can pin it down, it does seem like that's the most obvious culprit. (if milk and cheese are all fine, then it sounds like casein is *not* a problem for you, or moderate...
  22. tarnalberry
    The distillation process is pretty straightforward in what can come out and what won't. It's a different, though also physical, process that's usually used to separate milk into it's derivatives - whey, curds, fat (cream that then gets purified further), etc. It's at a macroscopic level that separation occurs, rather than what is essentially a microscopic...
  23. tarnalberry
    it's not just when it was manufactured. companies are allowed to use up old stock of bags/boxes/packaging rather than trashing it all. a little added sticker on the ingredient list would be nice, though... :/
  24. tarnalberry
    heh... I wonder if gravy is one of those things best learned "in person". I only had lumps, once, and that was using some variety of flour or something else. But I definitely saw it made at home a lot. there should be more "easy-access" cooking training.
  25. tarnalberry
    It's the protein or sugar that causes problem for people, so theoretically, pure milk fat shouldn't be a problem, but purity is never assured. So, I'll often not worry about a little tiny bit of *just* milk fat in something like that. Like one or two pieces of Dove dark chocolate (the little bites ones) or one or two After Eight mints, but be aware of how...
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