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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED This Is An Odd Development
tarnalberry replied to sandsurfgirl's topic in Coping with Celiac Disease
I didn't find the taste of soda really changed for me, going gluten free, but I never liked drinking a lot of it anyway. What I really like doing, when I want something fizzy, is combining half a glass of orange juice with half a glass of San Pelligrino. Smaller bubbles than most carbonated beverages (even seltzer water, though it'll do in a pinch) and... -
ARCHIVED 19 Month Old With Chronic Diarrhea
tarnalberry replied to alaynasmommy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It certainly could be, but there's no way to rule out other things that have overlapping symptoms without some variety of testing. I hope your GI appointment is soon. If you are doing any diagnostic tests, do NOT take her gluten free - it will mess up the tests. Know that tests are not as reliable in children under 2, so even if she tests negative, it... -
ARCHIVED Not Sure What To Do
tarnalberry replied to itchy-fingers's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The problem with getting blood tests or biopsies is now that you've been gluten free, they won't be reliable. I'm a big fan of "if it hurts to hit yourself in the head, don't hit yourself in the head". Of course, that's harder to do with something so socially prevalent as wheat, but if YOU find that you are confident enough in your conclusion to avoid wheat... -
ARCHIVED Prenatal Vitamins
tarnalberry replied to fancee's topic in Gluten-Free Foods, Products, Shopping & Medications
The problem is that not only are the minerals bulky to take in that quantity, but either your body cannot absorb it all at once (like the calcium) or there are interactions that have one item preventing your body from absorbing the other one (like the calcium/iron combo). It's kinda a pain, but it works. -
ARCHIVED Teriyaki Experience Resturant
tarnalberry replied to miaryan's topic in Gluten-Free Restaurants
I make my teriyaki sauce very unconventionally - soy sauce, mirin, and pineapple juice as the sweetener. Simmer w/ an overhead fan on until reduced (but no longer, or you'll burn it). Takes about 5-10 min to make, depending on how much you're doing. -
ARCHIVED Prenatal Vitamins
tarnalberry replied to fancee's topic in Gluten-Free Foods, Products, Shopping & Medications
I take the rainbow light prenatal one vitamin. BUT, you're not going to get a single pill that has all that you describe there in it. It's too big, and you wouldn't be able to utilize it anyway. IMHO, the important things during pregnancy (especially with celiac) are to take a prenatal (on it's own). Then, spaced out during the day: * take 500mg of... -
ARCHIVED Limited Symptoms - Is Anyone Else Like This?
tarnalberry replied to woodenair's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Do you have a copy of your tests? Your symptoms could certainly be celiac (though not necessarily, of course), but doctors are notorious for running the wrong tests or incomplete tests. What tests did you have and what were the results? (You may have to call the office to get a copy, but you are - by law - allowed a copy of anything in your medical file... -
ARCHIVED The Joys Of Dog Food Shopping
tarnalberry replied to WheatChef's topic in Gluten-Free Foods, Products, Shopping & Medications
but they're just advertising no corn/soy/wheat, and not putting it in. some people are only trying to eliminate the most problematic grains from their dog's diet. there are a LOT of grain-free dog foods, and if you want "celiac style" gluten free, just look for grain free (dogs don't need grains). depending on your dog's digestive system, you will also... -
ARCHIVED Getting "glutened" For The First Time
tarnalberry replied to GFLindsey's topic in Coping with Celiac Disease
My symptoms last up to a week. The chemical reaction occurring in your body is somewhat self-sustaining, and can last up to two weeks, but some folks experience symptoms longer than that as their body recovers from the two-week long auto-immune rampage. -
ARCHIVED Falling Off The Gluten-Free Wagon
tarnalberry replied to kare101's topic in Coping with Celiac Disease
Most of us do remember. Most of us still have some wishful fantasy that we could "eat normally" without having any problems. But jestgar's advice was similar to what I would write: Know that these choices are in your control. There's no secret to not succumbing to a desire for food. There's no special method for making sure you don't fall to a craving... -
ARCHIVED Can Someone Explain To Me An Elimination Diet?
tarnalberry replied to passionfruit877's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
If you're kissing and sharing water after he's eating something with gluten, that can absolutely contaminate you. Treat is like you would rat poison or weed killer - no chances. -
Have you eliminated all sources of contamination? Shared toasters, utensiles, old colanders, old non-stick pans (if they aren't pristine), shared condiments, etc.? Have you eliminated packaged products produced in shared facilities? How confident are you of being 110% gluten free?
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ARCHIVED Feeling Defeated, Gluten Free 40 Days But Symptoms Came Back?
tarnalberry replied to llynn34's topic in Coping with Celiac Disease
First thing I would suspect is cross contamination in the cooking items. Have you used that lasagna pan since you were dx'ed? The colander? Second would be cross contamination from shared facility items. It's a little bit of an experiment to figure out what bothers us, and sometimes, we can't always identify it for certain. -
ARCHIVED Can Someone Explain To Me An Elimination Diet?
tarnalberry replied to passionfruit877's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Are you sure you're gluten free? Including eliminating cross contamination. Many celiacs just don't feel comfortable eating out because you can almost guarantee there will be at least a very small amount of cross contamination, even if what you order is gluten free. A shared kitchen in the home poses the same risks - shared toasters, condiments, cutting... -
I can't fathom the attitude. Just because someone cooked something doesn't mean that I have to eat it. What I eat is my choice, no one else's. Doesn't matter if I'm allergic to the food, intolerant of the food, just don't like the food, or happen to be full. It's just not their business what I eat or don't. Maybe my "I'm not hungry, thanks" or "I'm not...
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ARCHIVED Some People Are Cruel
tarnalberry replied to canutillomom's topic in Coping with Celiac Disease
Because some people value being right more than you being healthy - or more than anything about you. Tell her you got sick. Tell her you will not be eating at her house *ever* again. (You cannot trust her, clearly.) And tell her that you are disappointed that she would try to sabotage your health and be that cruel. Not a discussion, three short little... -
ARCHIVED Help, I'm Withering Away!
tarnalberry replied to elle's mom's topic in Related Issues & Disorders
Well, you know you need to eat more, so find other foods that you'll eat. Higher fat foods are good - coconut milk in dishes (or to drink, if you can get the dairy replacement one), avocados, plenty of oil on the veggies. Eating more carbs might help, but it doesn't have to be grains - potatoes, beans, lentils. Can you add another meal into your day... -
ARCHIVED How Do You Know How Long You'Ve Had It?
tarnalberry replied to dube's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It can be triggered at any time - before/during birth, in infancy, childhood, adolescence, adulthood. There is no good way to know how long you've had it - just go gluten free so the immune reaction doesn't continue. (You can certainly take a good guess, looking for stressors (including physical ones) that preceded symptoms, but there's no guarantee.) -
ARCHIVED Oats - Do You Have To Limit Amounts
tarnalberry replied to Alex J's topic in Gluten-Free Foods, Products, Shopping & Medications
There are two problems with oats: 1) cross contamination - all major brands are contaminated far beyond acceptable limits. the brand you bought is grown and processed to not be contaminated with wheat, however, so you've chosen well so far. 2) approximately 10% of celiacs react to the protein in wheat. so, contamination or not, pure oats will cause a... -
no one will laugh at you in a class - regardless of your ability level. working with someone is vital so you can learn proper form, be it at the Y, with a PT, or something else. I'm biased, since I teach, but a good yoga class can also provide a lot of strengthening work. (it's a common myth that yoga is about stretching only.)
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ARCHIVED My 8 Year Old...too Late For Celiac Diagnosis?
tarnalberry replied to KekesMom's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Celiac disease can be triggered at any time. The average age of diagnosis is actually well into adulthood. -
ARCHIVED Food Processor, Or Mixer
tarnalberry replied to mushroom's topic in Gluten-Free Recipes & Cooking Tips
I would also suggest the lifting model of the KitchenAid mixer, since you're talking about baking. I grew up with one, and have one now. Don't use it a lot, but it's fabulous for what it's designed for. -
ARCHIVED Gluten Free For 8 Months, Starting To Feel Sick Again
tarnalberry replied to lissm's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I would look very closely at cross contamination. Hopefully you've got your own dedicated toaster and she's not cooking gluten in your dedicated cookware with your dedicated utensils, but you also should look for crumbs and flour dust and all the other possible sources of contamination. -
ARCHIVED What Can I Use In Place Of Beano?
tarnalberry replied to tabdegner's topic in Coping with Celiac Disease
You could just cook your veggies. Some people find it helpful to avoid raw and just cook. You could try a general digestive enzyme (look in a health food store). You can get papain (papaya enzyme) or a product with a mix of digestive enzymes. (No particular brand name - many companies make this sort of thing.) -
ARCHIVED Newly Diagnosed-Not Happy
tarnalberry replied to Sher1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
The cooking will get easier. Honestly, it's made me a more creative and inventive cook. Though I'm the only one who needs to, my husband eats gluten free with me (outside of his own little corner of bread and cereal). The transition is harder than where you end up.