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RMJ

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Everything posted by RMJ

  1. RMJ
    Do any of the numbers have units after them? This would help to figure out which number goes with which test. For example is it 261 mg/dL? Is it <1.0 u/mL?
  2. RMJ
    It seems like some doctors really don’t like to give a diagnosis of celiac disease! You have positive biopsy and some positive bloodwork. One doesn’t have to have all the antibodies positive to have celiac disease. Sometimes when doctors want to do more testing it helps to ask: “ What difference will the results make to your recommendations for treat...
  3. RMJ
    I can certainly see why you’re confused. Something doesn’t make sense. I don’t see a positive test for celiac antibodies that the allergist could have used for diagnosis. What is shown isn’t a comprehensive panel. Is there a result for the Gliadin IgA or IgG? Sometimes a “reflex” test means they may do more testing, depending on the original results. ...
  4. RMJ
    As Trents said, it is not clear which tests your daughter had. TTG could be TTG-IgA or TTG-IgG. IgA could be TTG-IgA, DGP-IgA or total IgA. Could you post a photo of the actual results?
  5. RMJ
    I have not run into either of these situations. There aren’t many prescription medications that contain wheat (for example, as wheat starch) as an ingredient. Some manufacturers may not be willing to claim a medication is gluten free, even though based on the ingredients it shouldn’t have any, so any gluten would be contamination. In that case I w...
  6. RMJ
    There is this list, although it hasn’t been updated since 2019. Gluten Free Drugs You can also search for the drug on this NIH website: Daily Med Enter the name or NDC# of the drug, click the search symbol (magnifying glass), then scroll down to Ingredients and Appearance. If you have the drug already the container should have the NDC# ...
  7. RMJ
    It looks like you have two tests that indicate celiac disease. One does not need to have all of the tests positive in order to have it.
  8. RMJ
    How great that you want your friend to have a healthy living environment! To answer your specific questions: Oven: I’m assuming this oven does NOT have a fan in it. Unless there is dry wheat or rye flour loose in the oven it should not be a problem sharing at separate times. If cooking at the same time it should even be ok if the gluten free i...
  9. RMJ
    I don’t know anything about My Spice Sage, but spices at Spicely.com are certified gluten free and you can order online from them or via Amazon.
  10. RMJ
    I wouldn’t always call it a pattern of negligence. I had trouble with flours from a very well respected company that is frequently recommended by those with celiac disease.
  11. RMJ
    I know you said it wasn’t a question, but as an asymptomatic celiac I can give an answer. I don’t know if I’ve been glutened unless it is a prolonged exposure that shows up in increased antibody levels at my yearly checkup. Therefore I have to be extra careful.
  12. RMJ
    That sounds like a biopsy of the stomach. Are there any biopsy results for the duodenum?
  13. RMJ
    King Arthur’s gluten free flours (Measure for Measure and All Purpose) are fortified with iron and some B vitamins.
  14. RMJ
    You can eat while others are eating as long as they’re not distributing crumbs all over the table. My husband is not gluten free and often eats meals containing gluten at the same table where I’m eating my gluten free meal. A simple brush down of crumbs and hand wash should be fine as long as your food is on a plate or similar and not touching the act...
  15. RMJ
    My Ttg level normalized in a year but took me 6 years to get my DGP IgA level down to the normal range. I thought I was eating gluten free but to be in the normal range, if I eat processed foods they have to be certified gluten free. If your result was reported as >250, who knows how high it really was! You’ve gotten it down a lot and your symptoms h...
  16. RMJ
    Before even considering an endoscopy the next step would be a full panel of blood tests for celiac antibodies. TTG IgA and IgG, DGP IgA and IgG, and total IgA (a control to ensure other IgA tests are valid). Some doctors will diagnose based on these tests alone.
  17. RMJ
    I saw one after a few years because I couldn’t get my DGP IgA down to normal range. I got some suggestions that didn’t help, and finally figured it out on my own.
  18. RMJ
    It is very normal to take one or more biopsies, even if the doctor didn’t see anything suspicious with the endoscope.
  19. RMJ
    If you mean the toothpaste tube that should be fine. If actual toothpaste hit the floor I wouldn’t use that bit of paste whether I had celiac disease or not!
  20. RMJ
    As long as the top of the inside of the microwave is clean you should be fine.
  21. RMJ
    The units of measure for this test are not absolute. Each lab uses different units for this test so one has to go by the lab range. An example of what I mean by different units: Imagine someone is measuring length, and one person says something is three bananas long, and another says the same thing is six oranges long.
  22. RMJ
    Yes!
  23. RMJ
    I found that sleeping with a pillow under my knee helped a lot.
  24. RMJ
    You might look up meralgia paresthetica to see if it describes your thigh symptoms. I used to have it, due to a nerve being compressed, and it was worse at night when I was lying flat on my back.
  25. RMJ
    Perhaps your doctor used the term “allergy” because most people understand that better than “celiac disease”? Inflammation in the duodenum plus a positive tissue transglutaminase does sound like celiac disease. Were you told to go gluten free?
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