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RMJ

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Everything posted by RMJ

  1. RMJ
    I've switched to eating peanuts that I take out of the shells myself.
  2. RMJ
    I think you could taste the difference if you do it with foods. Instead, you could get empty gelatin capsules, fill some with a gluten free flour, and fill the others with actual gluten. They might look a bit different, but your partner could hand them to you each day when your eyes were closed. With pure gluten you wouldn't have to take too many each...
  3. RMJ
    I decided to switch to gluten free shampoo but ONLY because I have long hair and it gets in my mouth a lot.
  4. RMJ
    How far do you go in avoiding processed foods that may have been contaminated before they get to you? At first I just avoided anything with gluten-containing ingredients. My antibodies went down but not to normal levels. I had to use Fasano's gluten contamination elimination diet: Open Original Shared Link
  5. RMJ
    Usually the ranges I've seen for positive are >3, or >19. I think it is likely that you are high positive for the two celiac tests. (The Immunoglobulin A test is not a test for celiac, it is to be sure your IgA is in the normal range because if not, the other tests aren't valid if they are negative). Keep eating gluten until you see the GI in...
  6. RMJ
    It would help us to help you if would you list the normal ranges from your lab report as they can vary from lab to lab depending on what manufacturer's test they use.
  7. RMJ
    A week and a half is not long enough for a gluten challenge if you've been gluten free for months. Eight to twleve weeks is more like it.
  8. RMJ
    Looks like they did a good job of testing you! Your IgA level of <1 is VERY low (that is total IgA, not celiac-specfic IgA). Because the Total IgA is so low, any celiac IgA tests would be useless. So for the celiac tests they looked at IgG instead of IgA and those are both high positives.
  9. RMJ
    Gastroenterologist. Although she is not a lot of help. She didn't suggest the GCED, I did that on my own. She does order the antibody tests when I ask for them.
  10. RMJ
    I've never had obvious symptoms so it was the antibody levels.
  11. RMJ
    I thought I was gluten free, but I had to do the Gluten Contamination Elimination Diet to get my levels down that last little bit. Open Original Shared Link
  12. RMJ
    I am happy for you!
  13. RMJ
    Some doctors won't give a celiac diagnosis without a positive biopsy, no matter what. I was high positive on five different blood tests (TTG IgA and IgG, DGP IgA and IgG and EMA). All values went down to normal or very near normal on a gluten free diet. I could not have a biopsy due to other health problems. My GI will not give me a celiac diagnosis.
  14. RMJ
    You probably know this, but just in case - if you have another blood test after you've done a good job being gluten free, it will probably be negative. But that does not mean the first one was wrong. It means you have celiac and are keeping it under control with your diet.
  15. RMJ
    Have all of your tests been done by the same lab? Unlike blood glucose and Vitamin D, different labs have different units and different ranges for celiac tests so they can't be compared. TTG and DGP are both celiac tests. They are looking for different types of antibodies which may be involved. They do NOT both have to be positive to indicate celiac. ...
  16. RMJ
    Are you sure that all of yur vitamins and supplements are gluten free?
  17. RMJ
    Are you in Canada? Are these links to the lab in question? Open Original Shared Link Open Original Shared Link
  18. RMJ
    Do you have the lab ranges for the tests? It is difficult to say much without those, but it is very likely that the gliadin peptide IgA is positive. Some of the others might be also. If I were you, I would get a copy of the complete results, make an appointment with a gastroenterologist, and get a new primary doctor.
  19. RMJ
    Panel 2 is the one that tests for celiac with the DGP and tTG tests. Panel 1 does NOT have any celiac-specific tests.
  20. RMJ
    I eat short grain brown because I like the flavor.
  21. RMJ
    Here's the General Mills press release for the recall: Open Original Shared Link
  22. RMJ
    I don't know where you live. I was able to order my original TTG tests through mymedlab.com, but not the DGP tests. https://www.mymedlab.com/locations
  23. RMJ
    I can't explain it either. It is the opposite of my results - my hips got better and my spine worse. I'm guessing that my exercises affect the hips more than the spine.
  24. RMJ
    If you haven't had TTG and DGP blood tests (I don't think I saw them mentioned in this topic) I would get them before a biopsy. Less invasive and less expensive.
  25. RMJ
    Those are not the standard tests for celiac, those are allergy-related tests. You should have the IgA and IgG TTG and DGP tests for celiac.
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