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RMJ

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Latest Celiac Disease News & Research:

Everything posted by RMJ

  1. RMJ
    I eat at my brothers' houses but I watch them prepare the food and grab every bottle/jar to check the ingredients.
  2. RMJ
    Asian Box is completely gluten free, although that information is not very prominent on their website. I haven't been to the SF location but enjoyed the Mountain View location. It looks like the SF location may be within the Macy's department store.
  3. RMJ
    I eat their chips but not their cocoa. I used to, but then the cocoa label changed to say that it may contain wheat (or is made in a facility with wheat, I forget which). When I asked them about it they said they had changed where the cocoa was manufactured. But since the chips don't say that I feel safe with them. Always good to read the label every...
  4. RMJ
    I did the Celiac Basic, I don't see Celiac Complete but they may have different tests in different areas. Unfortunately the basic doesn't include DGP.
  5. RMJ
    I had my original tests done through this lab without going through a doctor (supposedly one reviews the results before they are posted). They don't operate in every state so don't know if it would help you or not. Open Original Shared Link Good luck getting tested and getting answers!
  6. RMJ
    They seem to be good about saying things may contain wheat when their products are made on shared equipment, for example their ground chocolate which I no longer use. This is the reply I got a year ago (March 2015) when asking about their 60% cacao chips. "Dear Consumer, There is no wheat in our 60% chips and no wheat in our chips facility...
  7. RMJ
    Since you're a fellow scientist, here is a link to the paper that explores the kinetics of a gluten challenge. See figure 2 for the antibody levels. Looks like they go up somewhere between 2 and 4 weeks. Open Original Shared Link
  8. RMJ
    When a lab develops their own test, and only runs it in their own lab, they do not need to go through the rigorous FDA approval process for diagnostics.
  9. RMJ
    Winjer, I don't think one can assume that positive TTG results in a non-celiac are a response to wheat. I haven't seen any scientific literature on the subject, that's just my educated guess.
  10. RMJ
    Celiac antibody tests are immunoassays. They use antibodies to detect antibodies. I am a scientist and used to develop this type of assay. They are NOT perfect. Even those approved by the FDA (or Canadian equivalent) can give false positives and false negatives. However, MOST positives and negatives are real. I looked up the FDA information on...
  11. RMJ
    I've switched to eating peanuts that I take out of the shells myself.
  12. RMJ
    I think you could taste the difference if you do it with foods. Instead, you could get empty gelatin capsules, fill some with a gluten free flour, and fill the others with actual gluten. They might look a bit different, but your partner could hand them to you each day when your eyes were closed. With pure gluten you wouldn't have to take too many each...
  13. RMJ
    I decided to switch to gluten free shampoo but ONLY because I have long hair and it gets in my mouth a lot.
  14. RMJ
    How far do you go in avoiding processed foods that may have been contaminated before they get to you? At first I just avoided anything with gluten-containing ingredients. My antibodies went down but not to normal levels. I had to use Fasano's gluten contamination elimination diet: Open Original Shared Link
  15. RMJ
    Usually the ranges I've seen for positive are >3, or >19. I think it is likely that you are high positive for the two celiac tests. (The Immunoglobulin A test is not a test for celiac, it is to be sure your IgA is in the normal range because if not, the other tests aren't valid if they are negative). Keep eating gluten until you see the GI in...
  16. RMJ
    It would help us to help you if would you list the normal ranges from your lab report as they can vary from lab to lab depending on what manufacturer's test they use.
  17. RMJ
    A week and a half is not long enough for a gluten challenge if you've been gluten free for months. Eight to twleve weeks is more like it.
  18. RMJ
    Looks like they did a good job of testing you! Your IgA level of <1 is VERY low (that is total IgA, not celiac-specfic IgA). Because the Total IgA is so low, any celiac IgA tests would be useless. So for the celiac tests they looked at IgG instead of IgA and those are both high positives.
  19. RMJ
    Gastroenterologist. Although she is not a lot of help. She didn't suggest the GCED, I did that on my own. She does order the antibody tests when I ask for them.
  20. RMJ
    I've never had obvious symptoms so it was the antibody levels.
  21. RMJ
    I thought I was gluten free, but I had to do the Gluten Contamination Elimination Diet to get my levels down that last little bit. Open Original Shared Link
  22. RMJ
    I am happy for you!
  23. RMJ
    Some doctors won't give a celiac diagnosis without a positive biopsy, no matter what. I was high positive on five different blood tests (TTG IgA and IgG, DGP IgA and IgG and EMA). All values went down to normal or very near normal on a gluten free diet. I could not have a biopsy due to other health problems. My GI will not give me a celiac diagnosis.
  24. RMJ
    You probably know this, but just in case - if you have another blood test after you've done a good job being gluten free, it will probably be negative. But that does not mean the first one was wrong. It means you have celiac and are keeping it under control with your diet.
  25. RMJ
    Have all of your tests been done by the same lab? Unlike blood glucose and Vitamin D, different labs have different units and different ranges for celiac tests so they can't be compared. TTG and DGP are both celiac tests. They are looking for different types of antibodies which may be involved. They do NOT both have to be positive to indicate celiac. ...
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