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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED Msg, Good Or Bad
tarnalberry replied to kathy1's topic in Gluten-Free Foods, Products, Shopping & Medications
MSG is a flavor enhancer. But you know what else is? Salt. ;-) I'll stick with salt. (Until I have sodium induced high-blood pressure? :-) ) Or just plenty of flavorful foods and herbs. -
ARCHIVED Are You Gluten-free?
tarnalberry replied to Lovinglife's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I've been gluten-free for a bit over two years now. I get those symptoms, but from other causes, not the celiac, it appears. I would think that inflammatory conditions like that, however, are going to take longer than a month or two to calm down, and it looks like you're moving in the right direction, so that's a good sign. -
ARCHIVED It's Official... We Can Eat Oats!
tarnalberry replied to jkmunchkin's topic in Gluten-Free Foods, Products, Shopping & Medications
The kind in the box is steel cut oats. So, instead of being rolled, chopped up, and steamed (as the instant is), it is just coarsley chopped. If the instant also had flavors in it, I would definitely worry about cross contamination. I would also think that you could rinse the steel cut oats (though you may have to drain them in something like cheesecloth... -
ARCHIVED A Setback For Celiac Research
tarnalberry replied to Claire's topic in Related Issues & Disorders
That's interesting, since the Labor-Health and Human Services bill gave the NIH a 1% *increase* in funding over last years funding... Summary of the effect of the DoD appropriations bill, which doesn't talk about the NIH at all, and the Labor-HHS appropriations bill, which includes a 1% *increase* in funding for the NIH over FY 2005. Open Original... -
ARCHIVED Casein Intolerant Too, But What Does That Mean?
tarnalberry replied to Nancym's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
From what I've read, a casein intolerance almost never causes intestinal damage. It's possible, but highly unlikely. It can certainly cause a variety of symptoms, and just because it isn't likely to cause villi bluting doesn't mean you should have dairy when you have a casein intolerance, just that it's not an autoimmune condition like celiac disease. ... -
ARCHIVED gluten-free Chocolate?
tarnalberry replied to sillyyak's topic in Gluten-Free Foods, Products, Shopping & Medications
hershey's will label gluten, so check the label. tropical source is also gluten-free, and (I think) tastier than hershey's. :-) -
ARCHIVED Bill To Cut Nih Funding
tarnalberry replied to angel-jd1's topic in Publications & Publicity
post edited out - and I should point out I made a mistake in reading and hence in which bill i was referring to NIH funding being a part of. my apologies for the mistake, it was the Labor-HHS bill, not the defense appropriations bill. -
ARCHIVED Bill To Cut Nih Funding
tarnalberry replied to angel-jd1's topic in Publications & Publicity
It will take as much cutting as would lower it too a point below which I believe research of that priority should be funded at. Yes, I am saying that, to me, it IS ok to cut funding in this area because of the big-picture of economic issues going on in the country. I do not see this, for me, as being the time or place to stand up and say "hold it". ANWR... -
ARCHIVED Bill To Cut Nih Funding
tarnalberry replied to angel-jd1's topic in Publications & Publicity
I may be the lone holdout, but this isn't a cut *aimed* at celiac disease, this is a cut for the whole of the NIH. Given the budget problems we've got, there's a reason to be cutting back on spending, and I think there are more important things to spend money on than celiac disease research. I'm not saying that it's not important (to me), but in the grand... -
ARCHIVED Ediets Refuses To Give A Gluten Free Option
tarnalberry replied to Dangerkitten's topic in Related Issues & Disorders
I think the most likely thing is concern for legal liability. I'm sure they have disclaimers, and whatnot, but people get hopelessly silly over some things like this. -
ARCHIVED Very Discouraging Dr Appointment. - Any Reassurance Please
tarnalberry replied to a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
he may not be looking for major major improvement at the two month mark, but many people *do* have significant improvement (certainly measurable) quickly. -
What kind of dip? I'm partial to hummus (garbanzo beans, tahini, garlic, olive oil, lemon juice, salt), or guacamole (all kinds of ways to make this one!), or black bean dip. I make a fake ranch (can't have dairy) from raw cashews, water, salt, dill, and onion/garlic powders. I'm also quite partial to salsa (mostly the tomato, onion, cucumber, jalapeno...
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if this is the first major drinking that you've had since going gluten-free, you may have just discovered that you've done a lot of healing and are better absorbing what you consumed. additionally, if they used the 100 proof stoli, and weren't going light on it, you may find that 20 drinks was PLENTY to leave you with a NASTY hangover, especially if you...
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ARCHIVED Defatted Rice Bran
tarnalberry replied to candace's topic in Gluten-Free Foods, Products, Shopping & Medications
Bob's Red Mill has regular rice bran, and everyone needs the fat! Obviously, not huge huge quantities, but what you get from rice bran isn't huge huge quantities. Fat is vital for nutrient absorbption, as well as helping insulin secretion regulation. -
ARCHIVED Disagree With Doctors
tarnalberry replied to lovemyboy's topic in Parents, Friends and Loved Ones of Celiacs
Since you are the one feeding him, not the doctors, the only person you need to convince is yourself. Lots of us here don't have "conclusive, doctor determined diagnoses", but have listened to our bodies and found what works for us. -
Well, there's eggs for protein as well. But as for strict dairy substitutes, it's almost all soy. Soy milk (almond/rice/nut milks don't have much protein), soy cream cheese/sour cream (tofutti and trader joe's both make these), soy protein powder (though you can get rice and pea as well). There are two casein free cheeses I've seen, and they're hard to...
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ARCHIVED Wheat Makes Me Paranoid!
tarnalberry replied to tarnalberry's topic in Coping with Celiac Disease
well, I can "understand" about his thinking he can't have it now that he's at home (but I presume he has a car/bike/feet, and can walk *outside* of the home if he WANTS to), but that doesn't explain why he doesn't clean up after himself. I'm curious if he even answers the "ok, so you can have the gluten-filled food here, but you just have to keep things... -
yep, it can be a tough challenge, but it sounds like you're handling it quite well so far. good for you! :-)
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ARCHIVED Wheat Makes Me Paranoid!
tarnalberry replied to tarnalberry's topic in Coping with Celiac Disease
I don't blame you about being angry. I see it as a respect issue, and right now (given that he's been gluten-free with you guys before), he's just being childishly disrespectful. Is he trying to get back at you for bringing this into the house? Is he trying to punish you for bringing this to his daughter? Is he just in denial over the whole thing? Is... -
ARCHIVED Going To Family Doc In 8 Days...
tarnalberry replied to cherie012's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
In order to find out if your body produces antibodies to something, you have to be "getting" that something for it to react to. So yes, you have to continue eating plenty of gluten - the recommendation, I believe, before testing, is a minimum of the equivalent of three slices of wheat bread a day. -
ARCHIVED New To All This
tarnalberry replied to MACE's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
If you haven't already, take a look at the safe/forbidden list here at the celiac.com site. It's quite useful, and small enough to carry around. I prefer to stick with whole, naturally gluten-free foods to reduce the risk of contamination, to reduce the cost, and generally because it's often healthier, but there are a number of specialty items that can... -
ARCHIVED Antibiotics
tarnalberry replied to Jen H's topic in Gluten-Free Foods, Products, Shopping & Medications
Some antibiotics bother me - though not always. I was able to have Biaxin once, many years ago, and had some side effects, but nothing horrible. (Though the taste of sucking on a penny for three weeks wasn't pleasant either...) But I had it more recently (probably two years ago... not sure if I was gluten-free at the time or not), and I couldn't keep it... -
ARCHIVED Worried About The Cost Of gluten-free Foods
tarnalberry replied to chrissy's topic in Gluten-Free Foods, Products, Shopping & Medications
I just want to echo the sentiments that sticking to whole, unprocessed, naturally gluten-free foods, the diet needn't be expensive. Rice and beans are good filling staples that can form the basis of many meals, and are cheap. Fresh fruits and vegetables needn't be expensive, particularly if you stick to what's on sale. If you eat meats, you can use gluten... -
ARCHIVED Going Back To Basics
tarnalberry replied to carriecraig's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
smoothies are good for any time of the day! easy to make too! :-) -
ARCHIVED A Shout Out For Triumph Dining Cards
tarnalberry replied to elonwy's topic in Gluten-Free Restaurants
Actually, chinese food is often risky. They use soy sauce in many of their sauces - or other sauces which also use wheat. Chow mein uses wheat based noodles, and the egg roll wrappers are also wheat based. Anything fried is likely to be coated in a flour you can't have. White sauces can be ok, but you have to check on the thickener.