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RMJ

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Everything posted by RMJ

  1. RMJ
    It takes more than a week for antibody levels to go down from positive to normal, your tests tomorrow should be fine. Please let us know the results!
  2. RMJ
    The low Immunoglobulin IgA voids the IgA result, but the TTG IgG was also run and the low total IgA level shouldn't affect that value.
  3. RMJ
    A sudden increase in floaters can indicate an eye problem, I would see an eye doctor.
  4. RMJ
    Just a caution - It is not good to compare numerical results from different laboratories. They may use tests from different manufacturers with different reference ranges. The units they report are not universal, but are defined by each manufacturer. You could atill see if you get positive reaults again after eating gluten.
  5. RMJ
    You say he has no symptoms whatsoever, but celiac is associated with at least 300 symptoms, including growth retardation, which is why he was tested. Many celiacs have no digestive system symptoms. I only had migraines and was the first in my family to be diagnosed. Open Original Shared Link
  6. RMJ

    ARCHIVED Paris!

    RMJ replied to durrsakja's topic in Traveling with Celiac Disease

    Here are my notes on Helmut Newcake hours: Weds to Sat 12-2:30 lunch. Also takeaway until 7:30 Sunday brunch 12-3 need reservation Second location (takeaway) Tues to Sat 11:30 to 7 28 rue vignon
  7. RMJ

    ARCHIVED Paris!

    RMJ replied to durrsakja's topic in Traveling with Celiac Disease

    I haven't been to any of these, just planning for a future trip, but these are all supposed to be gluten free. Most have Facebook pages in addition to websites - sometimes the weekly menu is on the Facebook page. Thank You, My Deer Chambelland My Free Kitchen Biosphere Cafe Yummy and Guilt Free Please tell us about any that you try!
  8. RMJ

    ARCHIVED After The Fasano Diet

    RMJ replied to RMJ's topic in Super Sensitive People

    Thank you again for all suggestions, just what I was hoping for. I called Penzeys and they said their spices are gluten free, but at this point I would also prefer something certified. For the Fasano diet I got walnuts and almonds in the shell from nuts.com but didn't know they have dried raspberries. I bought some frozen ones then looked them up on the...
  9. RMJ

    ARCHIVED After The Fasano Diet

    RMJ replied to RMJ's topic in Super Sensitive People

    Thank you so much! Two votes for Stubbs - I will definitely look for it.
  10. RMJ
    I was able to get four out of five antibody levels down to normal by reading labels carefully to avoid gluten-containing ingredients, and avoiding contamination within our kitchen (discard wooden spoons, colander, teflon-coated pans, no shared condiments, etc). It took Fasano's gluten contamination elimination diet to get the DGP IgA under control. Per...
  11. RMJ
    I don't have symptoms either. My husband recently decided to give up bread at home so I wouldn't have to worry about the crumbs. He still eats other things with gluten, but they are easier to contain. We have separate dishes and eating utensils because we have no dishwasher and he doesn't wash dishes very well!
  12. RMJ
    And just in case you want to see the original Fasano paper describing the diet: Open Original Shared Link
  13. RMJ
    There is a lot of anecdotal evidence and at least one scientific paper that say that the severity of the response to gluten increases after going gluten free. There is also scientific evidence that the T cell response (part of the immune response) to gluten increases after going gluten free. I haven't seen any papers discussing TTG response.
  14. RMJ
    Since Bob's admits their trace gluten content varies from lot to lot, and your daughter is having symptoms along with the increased antibody level, maybe you've gotten some flour lots at the higher end of the range. I had to follow the Fasano diet to get my last antibody level down. Could you try eliminating baked goods for a month to see if symptoms improve...
  15. RMJ
    Hi, Are your celiac antibodies now normal? Or have you had a repeat endoscopy that is normal? That could help to tell if you're better from the celiac point of view, or if gluten is sneaking in and preventing your recovery.
  16. RMJ
    That would be a negative.
  17. RMJ
    Different labs may use tests made by different manufacturers. You should go by the reference range of the lab that did your tests.
  18. RMJ
    I don't have symptoms but follow my progress with blood tests. Two years trying to be gluten free (no gluten-containing ingredients) and the DGP IgA was much lower than the original number (45 vs 143), but still stubbornly high. Four months ago I started a gluten contamination elimination diet. It worked! The DGP IgA this week is 26, still a bit above...
  19. RMJ
    I have been trying to be gluten free for 2-1/2 years. When diagnosed I was high positive on 5 blood tests (TTG IgA and IgG, EMA IgA, & DGP IgA and IgG. After the first year, all but DGP IgA were normal, and that one is down by 65%. I'm actually going to my doctor (GI) today to discuss this. For the last 4 months I've been eating very plain foods ...
  20. RMJ
    I am nonsymptomatic and having a very hard time getting my DGP IgA antibody levels down to normal. I thought avoiding gluten-containing ingredients would be enough but apparently it isn't - contamination seems to be a problem for me.
  21. RMJ
    Figure 2 in this paper shows the time course for antibody level increases during a gluten challenge. They didn't test at 3 weeks, but the values went up nicely sometime between 3 and 4 weeks. This was a small study, only about 20 patients, but this is a paper that people refer to for determining the length of a gluten challenge. Open Original Shared Link
  22. RMJ
    I say thank you and feed it to my husband who is not gluten free.
  23. RMJ
    I don't see why you and your husband can't eat together. Is it that you can't both prepare food at the same time? Gluten on the plate of the person next to you is not going to jump over and harm you. Unless there is flour all over the inside of the oven it shouldn't be a problem. A thorough wipedown should take care of it. You could always cover the...
  24. RMJ
    That is a very low positive. With this type of test, the values can vary about 5% if you run the same blood sample several times. It could easily be 19 (negative) or 20 next time. That does look like a good list of tests to run. The "w/rfx" (with reflex) might mean they will only run it if the Ttg is positive. That is what my doctor's lab does. You...
  25. RMJ
    I think the outer coating would be the wheat bran?
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