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RMJ

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Latest Celiac Disease News & Research:

Everything posted by RMJ

  1. RMJ
    I don't have symptoms either. My husband recently decided to give up bread at home so I wouldn't have to worry about the crumbs. He still eats other things with gluten, but they are easier to contain. We have separate dishes and eating utensils because we have no dishwasher and he doesn't wash dishes very well!
  2. RMJ
    And just in case you want to see the original Fasano paper describing the diet: Open Original Shared Link
  3. RMJ
    There is a lot of anecdotal evidence and at least one scientific paper that say that the severity of the response to gluten increases after going gluten free. There is also scientific evidence that the T cell response (part of the immune response) to gluten increases after going gluten free. I haven't seen any papers discussing TTG response.
  4. RMJ
    Since Bob's admits their trace gluten content varies from lot to lot, and your daughter is having symptoms along with the increased antibody level, maybe you've gotten some flour lots at the higher end of the range. I had to follow the Fasano diet to get my last antibody level down. Could you try eliminating baked goods for a month to see if symptoms improve...
  5. RMJ
    Hi, Are your celiac antibodies now normal? Or have you had a repeat endoscopy that is normal? That could help to tell if you're better from the celiac point of view, or if gluten is sneaking in and preventing your recovery.
  6. RMJ
    That would be a negative.
  7. RMJ
    Different labs may use tests made by different manufacturers. You should go by the reference range of the lab that did your tests.
  8. RMJ
    I don't have symptoms but follow my progress with blood tests. Two years trying to be gluten free (no gluten-containing ingredients) and the DGP IgA was much lower than the original number (45 vs 143), but still stubbornly high. Four months ago I started a gluten contamination elimination diet. It worked! The DGP IgA this week is 26, still a bit above...
  9. RMJ
    I have been trying to be gluten free for 2-1/2 years. When diagnosed I was high positive on 5 blood tests (TTG IgA and IgG, EMA IgA, & DGP IgA and IgG. After the first year, all but DGP IgA were normal, and that one is down by 65%. I'm actually going to my doctor (GI) today to discuss this. For the last 4 months I've been eating very plain foods ...
  10. RMJ
    I am nonsymptomatic and having a very hard time getting my DGP IgA antibody levels down to normal. I thought avoiding gluten-containing ingredients would be enough but apparently it isn't - contamination seems to be a problem for me.
  11. RMJ
    Figure 2 in this paper shows the time course for antibody level increases during a gluten challenge. They didn't test at 3 weeks, but the values went up nicely sometime between 3 and 4 weeks. This was a small study, only about 20 patients, but this is a paper that people refer to for determining the length of a gluten challenge. Open Original Shared Link
  12. RMJ
    I say thank you and feed it to my husband who is not gluten free.
  13. RMJ
    I don't see why you and your husband can't eat together. Is it that you can't both prepare food at the same time? Gluten on the plate of the person next to you is not going to jump over and harm you. Unless there is flour all over the inside of the oven it shouldn't be a problem. A thorough wipedown should take care of it. You could always cover the...
  14. RMJ
    That is a very low positive. With this type of test, the values can vary about 5% if you run the same blood sample several times. It could easily be 19 (negative) or 20 next time. That does look like a good list of tests to run. The "w/rfx" (with reflex) might mean they will only run it if the Ttg is positive. That is what my doctor's lab does. You...
  15. RMJ
    I think the outer coating would be the wheat bran?
  16. RMJ
    Say whatever is needed to keep your food safe!
  17. RMJ
    The TTG and EMA tests look for the same autoantibodies, but in different ways. Those results look like a TTG test (done in a test tube). The EMA test is evaluated under a microscope and results are in the format 1:##.
  18. RMJ
    Page 24 of the linked pdf shows how it was bred (non-GMO). It is not gluten free barley, it is low gluten, 5 ppm. Open Original Shared Link
  19. RMJ
    Based on your other posts I believe you have only been gluten free for about three or four months? It often takes longer than that for celiac symptoms to go away. You may just need to be patient.
  20. RMJ
    I'm hoping to go to Paris next year and have identified seven bakeries/cafes that say they are completely gluten free!
  21. RMJ
    When I was in my early 30s I had an enlarged lymph node in my armpit. My doctor thought it might be advanced breast cancer and sent me for an "emergency mammogram." It turned out to be mononucleosis and in a few days I came down with more symptoms. I hope your lymph node is equally benign. Hugs, Ruth
  22. RMJ
    Two days without gluten should not affect your tests results. Antibodies stay in the bloodstream for much longer than that.
  23. RMJ
    You know you have celiac, you know your antibodies are still high. Thus they could still be causing all of your symptoms. Celiac is associated with many diverse symptoms; here is a link with 300 symptoms from the University of Chicago Celiac center. Open Original Shared Link This paper describes a gluten contamination elimination diet. I am tryng it...
  24. RMJ
    It does not take years for the body to clear itself of gluten. For someone with celiac, after going gluten free it may take many months for the antibody levels to decrease and even longer for severe damage to heal.
  25. RMJ
    You could try corn on the cob if you are just trying to see if corn bothers you.
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